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Looking for others who have had a hysterectomy with ovaries removed in their 30s - to get your experiences
Hi all, I'm looking for personal experiences of those who had a hysterectomy with ovaries removed in their 30s. Little about me and why I'm asking. I have been diagnosed with adenomyosis and endometriosis. Had a laparoscopy with removal of some endometriosis in May 22, also had the marina coil fitted
Hi all, I'm looking for personal experiences of those who had a hysterectomy with ovaries removed in their 30s. Little about me and why I'm asking. I have been diagnosed with adenomyosis and endometriosis. Had a laparoscopy with removal of some endometriosis in May 22, also had the marina coil fitted
Shorty9
in
Endometriosis UK
1 year ago
Doctors receptionist advice🙄
Morning everyone ❤️ I'm posting this in response to a friend (my hairdresser ❤️) I saw her about 6 weeks ago and she was complaining of feeling very unwell, not like her as she is a very active person, with a full time job, she told me her symptoms the worst being her utter fatigue she says she as been
Morning everyone ❤️ I'm posting this in response to a friend (my hairdresser ❤️) I saw her about 6 weeks ago and she was complaining of feeling very unwell, not like her as she is a very active person, with a full time job, she told me her symptoms the worst being her utter fatigue she says she as been
birkie
in
Thyroid UK
1 year ago
Back on ADT
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
treedown
in
Advanced Prostate Cancer
1 year ago
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PCa Recurrence Treatment Advice
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
ac61418
in
Advanced Prostate Cancer
1 year ago
I just began the Eclipse Clinical Trial and will be posting my experiences here. Please share yours too.
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
SViking
in
Advanced Prostate Cancer
1 year ago
Bladder retaining more once again after radiation..
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
FormulaRob
in
Advanced Prostate Cancer
1 year ago
cortisol and oestrogen is there a link?
i’m a complicated case, but curious about hrt and cortisol. Don’t want to bore anyone with full history, in a nutshell. Hashimoto 2018, Graves 2021. Off all meds currently, but six months ago started body identical hrt. My cortisol is now 160 at 9am. Does oestrogen cause low cortisol, or should i get
i’m a complicated case, but curious about hrt and cortisol. Don’t want to bore anyone with full history, in a nutshell. Hashimoto 2018, Graves 2021. Off all meds currently, but six months ago started body identical hrt. My cortisol is now 160 at 9am. Does oestrogen cause low cortisol, or should i get
Read58
in
Thyroid UK
1 year ago
Help :-(
I'm 51. I've been a couch-loving size 24, I've been a marathon-running size 10. I've yo-yo'd all my life. I'm in the throes of the gift that keeps on giving, otherwise known as peri-menopause. I've got no energy, no strength, no motivation... I'm on HRT (Evorel patches, Mirena coil and testosterone
I'm 51. I've been a couch-loving size 24, I've been a marathon-running size 10. I've yo-yo'd all my life. I'm in the throes of the gift that keeps on giving, otherwise known as peri-menopause. I've got no energy, no strength, no motivation... I'm on HRT (Evorel patches, Mirena coil and testosterone
FatterThanEver
2023 May
in
Weight Loss Support
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
Periods started back up again.
Hiah,Yesterday I started my menstrual cycle after a year of not having one due to taking the deceptoyl Injection and hrt. I had surgery in December and stage 3 was removed. I finished the injection and hrt in Feb and my period had only just come back. This time it has been different, the pain is there
Hiah,Yesterday I started my menstrual cycle after a year of not having one due to taking the deceptoyl Injection and hrt. I had surgery in December and stage 3 was removed. I finished the injection and hrt in Feb and my period had only just come back. This time it has been different, the pain is there
D2594
in
Endometriosis UK
1 year ago
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite?
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
JWS13
in
Advanced Prostate Cancer
11 months ago
Rising PSA...again..
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
Skidooerr
in
Advanced Prostate Cancer
1 year ago
Speech and Language team in the UK
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Derek1uk
in
PSP Association
1 year ago
Osteoporosis and HRT
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
mskathyny
in
Osteoporosis Support
1 year ago
Ovaries- stay or go?
Hi everyone. After over 30 years of pain and extreme bloating over the last two years, I’ve sadly no other option than to have a hysterectomy, I’ve been told. I’ve only ever had two laparoscopies in 2012. They’re reluctant to remove my ovaries, stating all the health related issues it can cause,
Hi everyone. After over 30 years of pain and extreme bloating over the last two years, I’ve sadly no other option than to have a hysterectomy, I’ve been told. I’ve only ever had two laparoscopies in 2012. They’re reluctant to remove my ovaries, stating all the health related issues it can cause,
Journeytowellness43
in
Endometriosis UK
1 year ago
When to start ADT, Salvage radiation or both for BCR after PSMA Petscan shows nothing?
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
hogwell
in
Advanced Prostate Cancer
1 year ago
Any advice on Aphasia
Hello again,I'm wondering if anyone can give me any advice. My husband had a severe tbi in August after falling off his bike and now in rehab .They have told me he has Aphasia, I'd never heard of it until now . The left side of his brain was badly damaged. He seems able to understand mostly what I say
Hello again,I'm wondering if anyone can give me any advice. My husband had a severe tbi in August after falling off his bike and now in rehab .They have told me he has Aphasia, I'd never heard of it until now . The left side of his brain was badly damaged. He seems able to understand mostly what I say
Janner123
in
Headway
1 year ago
Tricky question... painful topic
Hi all, I've been with my current partner for 7 years, married for almost 2. We've been struggling to conceive for 6 of those years after a failed vasectomy reversal. Due to our history from when my SO used to be an alcoholic (he used to be VERY abusive and still has the odd rare mild episode) we are
Hi all, I've been with my current partner for 7 years, married for almost 2. We've been struggling to conceive for 6 of those years after a failed vasectomy reversal. Due to our history from when my SO used to be an alcoholic (he used to be VERY abusive and still has the odd rare mild episode) we are
KR2022
in
Fertility Network UK
1 year ago
Testosterone & RLS
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
Elouis
in
Restless Legs Syndrome
1 year ago
Zoladex wearing off??
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
AMJ88
in
Endometriosis UK
1 year ago
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