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Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Sisyphus
in
Advanced Prostate Cancer
14 days ago
Gleason 6 Treatment options .
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Conlig1940
in
Advanced Prostate Cancer
14 days ago
Please share your experiences and thoughts.
My last psma scan results are below. Please share your thoughts and experiences regarding my psma results. Is this a bad report or reasonably good?. My psa is undetectable. I am on ADT vacation now for the last 7 months. Should I start ADT now or wait untill psa is detectable? 1. SPLEEN: No new
My last psma scan results are below. Please share your thoughts and experiences regarding my psma results. Is this a bad report or reasonably good?. My psa is undetectable. I am on ADT vacation now for the last 7 months. Should I start ADT now or wait untill psa is detectable? 1. SPLEEN: No new
Ahk1
in
Advanced Prostate Cancer
14 days ago
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Pharmacophobia and severe depression and anxiety
I have been suffering with pharmocophobia ( the fear of taking medicine) for 10 years , I'm going through the change of life so my hormones are off making my depression and anxiety even worse. I'm falling apart daily and can't do anything since I'm given medication and hrt but can't take it regularly
I have been suffering with pharmocophobia ( the fear of taking medicine) for 10 years , I'm going through the change of life so my hormones are off making my depression and anxiety even worse. I'm falling apart daily and can't do anything since I'm given medication and hrt but can't take it regularly
Amen9771
in
Major Depressive Disorder (MDD) Support
15 days ago
advice please!
Hello. I was diagnosed about a year ago with stage 4 prostate cancer. I was on hormone therapy but that is no longer surprising the cancer. It is in my bones, currently spreading in my pelvic bone and lumbar. I hope to start chemotherapy in the next month. But with my current health I don’t know
Hello. I was diagnosed about a year ago with stage 4 prostate cancer. I was on hormone therapy but that is no longer surprising the cancer. It is in my bones, currently spreading in my pelvic bone and lumbar. I hope to start chemotherapy in the next month. But with my current health I don’t know
BonnieKlyde
in
Advanced Prostate Cancer
16 days ago
ADT and creativity
I am a composer. Since I had ADT (Eligard - last shot in early April) I have experienced the conventional side effects - hot flashes, larger breasts, shrunken penis, no libido, tiredness. I am hoping those diminish over time. My question is to those who are occupational "creatives" - artists, writers
I am a composer. Since I had ADT (Eligard - last shot in early April) I have experienced the conventional side effects - hot flashes, larger breasts, shrunken penis, no libido, tiredness. I am hoping those diminish over time. My question is to those who are occupational "creatives" - artists, writers
Eadgbe
in
Prostate Cancer Network
16 days ago
Looking for any Info for Recent PC Diagnosis
I’m a 62 year old, recently diagnosed with advanced prostate cancer. I’ve been on hormone therapy for 2 weeks and see my oncologist in a week. My PC seems to be aggressive and my PSA is off the charts 885! I would love any positive info I can get.
I’m a 62 year old, recently diagnosed with advanced prostate cancer. I’ve been on hormone therapy for 2 weeks and see my oncologist in a week. My PC seems to be aggressive and my PSA is off the charts 885! I would love any positive info I can get.
Iber
in
Advanced Prostate Cancer
16 days ago
Dosage question.
I was diagnosed with Graves and overactive thyroid forty four years ago. I had a thyroidectomy and started on synthetic thyroid hormone therapy. I’m 69 now and take 100 mcg of Levothyroxine daily, my TSH is 0.291, low. What dose should I be taking?
I was diagnosed with Graves and overactive thyroid forty four years ago. I had a thyroidectomy and started on synthetic thyroid hormone therapy. I’m 69 now and take 100 mcg of Levothyroxine daily, my TSH is 0.291, low. What dose should I be taking?
UndertheTuscanSun
in
Thyroid UK
16 days ago
B12 advice please
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Ankles
in
Pernicious Anaemia Society
16 days ago
six years ago today!
