Experiences with

Behcet's disease

I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to

I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023.

Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer to wait and see if I have any answers!

He also mentioned behcets disease ? Which I'm not 100% sure that would be correct for me given that I have a lot more symptoms and none of the usual leg sores etc, has anyone been diagnosed with behcets and lupus ? Or misdiagnosed with behcets which turned out to be lupus ?

Below are blood test results since my last BAT update in Sept, 2024. Note the gradually lengthened hiT cycles. ADT (quarterly Eligard shot) is always in the background; darolutamide (Nubeqa) was introduced on the loT cycles in August. On the 11th of March, I will have completed one full, continuous

At this point early diagnosis would probably only provide slight benefits if any but maybe it can lead to something therapeutic over the long haul "Thirteen blood biomarkers, including three never previously linked to Parkinson’s disease, may help in diagnosing people sooner and scientists in better

Hello. I’m not sure how much info to include. So if I leave anything off that may help in answering my question, please let me know. My dad has advanced prostate cancer. He just finished in November 2024 pluvicta. During treatment his PSA was low (.67). He went back to the dr for his 3 month checkup

18 months ago following a fibroscan I was diagnosed with F3. I have not made any major lifestyle changes as I didn't feel I needed to. I have been on lots of medication for many years. I started to take Milk thistle tablets daily and Vitamin E with selenium several months ago. I also increased ny coffee

Hi Everyone.......I hope you are all travelling well. I am due to see a liver specialist and a respiratory specialist in about 4 weeks [I was meant to see them in February, but my anxiety went through the roof as I had a relapse with the wine and cigarettes, and I absolutely hate myself for it.] I was

Hi allMy GP has been sending me for blood tests, an ultrasound scan and a Fibroscan. Both scans came back absolutely normal. I have slightly elevated AST level and raised antinuclear factor titre. Has anyone else had these results and what was the outcome? I am getting worried because my late husband's

My husband was recently found to have a PSA of 32, with subsequent prostate biopsy showing - T2cGG5 and ensuing PMSA showing prostate and nodal activity, stage IVA. In the one month between initial PSA and starting leuprolide, PSA went from 32 to 41. Is this meaningful in any way? More importantly

Hello ladies! I was wondering if anyone else has had really high liver enzyme levels? I was diagnosed with HGSOC 3c in December 23, started chemo (paclitaxel , carboplatin & Bevacizumab) in Jan 24. Debulking surgery April 24. Two more chemo cycles post op, (NED) then onto Bev as maintenance, which I

hi I have pbc crossed with aih , with cirrhosis On all the usual meds . I suffer with cramp/ achy muscles in my thighs and calves . Lying in bed now and I can feel them aching . I don’t need to have done any activity for this to happen I always forget to mention this at my appointment Does anyone

I know this is wordy, forgive me. I got a PSMA-PET scan in January. Showed potential lesion in bilateral ribs. Went to Winship Cancer Center Emory in Atlanta area. Started ADT Lupron and NUBEQA. I wanted to be real aggressive and asked for a Radiology referral. The radiologist sent scan for reevaluation

I am in a pickle. My first 2 PSAs after prostate removal are 0.39 and 3 months and 0.4 at 4 months. My urologist is referring me for radiation oncology. Even if my PSMA only lights up in the prostate bed, I don’t think radiating the pelvis would be wise: 1. I had 3200 grey treatment 43 years ago

One year on Erleada and PSA is rising. I had an Orchiectomy in Aug of '23 to shut down the tetestorone. I have extensive mets in my backbone. Looking options besides chemotherapy for the next phase in this battle.

hello ladies. I had full hysterectomy and large cyst removed last July… was advised I had atypical hyperplasia but no cancer… just had bloods done as I am feeling unwell and my d dimer and ca125 are raised… gynaecologist are saying highly unlikely it’s a problem but recommend ct scan… I would really

hi everyone The filgotinib continues to work its magic and am virtually pain free for first time for over 20 years. Last weeks blood tests show “mild liver abnormality” for first time,and have to retake next month to see if just a one off.Rheumatologist asked if I had any illness which might explain

My dad used to sing all the time. He wasn't a great singer, never knew more than a couple of lines, but repeated them gladly. He loved music, and often came to me and said he had heard a new song on the radio, but unable to repeat any of the lyrics or remember the artists name, I could never guess what

PSA over 300 at diagnosis, down to 55 after first one month Lupron injection, down to 40 after second injection. Does this count as good enough progress?