Hot flashes?

[Don_1213]

On ADT and suffering?

medpagetoday.com/meetingcov...

That might help. I'm no longer on ADT so I can't speak from personal experiences...

[ToolBeltZia]

Check the contraindications. I am not sure this is appropriate for anyone with BPH symptoms or urinary retention/low flow that is induced as a side effect of radiotherapy.

[SherpaT in reply to ToolBeltZia]

Interesting. My oncologist prescribed oxybutynin about 2 weeks into 28 IMRT treatments, which I finished May31. I was already on 2 Tamsulosin dose for slow and erratic flow. He said tamsulosin for flow, oxybutynin for urgency. I also had 3 month Eligard shot April 11, before start of radiation, another 3 month to come in mid July. Thus far I have had no symptoms at all other than the urinary flow, which already seems (maybe my imagination?) a little improved 4 days after last radiation, and of course paltry libido, though no physical changes that I can see anyway. Was wondering about the ADT symptoms, concerned they're just delayed, or maybe I'm lucky? Now I'm wondering if the oxybutynin may have had some effect. I did have a dry mouth, also seems better now even as I continue 10mg dose per day. Not sure if it helped with urgency as I still went pretty often daytime and 5-7 times a night. Last 2 nights were 4 and three, so hope that keeps up or improves. Big concern is that I make the first 3 month Eligard (relatively!) unscathed and the second shot nails me. Won't know about the PSA for a few months of course.

[Mgtd in reply to SherpaT]

We could be twins from a different mother. I am only on half the dose but all else is the same. I am almost 9 to 10 months ahead of you. Glad to report ADT SE are gone. They were minor and T came back 2 months after stopping ADT. Daytime peeing is normal night time is down from 4 to 5 times a night to 2 to 3 and last night was none. So I see some slow progress with that.

We do have one slight difference. I had my pelvic area radiated and I believe this caused some bowel issues but that also has improved.

My PSA over the last 12 months has been <.01 for nine months and last two PSAs were .02 and .04. Waiting on new PSA and T results this week and have one year follow up next week with my RO.

Life is good and I continue to hit the gym and do aerobics daily.

So as you look ahead things are looking good for you too.

[SherpaT in reply to Mgtd]

Thanks, very encouraging! I did also have the pelvic radiation, with SpaceOAR, and had really no bowel side effects, other than a little diarrhea, which could also be caused by the meds. Did you have the 6 mo ADT? Did the second half change things much? I could refuse the shot because I worry about bone loss, muscle, and T recovery, but if SE's don't change, would be able to deal with it and maybe little more confident in cure. I hate specifically doing exercise, but do aerobics 3 times a week and try to walk a mile every day. A lot of outside work on 9 acre rural property. Being more careful with diet and only an occasional beer. Have actually lost 2 or 3 pounds and was not overweight to begin with. Have not suffered from any fatigue I thought unusual fo 74 year old thus far. Didn't give up my 2 cups of morning coffee yet. Hope I can have your success by next spring.

[Mgtd in reply to SherpaT]

Here is my 6 month PSA was <.01. I was off ADT 2 months then. I too had spacer before radiation. I am just a tad older at 79. I do go to the gym every day for resistance work. I walk around 5.5 to 6 miles everyday with my dogs.

Hoping to get 5 good years without ADT. I have an aunt who is 96 and she hates living. I can not say I blame her.

[SherpaT in reply to Mgtd]

As I have seen many times (parents and grandparents mostly in late 80's or 90's when passing), many people do reach a time when they are ready and even happy to go. I hope I can live long enough to reach that point, whenever it is, that they did, without that being caused solely by misery and pain. Hope you reach your goal.

[SherpaT]

Forgot to thank you for interesting link. I see oxybutylin is pretty well tolerated. My prescription covers months, so I'll stay on it for a while and see what happens.