golimumab

[binlid]

hi all and a happy new year though it has been a bit damp ,i am going to be started on the above soon had blood tests and chest xrays so just waitinf for the cal ant advice it will be monthly injections by self thank you ,im not worried cos anything that might help is a bonus .would appreciate your experiences xxxx

[kalel]

I think for a lot of people on here golimumab worked very for them. For me it did not work so well. Maybe another Dr will give you different info about golimumab but I was told by my nurse that golimumab works well for people that have issues injecting themselves and maybe was not suffering from as much inflammation in there joints as I was.

Humira worked a lot better for me but at the mo but at the mo I am not taking Humira injections either.

I hope golimumab works better for you than It did for me. All the best.

[LesBev]

I have been on this drud since last October and at last I am feeling the benefit. For me it has taken a while to kick in but no side effects at all and I do feel better. I can walk further and only take pain tablets on a night now, let us know how you get on and good luck!

Lesley

[Shy535]

Hi binlid, I am just on my third dose of Simponi Aria. I take it through infusion at the hospital, which is great. I was on humira a few years back and it did not work well for me at all. i haven't had any side effects with the Simponi Ari and it seems to be helping, although it is still really early. Hoping that this one is the one so I can decrease prednisone. I hope it works for you and you have no side effects

[binlid]

ty peeps

[-Mii]

Hello there! I am also waiting for golimumab! Currently on methetrexate and plaquenil been on it 5 years and feel ready for a biologic.

Not sure if we take it with current meds

or this monthly instead??

We will be starting at same time so try and keep in touch!

Maria x

[binlid in reply to -Mii]

hi 2210 i am now on my 4th dose this week hant noticed much change as such but have been diagnosed witha liver problem not related good luck with it and tyes kkeep in touch

[-Mii in reply to binlid]

Hi great to hear from you! I haven't started it yet!!

Do you take it with methotrexate?

Any side effects?

Sorry to hear your liver problem!!

[binlid in reply to -Mii]

yes metho and sulpha thoyugh having a break from sulpha no side effects as such ifeel on a bit of anup for 3 weeks then bang 4th week horrendous ,will metion to my nurs next month

good luck stay intouch

[NicolaP]

I started on Golimumab in September along with Sulpha which I'd previously been taking with MTX for almost 5 years. I noticed an immediate improvement after the first injection which lasted about a week but then flared badly the rest of the month. October's injection saw much improvement again but since then, perhaps because I'm not flaring so much, it hasn't seemed to be improving as much as had hoped. Both ESR and CRP results are still showing flares (in the 30s still, although have been lower intermittently), but thankfully they don't just take this into account for the DAS28 score. However, if I do flare, its no where near as bad as it had been in the preceeding 8 months and while I've still got a fair amount of inflamation in the knees, hands and ankles, its definitely improving and am nowhere near as stiff in the morning as I had been. Still having to take 2-3 ibroprofen a day, the real test for me is when I can give them up completely. My GP had suggested taking a short course of Pred to get the inflamation down initially but I am trying to avoid them if possible as they do mask the affectiveness of others drugs. I was given Golimumab as according to my Rheumi its the only Biologic that can be taken with Sulpha and I can't take MTX. I'm also needle phobic so the pen is a great, although ended up with a lovely bruise on my leg this month. Goli and Sulpha do seem to be working together better than anything previously but only time will tell. I suspect I was hoping for miracles when in fact it'll take longer for full improvement. There is also the possibility that some of the ongoing inflamation could be caused by damaged from the RA, although one of my finger joints has improved as well as it had done previously short term with pred so definitely some improvement.