Experiences with

Behcet's disease

I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to

I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023.

He also mentioned behcets disease ? Which I'm not 100% sure that would be correct for me given that I have a lot more symptoms and none of the usual leg sores etc, has anyone been diagnosed with behcets and lupus ? Or misdiagnosed with behcets which turned out to be lupus ?

Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer to wait and see if I have any answers!

I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim Personal Independence Payment? I'm quite tired of having to pay for my

Hi all, I had my 6 mth scan last week, where the scanner scanned my liver, kidneys and spleen. ( I thought I was just having my liver scanned) . I went to hospital yesterday to get my results from my consultant. This is where I'm confused. My liver hasn't changed from early cirrhosis and my bloods

What does it mean, "should be considered negative": [i]PSA, ULTRASENSITIVE[/i] [i]View trends[/i] [i]Normal range: 0 - 0.050 ng/mL[/i] [i]Value[/i] [i]<0.015[/i] [i][/i] [i]Performed by Abbott Architect i2000 Immunoassay (CMIA)[/i] [i][/i] [i]Results obtained with different assay methods cannot

My husband's PSA more than doubled after his first Pluvicto treatment, 265 to 646. Having to get blood transfusions routinely now. Anyone else have this occur?

My last PSA was now 2.4.It's doubled and only ever increased since my first treatments. My oncologist WILL NOT get me a pmsa pet scan.... For me, I think there is spread, oncologist said they would be concerned until PSA results got to 2.0 Now it's over that and the trend goes up May23 0.08 Dec23 0.25

[i]These are from an email I received from The Global Liver Institute..... I think this might be a good thing.[/i] [i][/i] [i]Healthy Holidays! Gut Friendly Tips and Liver Health Innovations[/i] [i]Welcome to this special holiday edition of Liver Cancer News! As the festive

At what point is it a concern after treatment .. ? I had LD brachytherapy a year ago followed by external beam radiation while having hormone therapy for 9 months. Subsequent PSA tests at 3 month intervals have been .01, .03, then .24. Due for an update test in a month or so but having a prostate still

A new study published in The American Journal of Pathology found that inhibiting the sterol regulatory element-binding protein (SREBP) can help overcome docetaxel resistance in advanced prostate cancer. Docetaxel is a common chemotherapy treatment for prostate cancer, but patients eventually develop

Ok, it was just 16 people but.... They have announced positive interim data from Phase 1a trial of a PSMA-TRACTr therapy, JANX007, for metastatic castration-resistant prostate cancer (mCRPC). In the trial, JANX007 showed a high PSA response rate with all 16 patients experiencing at least a 50% decline

NOTE: What could have been a sober discussion has broken down into political sniping, irrelevant to our advanced prostate cancer purpose. For that reason alone, replies to this post have been turned off. Please note that this post was created by a poster on his/her first day on our community. The

hi my daughter is alcohol dependent she was diagnosed a year in September with cirrhosis unfortunately she won’t or can’t stop drinking. She’s been to Rehab for three months this year but relapsed straight away. My question is she was drinking four bottles of wine a day now she gets drunk of one bottle

Just pleased to report out that I have managed to lower my PSA for a third time in a row over the last 11 months, starting from when my prostate cancer was diagnosed last January. In January 2024 my PSA was 6.4, then in April to 4.7, July 3.3, and now November it's 2.45. I have only made diet changes

Was this post here?My neurologist mentioned about this repurposed drug for Parkinson's. I searched and found this, but I haven't read it all. https://cureparkinsons.org.uk/ambroxol-the-story-behind-the-medicine/ More: https://www.ucl.ac.uk/news/2023/jan/cough-medicine-be-trialled-new-treatment-parkinsons-disease

I hope this post is allowed for discussion today when Parliament are voting on whether assisted deaths should be allowed. As a community effected by Liver disease how do you feel about this? I lost my Mum to Nash in July 2022, we also lost my husbands eldest brother after his liver transplant failed

I had my second laparoscopy 2 weeks ago and have just received a letter with notes as I never had a follow up with the surgeon. I've been trying to get hold of my consultant but haven't had a reply or follow up appointment arranged. Can anyone advise what stage I am from the info below or does it depend

Hi Has anyone on high dose levo taken mounjaro for weight loss? What experiences have you had with it? I'm interested in understanding perspectives with the nightmare hypothyroid condition and this drug. I was on it but had to come off it for a kidney infection (not Mounjaro's fault at all) and I