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Hi all Well what a week that was had a ERCP on the transplanted liver graft , which I received pre covid thank goodness in March 2019 So had a stent put in on a narrowed bile duct and to say it hurt is an understatement, they sedated me but the pain was almost unbearable to a degree that I nearly had
Hi all Well what a week that was had a ERCP on the transplanted liver graft , which I received pre covid thank goodness in March 2019 So had a stent put in on a narrowed bile duct and to say it hurt is an understatement, they sedated me but the pain was almost unbearable to a degree that I nearly had
Rockefeller20
in
British Liver Trust
2 years ago
IBS general: my experience
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Stuart24
in
IBS Network
3 years ago
NAC supp continued
I've been taking it (N-acetyl cysteine) with Dr approval. I tried two short tests last Dec and it seemed to help. My latest test has been going for ~ 2 months and is less obviously successful. At the start in Feb I took 600 mgm while I was still on HU only, at 500. My symptoms got worse (usual malaise
I've been taking it (N-acetyl cysteine) with Dr approval. I tried two short tests last Dec and it seemed to help. My latest test has been going for ~ 2 months and is less obviously successful. At the start in Feb I took 600 mgm while I was still on HU only, at 500. My symptoms got worse (usual malaise
EPguy
in
MPN Voice
2 years ago
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Omega 3's to reduce some MPN issues?
Two of my favorite experts did a podcast: https://hubermanlab.com/dr-rhonda-patrick-micronutrients-for-health-and-longevity/ I already take DHA and EPA but since listening I've increased my doses and changed to another supplement (and now keep it in the refrigerator). This and taking more Magnesium
Two of my favorite experts did a podcast: https://hubermanlab.com/dr-rhonda-patrick-micronutrients-for-health-and-longevity/ I already take DHA and EPA but since listening I've increased my doses and changed to another supplement (and now keep it in the refrigerator). This and taking more Magnesium
Elizka
in
MPN Voice
2 years ago
The Proof is in the Pudding!
Good morning....In case you are reading this and have no idea who I am or what has been going on, I'll bring you up to speed. I have been reconfirmed through a second biopsy that indeed I do hav PBC and an AMA negative. My numbers flared up last summer, high that ever. I am not able to tolerate URSO
Good morning....In case you are reading this and have no idea who I am or what has been going on, I'll bring you up to speed. I have been reconfirmed through a second biopsy that indeed I do hav PBC and an AMA negative. My numbers flared up last summer, high that ever. I am not able to tolerate URSO
mrspeffer2
in
PBC Foundation
3 years ago
Pro Resolving Mediators : reduce neuro inflammation and are easily accessible
I learned of Pro Resolving Mediators from Chris Masterjohn PhD. Is anyone using Pro Resolving Mediators? Quote: “In PD, data suggest SPM are able to cross the blood-brain barrier, inhibit microglial activation and decrease induced markers of inflammation” https://www.ncbi.nlm.nih.gov/pmc/articles
I learned of Pro Resolving Mediators from Chris Masterjohn PhD. Is anyone using Pro Resolving Mediators? Quote: “In PD, data suggest SPM are able to cross the blood-brain barrier, inhibit microglial activation and decrease induced markers of inflammation” https://www.ncbi.nlm.nih.gov/pmc/articles
Hidden
in
Cure Parkinson's
2 years ago
Voice Tremor
FYI Octanoic Acid = nutritional supplement Caprillic Acid https://www.enttoday.org/article/octanoic-acid-may-reduce-tremor-magnitude-for-essential-voice-tremor-patients/
FYI Octanoic Acid = nutritional supplement Caprillic Acid https://www.enttoday.org/article/octanoic-acid-may-reduce-tremor-magnitude-for-essential-voice-tremor-patients/
House2
in
Cure Parkinson's
3 years ago
Gallstones
Hi all. Just been diagnosed with gallstones. Awaiting scan. Could you tell what symptoms you had ,. Did you have palpitations during attack,?
Hi all. Just been diagnosed with gallstones. Awaiting scan. Could you tell what symptoms you had ,. Did you have palpitations during attack,?
Gromit72
in
British Liver Trust
2 years ago
Severe pain liver area
Does anyone out there experience severe liver area pain, like very pronounced pain. can push on lower ribs on the side and it hurts bad. Hurts when stretching, etc. all labs and scans have come back clean except for a dilated bile duct. Looking for anyone with similar symptoms that have found relief
Does anyone out there experience severe liver area pain, like very pronounced pain. can push on lower ribs on the side and it hurts bad. Hurts when stretching, etc. all labs and scans have come back clean except for a dilated bile duct. Looking for anyone with similar symptoms that have found relief
Kuntzie13
in
British Liver Trust
2 years ago
New medication
I have just been prescribed obeticholic acid as a 2nd line treatment, and just wondered if anyone has had any side effects, and if so what.
I have just been prescribed obeticholic acid as a 2nd line treatment, and just wondered if anyone has had any side effects, and if so what.
