Experiences with

Biologic Therapy

Now, for the first time we are seeing a biologic therapy, the first in the rheumatoid space, that offers two for the price of one. It's suppressing inflammation, but it's also helping pain, and that’s very important to the patient.”

Oh I’m feel frustrated and disappointed because I just got a phone call from the hospital asthma nurse to say my bloods are borderline to get referred for biologic therapy and the consultant doesn’t think they’d accept me.

I started Benepali 16 weeks ago and it was great for 9-10 weeks but now pains crept in and its unbearable. Seeing rhuemy on 14th (whoohoo) where im hoping i can get some advice on what to do next. Shes redoing bloods as alt levels have gone up and giving my a steroid shot. If Benepali isnt working whats

And thanks to the fact that she has now been properly diagnosed, Talia is due this year to start biologic therapy, which blocks aspects of the immune system in order to slow down its attack on the spine.

Hi I have Rheumatoid arthritis for 46 years. I have had many joint replacements and too numerous treatments to mention, I was on Methotrexate for 20 years, but it damaged my liver, then Azathioprine for 5 years, which was no longer effective. Been on Prednisolone for last 6 months due to Covid

Just wanted to update some of you on my recent app (should have been in April, thanks covid 🙄) So my blood test done in March showed my eosinophilic count had dropped to 0!!!! This is the best news ever! And the lowest it has ever been! And overall I’ve felt so much better during the shielding process

Hi there. Back in hospital with asthma exacerbation. I'm being referred to a specialist regarding biological therapies which might include injections each month. Has anyone any experience of these or know more about them. Thanks

Its something that comes up quite a lot on here and I’ve seen it mentioned a few times recently so I thought I would write a post about my experiences at a severe asthma clinic and the kind of things they do there as I think I’ve had about every test under the sun at mine!! Just be aware, though that

So what was initially a very disheartening process of getting a call from the respiratory registrar today saying that he would not increase treatment and see me in 3 months time (despite me needing daily salbutamol and having a severely decreased exercise tolerance from my last admission in hospital)

I have been off Enbrel for 2nd time now due to a Heart failure incident almost a year to day after having the same. My Rheumatologist at time said there was not a link so started back on drug January last year. He has again told me to stop drug after again having problems in November 19. On both occasions

If you are, or your child is, taking: Any biologic therapy, also called a mAb (Xolair/omalizumab, Nucala/mepolizumab, Cinqaero/reslizumab, Fasenra/benralizumab) Steroid tablets or liquid every day Antibiotic tablets or liquid for asthma every week (e.g. azithromycin) Tiotropium A combination inhaler

Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer

Here is a link to the first study report on the double blind placebo controlled clinical trial using the Cognitolite transcranial and intraocular photobiomodulation helmet. The initial report is on the 60 subject cohort at Baylor Research Institute and the Neurosurgery Dept at Baylor Scott and White

Waiting for it to become more popular or breakthrough

Parkinson’s disease research has ended in numerous dead ends despite substantial efforts over many years. Recently, Biogen and Sanofi scrapped their Parkinson’s candidates, cipanemab and venglustat respectively, owing to lack of efficacy, and a disease-modifying therapy has yet to materialise. But the

Real-word evidence is suggesting, for the first time, the most beneficial treatment courses that could help extend the lives of patients with metastatic non-small cell lung cancer, according to research from the Abramson Cancer Center at the University of Pennsylvania. In a new study published online

Has anyone here tried red light therapy? If so, what were your experiences. There are so many devices, each one seems to have a slightly different nm range. I've seen devices from 660 & 850 to 620, 670, 760, 830nm. There's even one with 670 & 810. And, I'm sure many more. Is there research on which one

I’m in a clinical trial at Hopkins and I’ve just I had my second dosing of the lutetium. I was identified as being “avid’ and therefore a good candidate for this treatment. My PSA was doubling every month and a half. I got off DoxyTaxol in November 2020 and my PSA went from 28 to 90 in March. The second

https://parkinsonsnewstoday.com/2021/02/26/biogen-sangamo-partners-developing-novel-gene-therapies/ Gene therapy is what is going to do it for us. Here it is!!

PSA went up three years in a row rising to 5.09 when Proton Therapy commenced. Gleason was 7 and 6 at time of proton therapy. On Lupron and Zytiga currently. PSA now rising again to 6.33 and unsure of what's next. Appt. 4/30.