Experiences with

Biologic Therapy

But I am in the middle of a biologic therapy, Belimumab. So extra suppressed immune condition. I have so far managed to stay away from any sort of invasive procedure. So this is a bit scary and worrying for me.

Hello I have my first appointment at the Behcets center of Excellence coming up very soon. I have a history of symptoms that align with neuro-behcets and my hospital consultant gave me the diagnosis of 'possible behcets'. I also have a diagnosis of Crohns (but I think issue actually Behcets related).

I was determined my AS would not prevent me enjoying and living life to the full which I did by the bucket loads.After 40+ years on NSAID tablets I was offered monthly biologic therapy injections that have given me a new lease of life these past two years.

Hellooo I have had the most terrific pain in my upper back lungs region ( I think) I have been on 20mgs of prednisone for 5 weeks as waiting on getting a new biological therapy I’m wondering if I should contact dia doc in the morning Any advice greatly appreciated TIA Honor x

New strategy against treatment-resistant prostate cancer identified RNA molecule suppresses prostate tumor growth Date: November 5, 2021 Source: Washington University School of Medicine Summary: A new study has identified an RNA molecule that suppresses prostate tumors. The scientists found that prostate

Morning Peeps🙂, My distraction today is: https://nras.org.uk/resource/foot-health-online-course/ So, so interesting! I have learned so much about caring for my painful feet today - thank you NRAS! There are a few videos to watch. I found the one about how biological therapies can affect your feet enlightening

JCVI Condition Group Those who were receiving or had received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including B-cell targeted therapies (including rituximab but in this case the recipient would be considered immunosuppressed

Hi, Thanks so much to everyone for your advice and support. While I have had RLS since I was a teen, and it’s now very bad, my situation was complicated by the onset and diagnosis of COPD in 2017. The COPD has become more severe over the last two years and I am now on home oxygen therapy for 16 hours

At therapist's office at irl group therapy met a person that is same to a character i wrote like 2 months ago without knowing them. The story is litterary similar. A musician with social anxiety and so. They're afraid to perform and have a performance really soon. Just like my character. And in the story

Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that you friendly , helpful people on the forum can help me make a choice by telling me about your experience with these therapies. Have you used

We met with oncology this morning and as I suspected, we didn’t really learn much more. They plan to do the spinal tap Thursday. Pending those results, they’ll make a plan. Brain radiation is off the table also pending spinal tap results. Should the cancer be in sheath/spine, they do not feel brain

My Jeff is still pretty groggy, however, he’s definitely more lucid. He has gotten a little confused, but is about 90% back to normal, but that’s when he’s awake. He constantly nods off and still sleeps a lot. After an MRI and an EEG, they were able to officially rule out stroke. Jeff had the wires

What is the current thinking about doing some type of oxygen therapy during radiation treatments? Is it beneficial or detrimental to the effect of the radiation? Is there a do-it-yourself method?

This is a questionnaire about T4 and T3 dosing in Germany. It seems they prescribe much as in the UK. It's available in full Exp Clin Endocrinol Diabetes 
DOI: 10.1055/a-1832-0644 Article A Questionnaire Survey of German Thyroidologists on the Use of Thyroid Hormones in Hypothyroid

I went to an irl group therapy today and it was so awkward. The levels of cringe were cosmic 😅. The moment the therapist tells me to look ppl at the eyes, i lose desire to even look at them. And worse it's expensive. And i wasn't bringing enough and got even more awkward. I expected it to be less. I

This is a short paper setting out the non trial option for patients needing treatment after a targeted therapy https://jnccn.org/view/journals/jnccn/20/5.5/article-p581.xml Jackie

Seelos Therapeutics Announces Data Demonstrating Statistically Significant Downregulation of mRNA and Reduction of Alpha Synuclein in an In Vitro Gene Therapy Study of SLS-004 Utilizing CRISPR-dCas9 in Dementia with Lewy Bodies Preliminary Findings of In Vitro Study The goal of this in vitro study

It's rather an old post but the paper describes what effect the DI01 mutation has on thyroid hormone levels and goes a little into combination therapy. Useful for those having the mutation to educate their GP when treatment is needed . J Clin Endocrin Metab. First published ahead of print

I am delighted to announce our next zoom session that will be taking place at 7.30 pm London time on Wednesday, the 29th of June. We will have the pleasure of listening to Professor Tom Foltynie who will talk to us about “Does the repurposing of diabetes drugs offer hope for Parkinson’s patients?”

We are going on a year of medication treatment with ADHD for my inattentive 10-year-old boy. He started on a low-dose of sertraline, Then we added methylphenidate 10 mg ER and gradually increased it to 20. We eventually weaned him off sertraline and started him in 2 mg of guanfacine. Based on his feedback