Kieraferret
in
PBC Foundation
3 years ago
My story
I haven’t been on in awhile but wanted to update everyone. My liver specialist from the liver institute Methodist hospital told me this morning was our last visit unless I needed him again. I retired from ER nursing in 2017 bc I was diagnosed with pbc and possibly nrh according to the pathology report
I haven’t been on in awhile but wanted to update everyone. My liver specialist from the liver institute Methodist hospital told me this morning was our last visit unless I needed him again. I retired from ER nursing in 2017 bc I was diagnosed with pbc and possibly nrh according to the pathology report
Pamela4475
in
PBC Foundation
2 years ago
Combined vitamin D, omega-3 fatty acids and a simple exercise program may reduce cancer risk among active adults aged 70 plus
In the "DO-HEALTH" randomized clinical trial with 2,157 relatively healthy participants aged 70 plus, supplementation with daily high-dose vitamin D3 plus omega-3s, combined with a simple home exercise program (SHEP), showed no significant improvement in systolic or diastolic blood pressure, nonvertebral
In the "DO-HEALTH" randomized clinical trial with 2,157 relatively healthy participants aged 70 plus, supplementation with daily high-dose vitamin D3 plus omega-3s, combined with a simple home exercise program (SHEP), showed no significant improvement in systolic or diastolic blood pressure, nonvertebral
bennevisplace
in
CLL Support
2 years ago
New blood test results – need advice
Hello everyone, I am 35 years old, female with Hashimoto's. I take 150mcg levothyroxine and 25mcg liothyronine. I follow a strictly gluten, dairy and egg free diet and mostly avoid soy except for lecithins and tamari sauce if I have sushi. I take my levo before bed, 2 hours after food. I take my first
Hello everyone, I am 35 years old, female with Hashimoto's. I take 150mcg levothyroxine and 25mcg liothyronine. I follow a strictly gluten, dairy and egg free diet and mostly avoid soy except for lecithins and tamari sauce if I have sushi. I take my levo before bed, 2 hours after food. I take my first
Zazbag
in
Thyroid UK
2 years ago
Alpha lipoic acid
I read recently that alpha lipoic acid may help with pain in the feet and hands, and help you handle glucose. Does anyone know if there are contra indications from breast cancer (and the drugs that treat it) to taking it? Thanks in advance.
I read recently that alpha lipoic acid may help with pain in the feet and hands, and help you handle glucose. Does anyone know if there are contra indications from breast cancer (and the drugs that treat it) to taking it? Thanks in advance.
Hopefulwmbc
in
SHARE Metastatic Breast Cancer
3 years ago
Should I take more Questran light
Shall I the more Questran light? I’ve had debilitating IBS my whole adult I’m now 67. I had my gallbladder removed 20 years ago which made my D problem even worse. I’ve been on Questran light for 12 years and it has been a life saver until 2 years ago. My problem is in mornings when I’m in toilet at
Shall I the more Questran light? I’ve had debilitating IBS my whole adult I’m now 67. I had my gallbladder removed 20 years ago which made my D problem even worse. I’ve been on Questran light for 12 years and it has been a life saver until 2 years ago. My problem is in mornings when I’m in toilet at
Shizshaz
in
IBS Network
3 years ago
Ama positive negative m2
Hi, I am male and have recently received a positive ama, but negative for ama-m2. I had the tests due to elevated AST after taking allouprinol. ALP is normal. I have been referred to a specialist and I am waiting on some tests. I understand ama-m2 is specific to PBC, but what's the likely outcome for
Hi, I am male and have recently received a positive ama, but negative for ama-m2. I had the tests due to elevated AST after taking allouprinol. ALP is normal. I have been referred to a specialist and I am waiting on some tests. I understand ama-m2 is specific to PBC, but what's the likely outcome for
Grizlay
in
PBC Foundation
3 years ago
Medication on GPA
Hi everyone, I was diagnosed with GPA in February 2020. I was wondering what medications others are on. Im on 4 500mg mycophenolate daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole. I get no feed back from consultant or
Hi everyone, I was diagnosed with GPA in February 2020. I was wondering what medications others are on. Im on 4 500mg mycophenolate daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole. I get no feed back from consultant or
Mingtai
in
Vasculitis UK
3 years ago
B12 deficiency, methylation and Parkinson’s.
I haven’t posted in a while because I wanted to make sure good results would last and not placebo. I’m 41 year old male that was dx with a Datscan on Dec 26, 2018 at age 38. Stiffness dominant with gait issues. I’ve been off and C/l a few times with little (placebo) or no results. I’ve been on The
I haven’t posted in a while because I wanted to make sure good results would last and not placebo. I’m 41 year old male that was dx with a Datscan on Dec 26, 2018 at age 38. Stiffness dominant with gait issues. I’ve been off and C/l a few times with little (placebo) or no results. I’ve been on The
38yroldmale
in
Cure Parkinson's
3 years ago
Timing of Nutrient / Vitamin Regime for Hashimotos
UPDATE Aug 2022 below post. ORIGINAL POST April 2022: Dear all, I don’t post very often as my Hashimotos condition seems to be quite manageable. I feel good, but the only thing I would like to address is my inability to lose weight. I am expecting a full blood result back any day, at which point
UPDATE Aug 2022 below post. ORIGINAL POST April 2022: Dear all, I don’t post very often as my Hashimotos condition seems to be quite manageable. I feel good, but the only thing I would like to address is my inability to lose weight. I am expecting a full blood result back any day, at which point
CBDB
in
Thyroid UK
2 years ago
Alpha-lipoic- acid
I have peripheral neuropathy (not caused by diabetes) and read that alpha-lipoic- acid can help with pain. I am taking 200mg ALA and would like to know if anyone else is trying this and what dose and results? Thanks
I have peripheral neuropathy (not caused by diabetes) and read that alpha-lipoic- acid can help with pain. I am taking 200mg ALA and would like to know if anyone else is trying this and what dose and results? Thanks
foxglove
in
Pain Concern
3 years ago
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