Search
Search
About
Log in
Join
Experiences with
Biologic Therapy
Posts
Communities
16,528 public posts
Filter results
Aspirin trials
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
Runner1957
in
Prostate Cancer Network
11 months ago
Latest blood results - any ideas?
Hello Everyone, Here are my most recent BH results obtained as per the forum guidelines - the last test I did was about 3 months ago. Cortisol Following my very low Regenerus cortisol results, I've been on Adrenavive 2 for about 4 weeks now, no digestive or other problems. I've been working upwards
Hello Everyone, Here are my most recent BH results obtained as per the forum guidelines - the last test I did was about 3 months ago. Cortisol Following my very low Regenerus cortisol results, I've been on Adrenavive 2 for about 4 weeks now, no digestive or other problems. I've been working upwards
Sneedle
in
Thyroid UK
11 months ago
endo symptoms on hormonal therapy
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
PBGV24
in
Endometriosis UK
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
HRT and RLS
Hi, I just saw a reply on a post where Sue talked about HRT being a possible trigger. Are there any safe options? I am currently on Femeton and have just been put on a higher dose because of menopause symptoms. I’m wondering now if this is part of the problem. I would probably be suicidal if I
Hi, I just saw a reply on a post where Sue talked about HRT being a possible trigger. Are there any safe options? I am currently on Femeton and have just been put on a higher dose because of menopause symptoms. I’m wondering now if this is part of the problem. I would probably be suicidal if I
loops1207
in
Restless Legs Syndrome
11 months ago
Starting B12 injections
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
FancyPants54
in
Pernicious Anaemia Society
11 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
11 months ago
HRT & RA experiences
hi, I’m wondering if there are others who have experience of RA improvement with HRT. My RA is relatively well managed.. one year in.. have a love / hate relationship with methotrexate (many other posts on this!), but am generally tolerating it better. I am having noticeable flares when I ovulate
hi, I’m wondering if there are others who have experience of RA improvement with HRT. My RA is relatively well managed.. one year in.. have a love / hate relationship with methotrexate (many other posts on this!), but am generally tolerating it better. I am having noticeable flares when I ovulate
Sapphire1701
in
NRAS
11 months ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Prostate Cancer Network
11 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
11 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Darryl
Partner
in
Prostate Cancer And Gay Men
11 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
11 months ago
Induced coma
Hello, I was an induced coma for 6 weeks from early may, I'm out of hospital and home now. I'm finding my memory is terrible. I have no memory from about a month before my admission and now I keep forgetting little things and lots of them, like remembering to look at my diary where I have written appointments
Hello, I was an induced coma for 6 weeks from early may, I'm out of hospital and home now. I'm finding my memory is terrible. I have no memory from about a month before my admission and now I keep forgetting little things and lots of them, like remembering to look at my diary where I have written appointments
Lornz
in
ICUsteps
1 year ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
10 months ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
11 months ago
Had my REMS scan today
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
CDreamer
in
Bone Health and Osteoporosis UK
11 months ago
QOL Arm wrestling
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
Scout4answers
in
Advanced Prostate Cancer
11 months ago
Please help needed
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Tbob
in
Thyroid UK
1 year ago
"Your thyroid's fine"...what do you think?
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Sleepysparrow
in
Thyroid UK
11 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
10 months ago
1
...
92
93
94
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4523 results
Thyroid UK
2406 results
Endometriosis UK
1878 results
View top 10 communities
Sort by
Most Relevant
Newest