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I was diagnosed in June 2019 with PMR after an unexpected attack out of the blue , when I was in so much pain I couldn't move and began shaking and with my teeth chattering. An excellent GP pulled out all the stops, arranged immediate blood tests and other examinations and very soon prescribed prednisolone
I was diagnosed in June 2019 with PMR after an unexpected attack out of the blue , when I was in so much pain I couldn't move and began shaking and with my teeth chattering. An excellent GP pulled out all the stops, arranged immediate blood tests and other examinations and very soon prescribed prednisolone
LCfan
in
PMRGCAuk
3 years ago
Bleeding and on Tablets ☹ I'm getting worried
Hello Ladies, Hope your all well. I'm getting really worried. I've been bleeding for a month some days really heavy other light. Also with clots. But im taking Noristorone and Tranexamic Acid. Both should help with the bleeding. I've been told by my GP to carry on taking them as I'm anemic. I've had
Hello Ladies, Hope your all well. I'm getting really worried. I've been bleeding for a month some days really heavy other light. Also with clots. But im taking Noristorone and Tranexamic Acid. Both should help with the bleeding. I've been told by my GP to carry on taking them as I'm anemic. I've had
Sam38
in
Endometriosis UK
3 years ago
Can I just stop AA
hi everyone just a question about AA, is it ok to just stop taking it? I was diagnosed in 2016 with PMR and 18 months later had a dexa scan which showed I had osteoporosis in the lower back. I can’t remember they exact numbers but it was only just in the realms of the lower end so was given Alendronic
hi everyone just a question about AA, is it ok to just stop taking it? I was diagnosed in 2016 with PMR and 18 months later had a dexa scan which showed I had osteoporosis in the lower back. I can’t remember they exact numbers but it was only just in the realms of the lower end so was given Alendronic
9lives
in
PMRGCAuk
3 years ago
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Hello! After years of severe chronic pain during my period, I finally went to the GP 4 months ago. They referred me for an transvaginal internal ultrasound at Guys and St Thomas’ and found a number of cysts (largest 5cm), that my ovaries aren’t moving so they think are stuck to uterus lining and when
Hello! After years of severe chronic pain during my period, I finally went to the GP 4 months ago. They referred me for an transvaginal internal ultrasound at Guys and St Thomas’ and found a number of cysts (largest 5cm), that my ovaries aren’t moving so they think are stuck to uterus lining and when
lavender138
in
Endometriosis UK
3 years ago
Magnesium for pain or cognition
Magnesium malate, glycinate, and threonate forms of magnesium for maximum neurological and systemic benefits for the body. Malate: energizing, metabolism, reduces muscle pain Glycinate: relaxing, gut friendly, good for nerve pain Citrate: relaxing, reduce muscle pain, good for kidneys Taurate and
Magnesium malate, glycinate, and threonate forms of magnesium for maximum neurological and systemic benefits for the body. Malate: energizing, metabolism, reduces muscle pain Glycinate: relaxing, gut friendly, good for nerve pain Citrate: relaxing, reduce muscle pain, good for kidneys Taurate and
Hidden
in
Cure Parkinson's
3 years ago
Severe Penis Skin Problem - HELP
Severe Penis Skin Issue for a few years now. Can someone tell me what kind of doctor I need to see? Do I need to see a urologist or Dermatologist? Also, does anyone here know of a doctor in the US in the DFW area that specializes in this? Any idea what this may be and any recommendations on something
Severe Penis Skin Issue for a few years now. Can someone tell me what kind of doctor I need to see? Do I need to see a urologist or Dermatologist? Also, does anyone here know of a doctor in the US in the DFW area that specializes in this? Any idea what this may be and any recommendations on something
Bigmanneedshelp
in
Men's Health Forum (Penis Health)
3 years ago
Dexa scan results while on prednisone and using the COMB micronutrient protocol.
