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Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
2 months ago
primary ovarian insufficiency
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
JasmineLuianna
in
Fertility Network UK
2 months ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
2 months ago
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ADT and ankle swelling
I have stage 4 PC with mets to 2 vertebra, one rib and my pelvis. I have been on Lucrin injections 3 monthly, Abiraterone 1000mg daily plus Prednisone. The Prednisone dosage was initially 10mg daily, but 2 months ago I complained to my oncologist about thinning skin on my arms and bleeding from the
I have stage 4 PC with mets to 2 vertebra, one rib and my pelvis. I have been on Lucrin injections 3 monthly, Abiraterone 1000mg daily plus Prednisone. The Prednisone dosage was initially 10mg daily, but 2 months ago I complained to my oncologist about thinning skin on my arms and bleeding from the
Gimmishelter
in
Advanced Prostate Cancer
2 months ago
Pluvicto
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
Jshaw916
in
Advanced Prostate Cancer
2 months ago
Has anyone taken Relugolix from start and no injections of ADT ?
Is relugolix reliable as compared to the adt injections ? Has anyone been only on that and not the injections ? How soon does it bring the testosterone levels down as compared to the injections ? I am in India and it is available here at around 100 dollars for a box of 30 tablets of 120 mg each
Is relugolix reliable as compared to the adt injections ? Has anyone been only on that and not the injections ? How soon does it bring the testosterone levels down as compared to the injections ? I am in India and it is available here at around 100 dollars for a box of 30 tablets of 120 mg each
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Do all get baseline testosterone before starting ADT
my MO had told to do a testosterone test two weeks after starting ADT but I was wondering do most do that or also get one before starting ?
my MO had told to do a testosterone test two weeks after starting ADT but I was wondering do most do that or also get one before starting ?
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Kishan's 6 month Androgen Annihilation Therapy Study for metastatic PCa
https://x.com/prostatecell/status/1770206641813696808?s=46 https://bit.ly/43rr68x seems to be a promising tactic for oligometastatic PCa, that combines SBRT with an ADT mix . The Abstract starts off by noting that with metastatic hormone sensitive PCa, recurrence almost always happens within six months
https://x.com/prostatecell/status/1770206641813696808?s=46 https://bit.ly/43rr68x seems to be a promising tactic for oligometastatic PCa, that combines SBRT with an ADT mix . The Abstract starts off by noting that with metastatic hormone sensitive PCa, recurrence almost always happens within six months
Xavier10
in
Advanced Prostate Cancer
2 months ago
Feeling flat
Hi everyone, just feeling so flat and low. Like a functioning shell, if that makes sense? I’m menopausal too (post) so probably isn’t helping. Only diagnosed with Hashimotos recently but have been struggling with symptoms for years. I assumed it was the menopause so took HRT but as my poor thyroid couldn
Hi everyone, just feeling so flat and low. Like a functioning shell, if that makes sense? I’m menopausal too (post) so probably isn’t helping. Only diagnosed with Hashimotos recently but have been struggling with symptoms for years. I assumed it was the menopause so took HRT but as my poor thyroid couldn
Fizzwhizz
in
Thyroid UK
2 months ago
PSA Still Going Up
I had RP on January 2023, started ADT in May 2023 and went through 38 sessions of radiation. In November 2023, my PSA went down to 0.005 ng/mL. My PSA went up to 0.015 ng/mL in January 2024 and went up to 0.035 ng/mL in my current test. I know Tall Allen said the previous number was negligible because
I had RP on January 2023, started ADT in May 2023 and went through 38 sessions of radiation. In November 2023, my PSA went down to 0.005 ng/mL. My PSA went up to 0.015 ng/mL in January 2024 and went up to 0.035 ng/mL in my current test. I know Tall Allen said the previous number was negligible because
toyman79912
in
Advanced Prostate Cancer
2 months ago
