Search
Search
About
Log in
Join
Experiences with
Behavioural therapy
Posts
Communities
16,425 public posts
Filter results
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
28 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
29 days ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
Lupron SEs - legs
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
NickKnick
in
Advanced Prostate Cancer
1 month ago
What next?
I posted in January regarding my results from internal and external scan in Dec. I was informed at the scan I have 3 fibroids and a chocolate cyst on my right ovary at 3.9 cm. I'm 51 and had been on hrt for just over a year but had stopped in November 23 as had heavy bleeding and multiple uti's. I
I posted in January regarding my results from internal and external scan in Dec. I was informed at the scan I have 3 fibroids and a chocolate cyst on my right ovary at 3.9 cm. I'm 51 and had been on hrt for just over a year but had stopped in November 23 as had heavy bleeding and multiple uti's. I
Cherrycat32
in
Endometriosis UK
5 months ago
Is this thyroid?
hi there, I have been struggling with what I thought was Peri menopause/menopause symptoms for a while (dizzy spells, headaches, brain fog, dry eyes, fatigue etc) Last year these symptoms got progressively worse with pain under left arm in lymph node and weakness to the point I felt like collapsing
hi there, I have been struggling with what I thought was Peri menopause/menopause symptoms for a while (dizzy spells, headaches, brain fog, dry eyes, fatigue etc) Last year these symptoms got progressively worse with pain under left arm in lymph node and weakness to the point I felt like collapsing
Dublinlady
in
Thyroid UK
5 months ago
worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
5 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
Hip Pain
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Football3018
in
Endometriosis UK
5 months ago
Thyroid dosage for elderly Mom
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
duffythedoodle
in
Thyroid UK
5 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
5 months ago
Thoughts on using AI for ADT decisions
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
Mgtd
in
Advanced Prostate Cancer
5 months ago
Pirtobrutinib triple trial Cycle 7 update
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
SeymourB
in
CLL Support
10 months ago
2nd FET protocol for 4th embryo transfer
Hi all, I’m looking for some advice on FET protocols. I’ve had 2 fresh rounds of IVF treatment and one frozen. The first cycle of IVF resulted in two embryos. We transferred one embryo, which resulted in a BFN. For our frozen round we also got a BFN. For our next fresh round our consultant suggested
Hi all, I’m looking for some advice on FET protocols. I’ve had 2 fresh rounds of IVF treatment and one frozen. The first cycle of IVF resulted in two embryos. We transferred one embryo, which resulted in a BFN. For our frozen round we also got a BFN. For our next fresh round our consultant suggested
Naturewalks
in
Fertility Network UK
5 months ago
High risk and ADT duration since PSMA
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
SimMartin
in
Advanced Prostate Cancer
5 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
5 months ago
Exercise intolerant
I've been experiencing heavy sweating while exercising and total exhaustion the next day. I felt this why before I was diagnosed ten years ago with low thyroid. I had to stop any form of exercise. I am on HRT too and last year had the same symptoms. My HRT gel was increased and this sorted out the problem
I've been experiencing heavy sweating while exercising and total exhaustion the next day. I felt this why before I was diagnosed ten years ago with low thyroid. I had to stop any form of exercise. I am on HRT too and last year had the same symptoms. My HRT gel was increased and this sorted out the problem
Braveheart77
in
Thyroid UK
5 months ago
Slow colonic transit
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
Riccar24
in
IBS Network
10 months ago
Cyberknife+IMRT combination treatment for High Risk PCa, that has spread to the seminal vesicle.
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Sushupthi
in
Advanced Prostate Cancer
1 month ago
1
...
51
52
53
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4478 results
Thyroid UK
2388 results
Endometriosis UK
1870 results
View top 10 communities
Sort by
Most Relevant
Newest