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Looking for advice on what to do next?
Hello everyone, I apologise in advance for the long story. I have been suffering with theys symptoms for several years now and they are not getting any better. If anything I'm getting worse and worse and I have no diagnosis. My symptoms include, really bad pelvic pain, extremely painful periods, sciatica
Hello everyone, I apologise in advance for the long story. I have been suffering with theys symptoms for several years now and they are not getting any better. If anything I'm getting worse and worse and I have no diagnosis. My symptoms include, really bad pelvic pain, extremely painful periods, sciatica
Suzileverell
in
Pelvic Pain Support Network
5 years ago
Don't Get A Respiratory Infection !
Wow, I just read the post from the poor guy who is suffering so badly with a cold. Those of us with heart failure and AFib have to be extremely careful not to catch something. I've had an auto-immune lung disease for 30 years, and now since I have AFib and heart failure, I have to be even more careful
Wow, I just read the post from the poor guy who is suffering so badly with a cold. Those of us with heart failure and AFib have to be extremely careful not to catch something. I've had an auto-immune lung disease for 30 years, and now since I have AFib and heart failure, I have to be even more careful
goldey
in
AF Association
5 years ago
Continuous Periods
So over the last three to four years I've been suffering with continuous bleeding. There are small gaps, for example I've been on my period in some form for 3 months now, I had a five day gap last week but still spotted lightly. I've had lost medication in the past to treat it, the pill, Tranexamic
So over the last three to four years I've been suffering with continuous bleeding. There are small gaps, for example I've been on my period in some form for 3 months now, I had a five day gap last week but still spotted lightly. I've had lost medication in the past to treat it, the pill, Tranexamic
Vegechi
in
Endometriosis UK
5 years ago
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Can endometriosis be missed during a laparoscopy?
Advice please 😠apologies in advance for the long post but please please PLEASE read!!! So I was diagnosed with endometriosis in 2015 after emergency surgery for a cyst rupture - this was in Cyprus. She burnt away the endometriosis but told me it's likely to come back eventually. After my lap, I fell
Advice please 😠apologies in advance for the long post but please please PLEASE read!!! So I was diagnosed with endometriosis in 2015 after emergency surgery for a cyst rupture - this was in Cyprus. She burnt away the endometriosis but told me it's likely to come back eventually. After my lap, I fell
Billielaurenxo
in
Endometriosis UK
5 years ago
Heavy bleeding
I am 59 and and being through the menopause I had some issues with spotting through out the Years had tests nothing sinister but today I had a massive bleeding clots and unfortunately that happened while I was at the doctors about the spotting I had again for the past week and while I was sitting I
I am 59 and and being through the menopause I had some issues with spotting through out the Years had tests nothing sinister but today I had a massive bleeding clots and unfortunately that happened while I was at the doctors about the spotting I had again for the past week and while I was sitting I
hellsbells52
in
Women's Health
5 years ago
Liver drug trialled in Parkinson’s patients in UK trial
Clinical trial will assess the safety and tolerability in Parkinson’s patients to ursodeoxycholic acid (UDCA) – a drug which is hoped could potentially be re-positioned to help slow down the progression of the disease https://www.sheffield.ac.uk/news/nr/liver-drug-trialled-in-parkinsons-patients-1.828628
Clinical trial will assess the safety and tolerability in Parkinson’s patients to ursodeoxycholic acid (UDCA) – a drug which is hoped could potentially be re-positioned to help slow down the progression of the disease https://www.sheffield.ac.uk/news/nr/liver-drug-trialled-in-parkinsons-patients-1.828628
Farooqji
in
Cure Parkinson's
5 years ago
CPR😄
Hi everyone hope you are all doing great! I had my CNA class and got my first aid and CPR training today. Went pretty good and will be ready to help someone anyway I can in an emergency!! I would be scared if an actual emergency occured but I think that's normal right? Anyhoo, have a great weekend 😀
Hi everyone hope you are all doing great! I had my CNA class and got my first aid and CPR training today. Went pretty good and will be ready to help someone anyway I can in an emergency!! I would be scared if an actual emergency occured but I think that's normal right? Anyhoo, have a great weekend 😀
lovedogs51511
in
Anxiety and Depression Support
5 years ago
Alendronic acid
Hi I had surgery for breast cancer in September 2018. After surgery they wanted me to take Anastrozole but after doing research I said I would decide after DEXA scan.I got the result last week and I was shocked when my doctor told me I had osteoporosis, she has given me a prescription for Alendronic
Hi I had surgery for breast cancer in September 2018. After surgery they wanted me to take Anastrozole but after doing research I said I would decide after DEXA scan.I got the result last week and I was shocked when my doctor told me I had osteoporosis, she has given me a prescription for Alendronic
fffffhhhhhh
in
Bone Health and Osteoporosis UK
5 years ago
Challenging diagnosis of thyroid hormone resistance initially as Hashimoto's thyroiditis
We have many times had discussions here about how difficult it can be to be certain of thyroid diagnoses. This is a short paper which highlights one instance. [i] J Pediatr Endocrinol Metab. 2019 Jan 25. pii: /j/jpem.ahead-of-print/jpem-2018-0284/jpem-2018-0284.xml. doi: 10.1515/jpem-2018-0284. [Epub
We have many times had discussions here about how difficult it can be to be certain of thyroid diagnoses. This is a short paper which highlights one instance. [i] J Pediatr Endocrinol Metab. 2019 Jan 25. pii: /j/jpem.ahead-of-print/jpem-2018-0284/jpem-2018-0284.xml. doi: 10.1515/jpem-2018-0284. [Epub
helvella
Thyroid UK
in
Thyroid UK
5 years ago
Can sleeping tablets make sleep apnea worse?