It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through! Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases
It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through! Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases
Fitzbruce1
in
Advanced Prostate Cancer
16 days ago
Thyroid Results Advice Appreciated
Please take a look at my results with Monitor My Health: TSH: 0.53 (0.27-4.2) FT4 : 20.1 (12-22) FT3 : 4.1 (3.1-6.8) Vitamin D 71nmol/L HB: 141 No letters given after these but I think pmol/pg/ml might relate to some, this website didn't give them. FER: 60 TSAT: 27 HOLOTC (B12) :
Please take a look at my results with Monitor My Health: TSH: 0.53 (0.27-4.2) FT4 : 20.1 (12-22) FT3 : 4.1 (3.1-6.8) Vitamin D 71nmol/L HB: 141 No letters given after these but I think pmol/pg/ml might relate to some, this website didn't give them. FER: 60 TSAT: 27 HOLOTC (B12) :
celticlady
in
Thyroid UK
16 days ago
HRT with APS and Lupus
I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking I’m peri menopausal. Thanks
I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking I’m peri menopausal. Thanks
Newlupus76
in
LUPUS UK
16 days ago
Hrt/ endo
Been on HRT for nearly 3 years. Stopped cerelle Oct 2023. Bleeding irregularly since! HRT been adjusted but endo is back worse than ever! Anyone had this and did hysterectomy help? Got my ivf miracle 19 years ago so family complete. Pain as bad as 25 years ago!
Been on HRT for nearly 3 years. Stopped cerelle Oct 2023. Bleeding irregularly since! HRT been adjusted but endo is back worse than ever! Anyone had this and did hysterectomy help? Got my ivf miracle 19 years ago so family complete. Pain as bad as 25 years ago!
Elsie400
in
Endometriosis UK
17 days ago
How I Cope With ADT
Episode 10 of My Journey With Prostate Cancer playlist. This episode is less satirical, just hoping somebody finds something in it useful. https://youtu.be/HMxB8DBM1X4?si=Mx81mBr1x_6ClBLn
Episode 10 of My Journey With Prostate Cancer playlist. This episode is less satirical, just hoping somebody finds something in it useful. https://youtu.be/HMxB8DBM1X4?si=Mx81mBr1x_6ClBLn
Caldonia
in
Advanced Prostate Cancer
17 days ago
Non-adt prostate cancer treatment
I was recently diagnosed with stage 3, non-metastatic prostate cancer: Gleason score 7 (half 3/4, half 4/3). I have had both hips previously replaced. I recently had three stents inputted. I don't like the feel and taste of androgen replacement therapy. Does anyone know of a legitimate entity
I was recently diagnosed with stage 3, non-metastatic prostate cancer: Gleason score 7 (half 3/4, half 4/3). I have had both hips previously replaced. I recently had three stents inputted. I don't like the feel and taste of androgen replacement therapy. Does anyone know of a legitimate entity
Cletom
in
Prostate Cancer Network
18 days ago
negative antibodies
Hi. I’m wondering what you should test or look out for if you have negative antibodies for hypothyroid whilst having a higher TSH number? I get my bloods done every 4 months. The TSH is high, but not high enough to be medicated for (in the UK). I get my bloods done by the nurse and there’s no chat with
Hi. I’m wondering what you should test or look out for if you have negative antibodies for hypothyroid whilst having a higher TSH number? I get my bloods done every 4 months. The TSH is high, but not high enough to be medicated for (in the UK). I get my bloods done by the nurse and there’s no chat with
Meash
in
Thyroid UK
18 days ago
Buprenorphine and antidepressants
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
teakabeagle
in
Restless Legs Syndrome
6 months ago
Recent Diagnosis
Good evening everyone, I’m new to this forum. My somewhat depressing story is in my bio. Anyone had a similar diagnosis that’s further down the line and can offer any encouragement? One tiny bit of more positive news is that since starting the hormone treatment my back pain (which was the only real symptom
Good evening everyone, I’m new to this forum. My somewhat depressing story is in my bio. Anyone had a similar diagnosis that’s further down the line and can offer any encouragement? One tiny bit of more positive news is that since starting the hormone treatment my back pain (which was the only real symptom
Yellowtail33
in
Advanced Prostate Cancer
20 days ago
To scan or not to scan, that is the question.
I've had my two years on ADT, and now I'm 6 months into my "vacation" (iADT) PSA has hit 2.0, and the plan is to restart ADT when it hits 5.0. Assuming there are no complications, I'm okay with that plan. Also assuming there are no complications, my MO says we won't be doing a PSMA scan, or any radiation
I've had my two years on ADT, and now I'm 6 months into my "vacation" (iADT) PSA has hit 2.0, and the plan is to restart ADT when it hits 5.0. Assuming there are no complications, I'm okay with that plan. Also assuming there are no complications, my MO says we won't be doing a PSMA scan, or any radiation
Lewellen
in
Advanced Prostate Cancer
20 days ago
What does ‘neuroendocrine differentiation' mean in metastatic prostate cancer?
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
NikkiJayne
in
Advanced Prostate Cancer
20 days ago
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