After being diagnosed with osteoporosis 2 years ago I had tried Alendronate and couldn't tolerate it; Tried Forteo for a couple of months but ended up in ER with shortness of breath. With my rheumatologist and internist approval I followed the Micronutrient protocol for 1 1/2 years - while taking prednisone
After being diagnosed with osteoporosis 2 years ago I had tried Alendronate and couldn't tolerate it; Tried Forteo for a couple of months but ended up in ER with shortness of breath. With my rheumatologist and internist approval I followed the Micronutrient protocol for 1 1/2 years - while taking prednisone
Karenjaninaz
in
Bone Health and Osteoporosis UK
3 years ago
Dexa scan improvement while on pred after COMB micronutrient protocol
After being diagnosed with osteoporosis 2 years ago I had tried Alendronate and couldn't tolerate it; Tried Forteo for a couple of months but ended up in ER with shortness of breath. With my rheumatologist and internist approval I followed the Micronutrient protocol for 1 1/2 years - while taking prednisone
After being diagnosed with osteoporosis 2 years ago I had tried Alendronate and couldn't tolerate it; Tried Forteo for a couple of months but ended up in ER with shortness of breath. With my rheumatologist and internist approval I followed the Micronutrient protocol for 1 1/2 years - while taking prednisone
Karenjaninaz
in
PMRGCAuk
3 years ago
In Pain after 3 hysteroscopies in 6 weeks, and now have my period - Yay
Hello. Well where to start! I am 40, have had horrific periods (like from a horror film) for most of my life. I started taking anti bleeding tablets about 10 years ago, tranexamic acid, hard to spell! I don’t think they make a huge difference, as most months I get through 40 pads During my periods and
Hello. Well where to start! I am 40, have had horrific periods (like from a horror film) for most of my life. I started taking anti bleeding tablets about 10 years ago, tranexamic acid, hard to spell! I don’t think they make a huge difference, as most months I get through 40 pads During my periods and
Roberta1980
in
Endometriosis UK
3 years ago
Zoledronic Acid ~Infusion
Just attended my yearly rheumatology appointment and saw an SHO rather than consultant (it sounds as if they are busy closing down face to face appointments for the time being and relying on telephone conversations, I think i was one of the last) The main thing was that following the Dexa scan report
Just attended my yearly rheumatology appointment and saw an SHO rather than consultant (it sounds as if they are busy closing down face to face appointments for the time being and relying on telephone conversations, I think i was one of the last) The main thing was that following the Dexa scan report
Pollyanna16
in
PMRGCAuk
3 years ago
More info about PEG in the COVID vaccines
Source: https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/can-you-get-covid-19-vaccine-history-allergic-reactions/ Relevant info: The Food & Drug Administration (FDA) Fact sheets provided by the FDA for the Pfizer-BioNTech and Moderna vaccines state that you should not get
Source: https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/can-you-get-covid-19-vaccine-history-allergic-reactions/ Relevant info: The Food & Drug Administration (FDA) Fact sheets provided by the FDA for the Pfizer-BioNTech and Moderna vaccines state that you should not get
gothchiq
in
Allergic to Glycols
3 years ago
recipe
Hi to all, this is recipe and I have had pbc for 4 years I take ursodiol and it seems to be doing ok. I would like to take the vaccine for covid 19 and I am wondering if anyone has taken the vaccine yet with pbc and how didthey do. thanks
Hi to all, this is recipe and I have had pbc for 4 years I take ursodiol and it seems to be doing ok. I would like to take the vaccine for covid 19 and I am wondering if anyone has taken the vaccine yet with pbc and how didthey do. thanks
recipes
in
PBCers Organization
3 years ago
Alendronic acid any alternatives
Hi All My doctor rang and said I should take AA because I have taken 7 five day courses of Prednisolone in a year. I have a rescue pack of steroids and antibiotics that I every time I have a flare up of my COPD. I am wondering if any knows of a alternative or even a natural one please ?
Hi All My doctor rang and said I should take AA because I have taken 7 five day courses of Prednisolone in a year. I have a rescue pack of steroids and antibiotics that I every time I have a flare up of my COPD. I am wondering if any knows of a alternative or even a natural one please ?
