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47 public communities
Anticoagulation Support
3,794 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
The Children's Trust
239 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Chronic Pancreatitis Support
808 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
Mental Health Support
31,375 members
Shawmind is a young charity on a mental health mission. We are committed to helping young people, adults and communities to have access to mental health resources when they need them. We do not provide therapy or counselling. Our focus is on early intervention, helping people to understand anxiety, its triggers and related mental health affects, and how to effectively deal with them before they escalate into more serious mental health challenges. Our Breathe Cafés are the perfect place to just ‘breathe’ when you're feeling stressed or anxious. We are partnering with coffeeshops, pubs and restaurants around the country to provide a trained mental health first aider, mental health books, and other resources for those who need them. BreatheUni is a group run by trained Shawmind student volunteers, for students - dealing with all aspects of student mental health & wellbeing. This group is active on Instagram: @breathe_uni We provide a range of training courses which help one better understand mental health conditions and how to spot the signs of those who are struggling. See our website for more info and help! --- The best way to keep your community as safe as possible is by using "Report" feature. If needed, please do not hesitate to flag any posts to by clicking "Report" button https://support.healthunlocked.com/article/17-how-do-i-report-content or sending an email at support@healthunlocked.com. No one should have to deal with extreme feelings alone, so please reach out to close family and friends for help if you need to. You can also talk to your GP or contact one of the many mental health resources found in our Help Centre article here: https://support.healthunlocked.com/article/12-mental-health-resources-and-services If you feel you need immediate support, please call your emergency number 999 or go to your local A&E.
FieryBones - RA Community
672 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
Crohn's and Colitis Support
5,277 members
We are a peer support community for people living with Crohn's disease and Ulcerative colitis. Here we share our experiences, ask questions and support each other!
NRAS
36,544 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
Beyond Psoriasis
2,717 members
We’re a community of people affected by psoriasis and psoriatic arthritis but looking beyond our diagnosis. Join the movement! Work, play, family and the daily grind are as important to us as our symptoms, treatment and research. Beyond Psoriasis is supported by funding from LEO Innovation Lab.
Hunts Community Cancer Network
99 members
Hunts Community Cancer Network welcomes you to this site which is designed to support people recovering from, living with or experiencing the late effects of treatment for all types of cancer. The site is managed by the HCCN nursing team who work out of Hinchingbrooke Hospital along with volunteer patients all of whom understand the challenges that can face people as they come to terms with their condition. We are supported by specialists in exercise, healthy eating, work related problems, and emotional well being who are keen to supplement the all important support people can give each other. We look forward to getting to know you.
Youth Cancer Trust
135 members
We are an online support community for young cancer patients. Join us to share your experience, ask questions and support one another! Talking about your disease can be a powerful tool in learning to cope with it! So why not to start now? This community is run by the Youth Cancer Trust.
Wessex Cancer Trust
70 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Radiotherapy Cancer Treatment
211 members
We are an online community for people who have experienced radiotherapy. Share your experiences and support one another through treatment and beyond!
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