Experiences with

Behcet's disease

I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to

I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023.

Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer to wait and see if I have any answers!

He also mentioned behcets disease ? Which I'm not 100% sure that would be correct for me given that I have a lot more symptoms and none of the usual leg sores etc, has anyone been diagnosed with behcets and lupus ? Or misdiagnosed with behcets which turned out to be lupus ?

I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim Personal Independence Payment? I'm quite tired of having to pay for my

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? I hope I spelt it right…. If anyone can tell me what happens after it is found ( tests. Monitoring)I’d be grateful. Thank you!

A lifetime of constipation issues, 15 years of Parkinson’s meds, and now the dire need for both hips to be replaced, has slowed me to a standstill - in more ways than one. The upside is that I have been accepted at a hospital Functional Gut Center and have been working with experts who are taking my

[u][i]Ascites [/i][/u] This refers to fluid build up in the abdomen.This is often associated with cirrhosis as well as other conditions. It is usually treated with diuretics, diet, or removing the fluid by a procedure called a[i] paracentesis. [/i]

Afternoon!I have had polycystic liver disease for the last 10-12years and have been told that I will be needing a liver transplant to help my symptoms and improve my quality of life. I have exhausted all other options. The final decision will be made next month after my next MRI. I am aware that I'll

Hello everyone I just wanted to give an update on my husband's advanced prostate cancer. Please read the bio for the back story. He is now 57 and in March it will be 4 years since diagnosed. The past two years have been uneventful, which is a good thing under these circumstances. December marked two

The Brave Exchange is hosting a session focused on the benefits of living kidney donation and kidney paired donor transplants. 📅 Date: Thursday, February 6th ⏰ Time: 6:00 p.m. – 7:00 p.m. CST 📍 Virtual Event During this session, we’ll cover: ✅ The benefits of living kidney donation ✅ How kidney

Researchers found that androgen receptor (AR) extrachromosomal DNA (EcDNA) is a key factor in treatment resistance for advanced prostate cancer. AR EcDNA leads to overexpression, disrupting traditional treatment responses, and presents new therapeutic targets for improved outcomes. Extrachromosomal

Hello!, I have been diagnosed AIH by bloodwork and due for liver biopsy. My ALP is 719 and ALT is 197. Liver is "doing its job" currently but need treatment and no cirrhosis or liver damage visible on ultrasound. Consultant says I am classic textbook case for AIH. Very good care at hospital. My

Synergic January 2025 Newsletter Happy New Year from the Synergic Family! As we welcome 2025, we want to reflect on the strides we've made in the past year and share some exciting milestones ahead. Celebrating Progress in Parkinson’s Research and Therapy 2024 was a great year for Synergic

My dad (who never drank) was diagnosed with cirrhosis of the liver at the age of 81 Sept. 2024. Apparently it was from fatty liver. I decided to get my liver checked. I had a blood test and an ultrasound. Blood test showed ALT and AST levels as higher end of moderate and the ultrasound showed that the

https://pubmed.ncbi.nlm.nih.gov/33279231/ This is a systematic review on cdp choline as an adjuvant therapy for parkinson's. Came across it in a LK Mischley document re using 2 by 500 mg cd choline per day apparently improving the effectiveness of levodopa Very important! Please note park_bear's

I’m assuming that my husband’s dialysis will begin very soon because his eGFR was 9 a few of weeks ago. We’re in the UK and dependent on the National Health Service, thankfully. My question may seem odd but it just occurred to me. If dialysis isn’t going to slow the disease down, it follows that it’s

I have had two colonoscopy's, ultrasound, full body CT scan, Endoscopy and now a fibro scan. All of which to my knowledge have come back clear. The only thing I haven't had done is a liver biopsy quickly consultant is still reluctant to arrange. Failing that it's a referral to a hepatologist.

Lately it's been Jill Scott who has calmed my nerves. I'm going to switch to Alicia Keys (lots of great songs to sing along to with her https://www.youtube.com/watch?v=xPvwDcrT6rU) It's been a while folks. I've been doing well. Still not on dialysis. Thankful. I have a doctors appointment next Thursday

Hello! I was diagnosed with fatty liver over a year ago after an ultrasound following abnormally high LFTs. Since then, I’ve lost 3 stone in weight, however my LFTs continue to rise which has been disheartening to say the least! A recent blood test also showed that my cholesterol is high and I think