Golimumab

[-Mii]

Has anyone had experience of Golimumab? As I am starting this soon and would love to find out more about it!!

[Victoria-NRAS Partner Moderator NRAS]

Hi

Hopefully you'll get some responses from people who have been on this drug. It was approved in 2009, so is one of the newer RA drugs, but is a type of drug called an anti-TNF drug, and these as a class of drug have been around for a while now.

I thought you might also find our article useful if you haven't read it:

nras.org.uk/golimumab-simponi-

Kind regards

Victoria

(NRAS)

[-Mii in reply to Victoria-NRAS]

Thank you Victoria!

[bassiefromholland]

simponiaria.com/sites/defau...

[-Mii in reply to bassiefromholland]

Many thanks! Maria.

[skinnycappuccino]

Hello 2210 I've been taking Simponi (= golimumab) since 2012 and have been in remission for 3 years now It's worked wonders - I got my old life back. I hope it works as well for you! Good luck & let us know how it goes! Best, Christine xx

[-Mii in reply to skinnycappuccino]

Nice to hear that! I've been on methetrexate for 4 years tablet and injection and now going to try an TNF!! I am taking it monthly Christine, are you? Did you have any side effects? .... Many thanks Maria. ( do u take anything else with it?)

[skinnycappuccino in reply to -Mii]

Hello Maria Yes, Simponi is a monthly injection - I do it at home with the pen. I haven't had a single side effect in all the years I've been taking it I am taking 10mg Leflunomide (Arava) every evening as well. I'd prefer MTX as you only take that once a week but unfortunately I suffered from side effects from it. I think it's standard to take anti-TNFs in combination with a DMARD. Best, Christine xx

[Sueymo]

I started it on 23rd Dec 2015, alongsiew 15mgs injection of methotrexate and full dose of sulphazalazine and feeling fantastic and no side effects. Good luck

[-Mii in reply to Sueymo]

So nice to hear thanks x

[LesBev]

Hi. So pleased to have someone else on Simponi. I had my first injection in October so not reached the 3-4 month stage when the best effects are reached. I am not taking anything else due to horrid side effects. I have not had any side effects on this and this last month have felt a bit better, although the effects do seem to reduce after the 3rd week until the next dose. the pen makes it so easy and pain free to self inject.

I really hope you / we have found the one to help us towards remission! Please keep in touch with news of your journey and good luck.

Lesley

[-Mii in reply to LesBev]

Thanks Lesley would love to keep in touch! Maria x

[kalel]

I was put on Simponi by my Dr but was later told by him that if you have a lot of active inflammation in your body then this injection does not always work as well for some people as something like Humira or Enbrel does and in the hospital that I went to they normally give this injection to people that have trouble injecting themselves. Of course everyone is different but for me this injection never worked very well. I hope you get some good results using Simponi. We are all different so the biologics that work for you may not work me.

On a personal note Humira worked very well for me and I was on this drug for a long time and then I had to stopped taking it and since then I have had to look into other methods to treat my ra because biologics don't seem to help with the inflammation that went on in my body. Take care.

[-Mii in reply to kalel]

Thanks for replying to me!

[Aless2002]

I've been on Simponi for about 4 years (would have to check with my rheumie!) and it's been by far the best one I've been on yet. Even when I had to inject myself-yuck! (no pre-loaded pen at that time) I was more than happy to keep using it as it worked!! Happily, the pre-loaded is available now.....I am SO interested to read Lesley's comment about the effects wearing off after 3 weeks. I knew I wasn't imagining that!!!! Despite that happening, getting 3 weeks out of 4 feeling pretty much normal is worth it.

[Sueymo]

I've been on Simponi for 18 months and take it alongside 15mls of methotrexate.

It has really improved my life and am fortunate not to have any side effects. Good luck