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Belimumab
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Golimumab
I had my 2nd Golimumab injection 2 weeks ago. I know it's early days but there does seem to be some temporary improvement in my wrists. What I'm struggling to cope with is the pain that I experiencing in my right foot and ankle. In the 9 years that I have sufferd RA I have never had a problem in this
I had my 2nd Golimumab injection 2 weeks ago. I know it's early days but there does seem to be some temporary improvement in my wrists. What I'm struggling to cope with is the pain that I experiencing in my right foot and ankle. In the 9 years that I have sufferd RA I have never had a problem in this
marmik7
in
NRAS
8 years ago
Mr Brian Smith
My Husband has been a UC sufferer for over 20 years now, had all the different medications and treatments, but its come to the stage now , he,s got to go on Simponi Golimumab injections, I just wondered if any one had on this site had used this for uc, and was there any side effects. many thanks Pat
My Husband has been a UC sufferer for over 20 years now, had all the different medications and treatments, but its come to the stage now , he,s got to go on Simponi Golimumab injections, I just wondered if any one had on this site had used this for uc, and was there any side effects. many thanks Pat
CONC47ERN
in
NRAS
8 years ago
Golimumab
Has any body used this drug "Golimumab" as i am about to be given a course and really not to sure about it. Am i about to become a guinea pig ?
Has any body used this drug "Golimumab" as i am about to be given a course and really not to sure about it. Am i about to become a guinea pig ?
stix
in
Pain Concern
9 years ago
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golimumab
hi all and a happy new year though it has been a bit damp ,i am going to be started on the above soon had blood tests and chest xrays so just waitinf for the cal ant advice it will be monthly injections by self thank you ,im not worried cos anything that might help is a bonus .would appreciate your experiences
hi all and a happy new year though it has been a bit damp ,i am going to be started on the above soon had blood tests and chest xrays so just waitinf for the cal ant advice it will be monthly injections by self thank you ,im not worried cos anything that might help is a bonus .would appreciate your experiences
binlid
in
NRAS
9 years ago
Golimumab
Has anyone had experience of Golimumab? As I am starting this soon and would love to find out more about it!!
Has anyone had experience of Golimumab? As I am starting this soon and would love to find out more about it!!
2210
in
NRAS
9 years ago
Golimumab (Simponi)
Hello everyone. I had my second injection a week ago after other drugs failed. So far all I feel is itchy all over with smallish outbreaks of a red rash in various places. After many side effects in the past I really need this drug to work, is anyone else on it please? Experiences? Will the itching eventually
Hello everyone. I had my second injection a week ago after other drugs failed. So far all I feel is itchy all over with smallish outbreaks of a red rash in various places. After many side effects in the past I really need this drug to work, is anyone else on it please? Experiences? Will the itching eventually
LesBev
in
NRAS
9 years ago
Problems, Problems.
For the last 12mths I have been having monthly injections of Simponi golimumab, and monthly blood tests, approx. 9 months ago I had a telephone call from the consultant at the hospital informing me that my "white blood count recorded 0.2" stop Simponi injections until further notice, within 2 weeks the
For the last 12mths I have been having monthly injections of Simponi golimumab, and monthly blood tests, approx. 9 months ago I had a telephone call from the consultant at the hospital informing me that my "white blood count recorded 0.2" stop Simponi injections until further notice, within 2 weeks the
Scorpius
in
NRAS
10 years ago
Golimumab
Just started on this medication, got all the training and delivery sorted out. Was a little weird my GP didn't know what it was but I had leaflet with me and he read thoroughly. Now I guess I cross fingers and wait to see if it works.
Just started on this medication, got all the training and delivery sorted out. Was a little weird my GP didn't know what it was but I had leaflet with me and he read thoroughly. Now I guess I cross fingers and wait to see if it works.
Silvergilt
in
LUPUS UK
10 years ago
Hi I am new to this site...I am about to move to injections. Can anyone share their experience
i have been asked if i want to take etanercept as a weekly jab, adalimumab as a fortnightly jab and golimumab as a monthly jab. mxt is doing nothing for me and my steroid injection lasted 8 weeks max. I have 2 permanently swollen fingers and another nodule growing on another finger. Can any any one
i have been asked if i want to take etanercept as a weekly jab, adalimumab as a fortnightly jab and golimumab as a monthly jab. mxt is doing nothing for me and my steroid injection lasted 8 weeks max. I have 2 permanently swollen fingers and another nodule growing on another finger. Can any any one
sarah1968
in
NRAS
10 years ago
Advice please at my wits end here so low have RA
I have Rheumatoid, Psoriatic and osteo arthritis. I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg, Golimumab 2
I have Rheumatoid, Psoriatic and osteo arthritis. I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg, Golimumab 2
stiffenlady
in
NRAS
11 years ago
NICE decision on Belimumab
Here is our statement following the latest decision by NICE on the use of
Belimumab
in the treatment of lupus; http://lupusuk.org.uk/latest-news/nice-
belimumab
You can read more about NICE's decision on their website here; http://www.nice.org.uk/newsroom/pressreleases/NICEConsultsBelimumabSystemicLupusErythematosus.jsp
Here is our statement following the latest decision by NICE on the use of
Belimumab
in the treatment of lupus; http://lupusuk.org.uk/latest-news/nice-
belimumab
You can read more about NICE's decision on their website here; http://www.nice.org.uk/newsroom/pressreleases/NICEConsultsBelimumabSystemicLupusErythematosus.jsp
Paul_Howard
LUPUS UK
in
LUPUS UK
11 years ago
Which dietary changes can I make to gain better control over my Rheumatoid Arthritis? Should I go gluten/wheat, dairy and acid free?
