It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through!
Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases. Thanks to hormone therapy, 50 radiation bouts, good friends, skilled doctors , a wonderful family and certainly a lot of luck, I am still hormone sensitive. 0.08 psa, 18 testosterone and doing just fine. It’s a happy day for me!
I wish all the best for everyone on this site!
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Fitzbruce1
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I took Abi for the first 4 years, although I took a self imposed 6 month break from it and Prednisone about half way through. I asked to be switched to Erleda and have been good with it for the past 2 years. It’s nice to not have the steroid every day.
I know how you feel. I'm at 10.5 years since Dx (PSA <0.03) and haven't told anyone yet; except my wife and medical team. Somehow it feels like hitting a home run as the lights go out.
You mean no one but your wife knows you have cancer or that you have reached 10 years? Either way, you give great hope to all of us. I hope you and your wife had a big trip or celebration when you hit 10 years!!!
That's correct, I had two buddies that I got close to at a course of exercises (that the Lupron company organises - 16 x 1 hour sessions) they knew of course but they have passed - one reached 16 years. My kin and mates don't suspect anything. I purchased a Keiser spin cycle, I suspect that kept my weight under control and somewhat agile. Cheers
great news fellow warrior, I always love to hear from you guys and how well you are getting along. As my Doctor would say, no one wants to have cancer But there’s never been a better time to have it with all the advances in medicine and treatments. The 6th of next month will mark 8 years since I was diagnosed with my stage 4. Kind of scared for the next 2 days to come . PET scan tomorrow and the reading on Tuesday. A couple of weeks late on my oncologist appt. Due to hip surgery. Hoping the cancer has not spread due to them putting pins into the hip joint. Oh well. It is what it will be ! Keep on fighting my fellow WARRIOR. 🙏🙏🙏🙏
Larry- I plan on being around in 2 years so I can have an eight year anniversary like you are about to have! Congratulations on that!! Good luck with your hip recovery!
Larry, I always read your post due to us sharing a first name. I also was DX in August of 16 at 61 years old. 7th of next month will be 8 years for me, actually on my birthday. Been on Eligard and Erleada for the last 56 mths following surgery and bed radiation. Since starting that cocktail, my PSA has remained 0 and T level <10. Spend a lot of my time researching treatments and wondering what a T level of 600 might feel like again. Larry
Gratulations, Bruce, but i would prever - i dont want to suggest it to you - for the real castration. less chemics and perhaps more effectively, i assume. And with my castration im very much okay (although only after accident), no problems and on the bicycle its even much more comfortable, haha!
Such good news and very happy for you! I am six months in on my abi + prednisone regimen and hope for such a good response! Thanks for sharing such positive news!
I too started my PC journey nearly 6 years ago (Sept 2018) - so I know a little bit of how you must be feeling! My PSA is around 0.5 so I haven't been as lucky as you on that front but we are still fighting it and that's all we can do!
Yes, thanks. That's due to local docs being behind the times more than anything. But I'll take the six years. I just hope I didn't lose future time, but impossible to know.
I would think that although your doctors didn’t give you SOC, it now benefits you to have these loaded weapons that you can bring out when you need them!
That is amazing! Thank you for posting. I thought my hubby was doing great just passing the 4 year mark recently. To hear such good news gives me and many others on this site hope. I hope you continue doing well!
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