Made a desicion, went private
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
TwigwithaWig
in
Thyroid UK
6 months ago
PSA 8 months after EBRT
I need some reassurance. I tend to worry a little bit so please let me know if the following is or could be somewhat normal. As per my history, I had 4+3 per Dr. Epstein, had Pylarify with no mets, seed implant LD brachytherapy in July 2023, EBRT 28 treatments finishing first of Oct 2023. RO said ADT
I need some reassurance. I tend to worry a little bit so please let me know if the following is or could be somewhat normal. As per my history, I had 4+3 per Dr. Epstein, had Pylarify with no mets, seed implant LD brachytherapy in July 2023, EBRT 28 treatments finishing first of Oct 2023. RO said ADT
electronics-guy
in
Prostate Cancer Network
2 months ago
Increasing armour thyroid
I was diagnosed with Hashimotos and put on armour. I’ve been taking 11/2 grains daily since May and don’t feel great. My most troubling symptoms were mental like low mood, brain fog etc. I ditched HRT in Feb as it was making me feel worse and worse. Would I be ok to try an increase to 2 grains (tablets
I was diagnosed with Hashimotos and put on armour. I’ve been taking 11/2 grains daily since May and don’t feel great. My most troubling symptoms were mental like low mood, brain fog etc. I ditched HRT in Feb as it was making me feel worse and worse. Would I be ok to try an increase to 2 grains (tablets
Fizzwhizz
in
Thyroid UK
2 months ago
Could this be PMR?
Hi there. I have been lurking in the background for a while. I have OA and in fact had both hips replaced-2014 and 2021 to great effect!! However for the past 2 years or so I have had various rounds of physio to try and resolve a stiff neck and sciatic pain. No real relief and Ibruprofen doesn’t help
Hi there. I have been lurking in the background for a while. I have OA and in fact had both hips replaced-2014 and 2021 to great effect!! However for the past 2 years or so I have had various rounds of physio to try and resolve a stiff neck and sciatic pain. No real relief and Ibruprofen doesn’t help
Claribel55
in
PMRGCAuk
2 months ago
New Consultant-Different Plan
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Lassithi
in
Thyroid UK
7 months ago
Hot flashes?
On ADT and suffering? https://www.medpagetoday.com/meetingcoverage/asco/110457?xid=nl_mpt_morningbreak2024-06-04&eun=g2046106d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=MorningBreak_060424&utm_term=NL_Gen_Int_Daily_News_Update_active That might help. I'm no longer on ADT so I can't speak
On ADT and suffering? https://www.medpagetoday.com/meetingcoverage/asco/110457?xid=nl_mpt_morningbreak2024-06-04&eun=g2046106d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=MorningBreak_060424&utm_term=NL_Gen_Int_Daily_News_Update_active That might help. I'm no longer on ADT so I can't speak
Don_1213
in
Prostate Cancer Network
2 months ago
Thyroid
Thank you all for your advice, I am so confused and dont understand thyroid it's all to complicated for me, totally fed up with it the doctor said I can go on HRT if I wanted to take the risk because I feel tired, tearful dont know if it thyroid or post menopause, or depression, its driving me mad
Thank you all for your advice, I am so confused and dont understand thyroid it's all to complicated for me, totally fed up with it the doctor said I can go on HRT if I wanted to take the risk because I feel tired, tearful dont know if it thyroid or post menopause, or depression, its driving me mad
topgirl26
in
Thyroid UK
2 months ago
Stopping HRT for tinnitus
I’m just interested if anyone on HRT has stopped it (gel and progesterone tablets) and found their tinnitus decreased. My doctor has suggested coming off it to see if it will reduce the tinnitus.
I’m just interested if anyone on HRT has stopped it (gel and progesterone tablets) and found their tinnitus decreased. My doctor has suggested coming off it to see if it will reduce the tinnitus.
Rabb5
in
Tinnitus UK
2 months ago
Heart Conditions & Endometriosis
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Terrapin78
in
Endometriosis UK
2 months ago
Best alternative PET for PSMA negative PCa
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Vynbal
in
Advanced Prostate Cancer
2 months ago
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