I have heard that gluten/wheat free, acid free and dairy free can massively help Arthritis sufferers' symptoms. Specifically what could or should I do to gain better control over my inflammation, joint pain, stiffness and fatigue as I am struggling to cope with medicines alone after 2.5 years of persistent
I have heard that gluten/wheat free, acid free and dairy free can massively help Arthritis sufferers' symptoms. Specifically what could or should I do to gain better control over my inflammation, joint pain, stiffness and fatigue as I am struggling to cope with medicines alone after 2.5 years of persistent
blondii
in
NRAS
11 years ago
What are the side effects of Golimumab when using with or after treatment of Methotrexate (injected) and Hydroxycholoroquine?
I have been having persistent flare-ups after 2 years of weekly self-injected 25mg of Methotrexate and daily Hydroxycholoroquine tablets. I used to take steroid tablets to assist me during these flare ups (usually left knee and wrists) but they have now lost their impact and in-joint steroidal injections
I have been having persistent flare-ups after 2 years of weekly self-injected 25mg of Methotrexate and daily Hydroxycholoroquine tablets. I used to take steroid tablets to assist me during these flare ups (usually left knee and wrists) but they have now lost their impact and in-joint steroidal injections
blondii
in
NRAS
11 years ago
Prof Graham Hughes' blog May 2013
In particular, the new 'biologic' -
belimumab
(Benlysta) - the first new drug to be authorised by the American FDA (but, sadly, not yet in the UK) for the treatment of lupus, is already proving popular with those centres who have access to it. Undoubtedly it will be tried in Hughes syndrome soon.
In particular, the new 'biologic' -
belimumab
(Benlysta) - the first new drug to be authorised by the American FDA (but, sadly, not yet in the UK) for the treatment of lupus, is already proving popular with those centres who have access to it. Undoubtedly it will be tried in Hughes syndrome soon.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
New and a little shy :)
Hi everyone, I'm new to this, a little shy and nervous about writing but you all seem so lovely. Just reading your comments has lifted my spirits. I'm not alone! I was diagnosed with RA in July of last year & things seem to have gone from bad to worse since then. Having tried four DMARDS and suffered
Hi everyone, I'm new to this, a little shy and nervous about writing but you all seem so lovely. Just reading your comments has lifted my spirits. I'm not alone! I was diagnosed with RA in July of last year & things seem to have gone from bad to worse since then. Having tried four DMARDS and suffered
pennylane
in
NRAS
11 years ago
Has anyone applied to their PCT for the Belimumab/Benlysta treatment? If so, what was the result?
I know that NICE has refused to recommend
Belimumab
for treatment for lupus patients (4 days ago!) but this does not necessarily mean that a PCT can't sanction it, if they're presented with good reasons, evidence and consultants' recommendation.
I know that NICE has refused to recommend
Belimumab
for treatment for lupus patients (4 days ago!) but this does not necessarily mean that a PCT can't sanction it, if they're presented with good reasons, evidence and consultants' recommendation.
alyosha
in
LUPUS UK
12 years ago
Decision Decision Decision
after a long journey its looking like ive finally being acepted for the anti tnf treatment .. after various assessments ,, 3 rheumy nusre assessments , 2 psyhio assessments and one rheumy app .. at 3 different hospitals the time as arrived where i after make my mind up which one of the 3 to pick ..
after a long journey its looking like ive finally being acepted for the anti tnf treatment .. after various assessments ,, 3 rheumy nusre assessments , 2 psyhio assessments and one rheumy app .. at 3 different hospitals the time as arrived where i after make my mind up which one of the 3 to pick ..
_andy_
in
NRAS
12 years ago
Has anyone had treatment with BELIMUMAB for aps?
Has anyone been on treatment for
belimumab
? Has it helped you? On the long term?
Has anyone been on treatment for
belimumab
? Has it helped you? On the long term?
pamcelis
in
Hughes Syndrome APS Forum
12 years ago
Press statement on NICE’s Announcement on Belimumab
Belimumab
has already been approved by the European Medicines Agency (EMA) and the Federal Drug Administration (FDA) for use in lupus when patients do not respond to other treatments.
Belimumab
has already been approved by the European Medicines Agency (EMA) and the Federal Drug Administration (FDA) for use in lupus when patients do not respond to other treatments.
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
News & Views - Winter 2011 – OUT NOW!
The new issue of News & Views includes; • A very informative article on ‘SLE and the Kidney’ • A summary of the
Belimumab
application to NICE • ‘Joint Problems in SLE’ by Dr Rainer Klocke • Full feedback from the LUPUS UK National Survey carried out in 2009 which received 3017 responses
The new issue of News & Views includes; • A very informative article on ‘SLE and the Kidney’ • A summary of the
Belimumab
application to NICE • ‘Joint Problems in SLE’ by Dr Rainer Klocke • Full feedback from the LUPUS UK National Survey carried out in 2009 which received 3017 responses
Paul_Howard
LUPUS UK
in
LUPUS UK
13 years ago
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