Gladys23
in
British Heart Foundation
3 years ago
Looking for Advice
I have been diagnosed with POS, Underactive Thyroid and I'm being investigated for Endometriosis. I've came off of my medication (Cerelle) as I'm trying to conceive but I've went straight back to having a never-ending period (heading into month 2 of bleeding). The only things that's been able to stop
I have been diagnosed with POS, Underactive Thyroid and I'm being investigated for Endometriosis. I've came off of my medication (Cerelle) as I'm trying to conceive but I've went straight back to having a never-ending period (heading into month 2 of bleeding). The only things that's been able to stop
GiJeDe
in
PCOS UK (Verity)
3 years ago
Anybody on Zometa injection/ Zoledronic acid?
Hello everyone, I had a bone scan last week and it revealed osteopenia 😱😨🤯 I’m not surprised as I feel it. My poor bones have deteriorated since I started on Anastrazole and now I’m on Exemastene. I’m 42 so I have to be on hormone therapy for 10 years and I don’t know if my bones will hold up. What
Hello everyone, I had a bone scan last week and it revealed osteopenia 😱😨🤯 I’m not surprised as I feel it. My poor bones have deteriorated since I started on Anastrazole and now I’m on Exemastene. I’m 42 so I have to be on hormone therapy for 10 years and I don’t know if my bones will hold up. What
Mmnyc
in
SHARE Breast Cancer Support
3 years ago
Adcal-D3 and Alendronic Acid
When pred was first prescribed I was also prescribed Adcal-D3 and Alendronic Acid. Why? Are these reduced as the pred is reduced, now on 8 down from 20?
When pred was first prescribed I was also prescribed Adcal-D3 and Alendronic Acid. Why? Are these reduced as the pred is reduced, now on 8 down from 20?
Bncc
in
PMRGCAuk
4 years ago
Zolendronate Infusion
I was diagnosed with osteoporosis 2 years ago following a wrist fracture. I had a parathyroidectomy in August. I am unable to take alendronic acid due to stomach problems and have been advised to have a zolendronate infusion. However, I am concerned about side effects, in particular hair loss, skin
I was diagnosed with osteoporosis 2 years ago following a wrist fracture. I had a parathyroidectomy in August. I am unable to take alendronic acid due to stomach problems and have been advised to have a zolendronate infusion. However, I am concerned about side effects, in particular hair loss, skin
t1gernidster
in
Bone Health and Osteoporosis UK
4 years ago
Hand Foot Syndrome and/or Neuropathy
Hi All, I have asked about this one before on this list, but with a new year, perhaps it is time to see if anyone has any new ideas. I am on Faslodex, Verzenio, Zometa, and now Retacrit (Procrit), along with pain meds, etc., but it is certainly one of the first three that is causing the problem in my
Hi All, I have asked about this one before on this list, but with a new year, perhaps it is time to see if anyone has any new ideas. I am on Faslodex, Verzenio, Zometa, and now Retacrit (Procrit), along with pain meds, etc., but it is certainly one of the first three that is causing the problem in my
CincinnatiExperience
in
SHARE Metastatic Breast Cancer
4 years ago
Alendronic Acid - is it worth it?
Rheumatologist had just prescribed AA as the pred will be 'killing my bones'. She wants me to take it for 6 months then have a DEXA scan to see if I need to continue. Seems a bit of a barmy way round to me, but hey ho. So I have been reading back through all the posts I can find and am now absolutely
Rheumatologist had just prescribed AA as the pred will be 'killing my bones'. She wants me to take it for 6 months then have a DEXA scan to see if I need to continue. Seems a bit of a barmy way round to me, but hey ho. So I have been reading back through all the posts I can find and am now absolutely
artisam
in
PMRGCAuk
4 years ago
Will low dose of pred alter the outcome of the test?
First visit to Rheumatologist today. Sending me for ultrasound scan next week. Writing to GP to confirm PMR and GCA and suggesting low dose of pred and alendronic acid because of my age to test out. Can't tell you how pleased I am because all this pain without any meds is very hard to bear. My main
First visit to Rheumatologist today. Sending me for ultrasound scan next week. Writing to GP to confirm PMR and GCA and suggesting low dose of pred and alendronic acid because of my age to test out. Can't tell you how pleased I am because all this pain without any meds is very hard to bear. My main
merril
in
PMRGCAuk
4 years ago
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