Survey for PCa patients who are on o... - Advanced Prostate...

Advanced Prostate Cancer

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Survey for PCa patients who are on or have never been on ADT and may never have to be on it

Darryl profile image
DarrylPartner
6 Replies

Enter the survey here: malecare.org/april-survey/

Friend of Malecare Richard Wassersug, PhD has an interesting survey. He writes:

We are interested in understanding the beliefs and opinions of men who have been diagnosed with Prostate Cancer (PCa) about Alternative Forms of Androgen Deprivation Therapy (ADT), regardless of whether they have ever been on ADT. In this anonymous study, you will be presented with information and questions about various options for ADT. Your responses will be kept entirely confidential.



We want to collect data from patients who have been on one form or another of ADT, but most importantly, we seek input from PCa patients who have never been on ADT and may never have to be on it (as well as those who have been on it).

I emphasize that because we are seeing signs that guys who have not been on ADT assume that the survey is not for them. But we also want to hear from those guys, not just those previously exposed to ADT.

The study should take you about 10 minutes to complete. You will receive no compensation for your participation.
 Your participation in this research is voluntary, and you can withdraw at any point during the study.

The Principal Investigator of this study is Richard Wassersug, PhD.
 If you have any questions, you can contact him at richard.wassersug@ubc.ca.

We are interested in your opinions about the side effects of ADT, even if you have never been on it or expect to be on it.

Your responses may help millions of men worldwide with prostate cancer!

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Darryl profile image
Darryl
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6 Replies
IKNY profile image
IKNY

Done

Wassersug profile image
Wassersug

Thank you Darryl for posting the invitation to our survey!

And my thanks to all of you wh take the time to take the survey. Also, please pass it on to all the other men you know who have evrery been diangosed with prostate cancer whether they have been on ADT or not!

Richard Wassersug

dhccpa profile image
dhccpa in reply toWassersug

Thanks

anothercyclist profile image
anothercyclist

I took the orchiectomy route. That is, of course, one form of ADT. But after four years I have needed no follow up treatments or meds. I could not be more pleased with the result.

ChiShowRetired profile image
ChiShowRetired

count me in

pete0550 profile image
pete0550

Hello Darryl, thanks for sending the invite. I live in the UK and have completed the survey but it was only towards the end that it became apparent that it wasn't really appropriate for UK residents. Do you think it would be a good idea for future invites to indicate which countries it is aimed at? Just a thought - I felt the early questions were relevant regardless of country of residence. Take care, Pete.

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