Hi all, just had a quick question - can herbal sleeping tablets worsen sleep apnea? I am not actually diagnosed with it yet, but strongly suspect that that a what's happening. Took some herbal sleep aid last night and as soon as I was drifting off I would stop breathing every time. Woke myself up a few
Hi all, just had a quick question - can herbal sleeping tablets worsen sleep apnea? I am not actually diagnosed with it yet, but strongly suspect that that a what's happening. Took some herbal sleep aid last night and as soon as I was drifting off I would stop breathing every time. Woke myself up a few
DaveT81
in
Sleep Matters
5 years ago
Newly diagnosed to PBC - help please
Hi, Firstly may I say how relieved I am to find a this community, foundation for PBC as a daughter of a newly diagnosed mother. Last week my mum was diagnosed with PBC, having many years prior with liver damage, jaundice etc. She is currently waiting for her biopsy appointment however we are
Hi, Firstly may I say how relieved I am to find a this community, foundation for PBC as a daughter of a newly diagnosed mother. Last week my mum was diagnosed with PBC, having many years prior with liver damage, jaundice etc. She is currently waiting for her biopsy appointment however we are
gurps89
in
PBC Foundation
5 years ago
Endo is back after 5 months?
Hey, so I havent posted in a while purely because i was scared of admitting my symptoms were back. I had my first laparoscopy on the 15th aug 2018 when i was 21. I had very progressive endo pretty much everywhere you can think, bowels, womb, uterus, bladder, you name it i had it. I had the mirena coil
Hey, so I havent posted in a while purely because i was scared of admitting my symptoms were back. I had my first laparoscopy on the 15th aug 2018 when i was 21. I had very progressive endo pretty much everywhere you can think, bowels, womb, uterus, bladder, you name it i had it. I had the mirena coil
clynch96
in
Endometriosis UK
5 years ago
Cost of urso. Where can I order it?
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
Triciawc
in
PBC Foundation
5 years ago
Alendronic acid
Firstly I want to say I don’t know what I would have done if I hadn’t found this forum, I am learning more and more every day about PMR, thank you to all that contribute everyday. I have posted once before. I am now 4 weeks in from diagnosis, started on 15mg pred for 3 weeks and reduced to 12.5mg for
Firstly I want to say I don’t know what I would have done if I hadn’t found this forum, I am learning more and more every day about PMR, thank you to all that contribute everyday. I have posted once before. I am now 4 weeks in from diagnosis, started on 15mg pred for 3 weeks and reduced to 12.5mg for
Iloveholidays
in
PMRGCAuk
5 years ago
Spanish study using TUDCA and the other NAC, Vitamin E, and alpha-lipoic acid
I’m sure many have stumbled on the two separate Spanish studies using TUDCA and the other NAC, Vitamin E, and alpha-lipoic acid. I’ve tried each for awhile, however stopped. It is very difficult to try and do a study on yourself. Has anyone had any success/results?
I’m sure many have stumbled on the two separate Spanish studies using TUDCA and the other NAC, Vitamin E, and alpha-lipoic acid. I’ve tried each for awhile, however stopped. It is very difficult to try and do a study on yourself. Has anyone had any success/results?
bluejadedwho
in
AMN EASIER
5 years ago
Home-Working
Good morning, I am in need of some advice if anyone can help. I am 27 years old, had my first/diagnostic laparoscopy in Feb 2015. I have struggled for years but doctors/consultants don't want me to have another operation if it can be helped. I have tried Mirena, the contraceptive pill... and am currently
Good morning, I am in need of some advice if anyone can help. I am 27 years old, had my first/diagnostic laparoscopy in Feb 2015. I have struggled for years but doctors/consultants don't want me to have another operation if it can be helped. I have tried Mirena, the contraceptive pill... and am currently
brightbunny
in
Endometriosis UK
5 years ago
Antioxidants and gastric stress
Hi all. I posted about neuropathy a while back. I’ve done lots of research and it seems that for the most part this is down to some inability to absorb B12 although it’s common for diabetics and alcoholics. It’s pretty painful and naturally I have been trying to find a solution that avoids drugs like
Hi all. I posted about neuropathy a while back. I’ve done lots of research and it seems that for the most part this is down to some inability to absorb B12 although it’s common for diabetics and alcoholics. It’s pretty painful and naturally I have been trying to find a solution that avoids drugs like
jeeves19
in
Cure Parkinson's
5 years ago
Melatonin helps sleep
Any words of wisdom regarding Melatonin as sleep aid? I've always been a light sleeper, sensitive to sounds, light, etc. in the past (50 years now), I blamed this problem on having raised children, always aware of unusual sounds, etc., in the night, which translates to interrupted sleep.. With PMR
Any words of wisdom regarding Melatonin as sleep aid? I've always been a light sleeper, sensitive to sounds, light, etc. in the past (50 years now), I blamed this problem on having raised children, always aware of unusual sounds, etc., in the night, which translates to interrupted sleep.. With PMR
Purplecrow
in
PMRGCAuk
5 years ago
Ursodiol
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Mrsfancypants
in
PBC Foundation
5 years ago
Does topical retinoic acid effect the thyroid??
I believe that 25 years of daily topical Retin a has had an effect on my ability to convert t4 to active t3 based on my blood work. I do not have an autoimmune disorder. Wondering if it has something to do with retinol binding receptors and thyroid receptors?? Any ideas!????
I believe that 25 years of daily topical Retin a has had an effect on my ability to convert t4 to active t3 based on my blood work. I do not have an autoimmune disorder. Wondering if it has something to do with retinol binding receptors and thyroid receptors?? Any ideas!????
Peachface1
in
Thyroid UK
5 years ago
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