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Round 50?
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
erinjee
in
Restless Legs Syndrome
2 months ago
Illness and taking T3 - something to consider?
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
Gilbo72
in
Thyroid UK
7 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
4 months ago
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Pneumonia
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
Paulagcl
in
PMRGCAuk
3 months ago
Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
4 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
4 months ago
thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
1 month ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
4 months ago
Viral Meningitis
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Walkingintheforest
in
Meningitis Now
1 year ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
4 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
4 months ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
4 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
4 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
4 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
2 months ago
Periods delayed after steroid injections
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
ABFr23
in
NRAS
5 months ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
3 months ago
Free Covid tests for vulnerable
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Jenny_F
in
MPN Voice
4 months ago
Pain management Team
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
Imagine1
in
Pain Concern
5 months ago
Tested Positive for Covid today. On pirtobrutinib
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
ReneeSusan
in
CLL Support
4 months ago
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