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18 months along
I started on Prednisone November 11 2021. The diagnosis was probable GCA. I remember writing a post on here detailing how crazy/busy my life. 101 things on the go at the same time. I received lots of replies about needing to slow down etc. At the time I had no idea just how much I would need to slow
I started on Prednisone November 11 2021. The diagnosis was probable GCA. I remember writing a post on here detailing how crazy/busy my life. 101 things on the go at the same time. I received lots of replies about needing to slow down etc. At the time I had no idea just how much I would need to slow
Louiseiw
in
PMRGCAuk
1 year ago
What next option available if CDK4/6 get failed
Hi all and Dr. Sumeet Shah one of my relative diagnosed with oligometastatic left breast cancer in 2015 treated with chemo (4 Cycle 5FEC and 1 Cycle of Docetaxel) than surgery (lumpectomy) again 2 cycle of 5FEC chemo 2016 march NED put on tamoxifen 20 mg regular check up and in 2021 it relapsed in
Hi all and Dr. Sumeet Shah one of my relative diagnosed with oligometastatic left breast cancer in 2015 treated with chemo (4 Cycle 5FEC and 1 Cycle of Docetaxel) than surgery (lumpectomy) again 2 cycle of 5FEC chemo 2016 march NED put on tamoxifen 20 mg regular check up and in 2021 it relapsed in
Deepak1965
in
Breast Cancer India
1 year ago
Re Osteopina and options - need a PHd in bones!
Hi, I have been on Pred and also Alendronic Acid since diagnosis for PMR March 22 I decided against Omeprezole in favour of taking live yogart like others on this site and Rheumi agreed. And have just reduced to 3mg of pred. I saw my rheumi on Monday who was pleased with how I was doing and who is
Hi, I have been on Pred and also Alendronic Acid since diagnosis for PMR March 22 I decided against Omeprezole in favour of taking live yogart like others on this site and Rheumi agreed. And have just reduced to 3mg of pred. I saw my rheumi on Monday who was pleased with how I was doing and who is
Animalover65
in
PMRGCAuk
1 year ago
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Zoledronic acid yes or no
I honestly don't know what to do my dxa are,-2.5,lumbar spine-4.1,femoral neck 0.593,vfa shows superior end-plate deformity at t12 suspicious for an insufficiency fracture, do I need meds.
I honestly don't know what to do my dxa are,-2.5,lumbar spine-4.1,femoral neck 0.593,vfa shows superior end-plate deformity at t12 suspicious for an insufficiency fracture, do I need meds.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
Rheuma wants me on alendronate?! What are your t-scores?
So, I saw my new Rheuma for the 2ed time. I was prepared to explain how affull I felt (flair), and why I needed to go back on 10 mg, but I could have saved my breath. He could tell from the way I rose from the chair and walked towards him! "You are not so flying anymore?" he said. So we agreed to go
So, I saw my new Rheuma for the 2ed time. I was prepared to explain how affull I felt (flair), and why I needed to go back on 10 mg, but I could have saved my breath. He could tell from the way I rose from the chair and walked towards him! "You are not so flying anymore?" he said. So we agreed to go
krillemy
in
PMRGCAuk
1 year ago
Alpha Lipoic Acid for nerves, neurodegenerative disease
https://youtu.be/FjF4euhFWY8
https://youtu.be/FjF4euhFWY8
TL500
in
Cure Parkinson's
1 year ago
7 years in May since I was diagnosed.
I've been reminding myself how far I've come. Back in 2016 I was struggling to have enough energy to get dressed and spent many days in my PJ's. Most I managed was to provide a meal each day. Showering was exhausting so that didn't happen often either. Back then I had few spoons and when they were
I've been reminding myself how far I've come. Back in 2016 I was struggling to have enough energy to get dressed and spent many days in my PJ's. Most I managed was to provide a meal each day. Showering was exhausting so that didn't happen often either. Back then I had few spoons and when they were
IdasMum
in
PMRGCAuk
1 year ago
Osteoporosis
Hello Everybody, I had a DEXA scan in 2020, as far as I can see the only worrying result was the neck of femur -2.7. I have just had another DEXA scan on a different machine, and the same result was -2.9. To me, that is not a great difference, having been on steroids for 2 1/2 years. I now have been
Hello Everybody, I had a DEXA scan in 2020, as far as I can see the only worrying result was the neck of femur -2.7. I have just had another DEXA scan on a different machine, and the same result was -2.9. To me, that is not a great difference, having been on steroids for 2 1/2 years. I now have been
Hollyberry12
in
PMRGCAuk
1 year ago
zoledronic acid infusion long term side effects
I am due to have zoledronic infusion, I have been reading the long term side effects ,it's enough to put anyone off,has anyone who has had infusions long term suffered with side effects, I have severe osteoporosis-2.5 but at the moment I am only getting occasional back ache and a bit breathless on
I am due to have zoledronic infusion, I have been reading the long term side effects ,it's enough to put anyone off,has anyone who has had infusions long term suffered with side effects, I have severe osteoporosis-2.5 but at the moment I am only getting occasional back ache and a bit breathless on
Radars
in
Bone Health and Osteoporosis UK
1 year ago
How much is too much D3
Any views on taking 10,000 iu d3 daily? There’s evidence that it’s ‘safe and well tolerated’ I went to see my bone consultant today, he wasn’t impressed by me taking this amount but my calcium level is good and my dexa results have gone from -2.6 to -2.1 in 2 years I also take k2 and magnesium ,
Any views on taking 10,000 iu d3 daily? There’s evidence that it’s ‘safe and well tolerated’ I went to see my bone consultant today, he wasn’t impressed by me taking this amount but my calcium level is good and my dexa results have gone from -2.6 to -2.1 in 2 years I also take k2 and magnesium ,
Deee64
in
Bone Health and Osteoporosis UK
1 year ago
ANRC Plus instead of B complex?
The below is my own work which I am simply sharing. I have no other agentia other than to invite comments and zero expectations. I make no claim to legitimacy or accuracy. I have less than zero medical training. It makes sense to me that any supplement should be checked to insure that an ingredient
The below is my own work which I am simply sharing. I have no other agentia other than to invite comments and zero expectations. I make no claim to legitimacy or accuracy. I have less than zero medical training. It makes sense to me that any supplement should be checked to insure that an ingredient
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Alendronic acid and depression
I came off Alendronic Acid because I didn’t think it was agreeable with me, it was a couple of months ago and I can’t remember the exact reason but it was on the suggestion of a consultant I was seeing for another reason and I have been fine. I started to take it again 3 weeks ago because I knew I
I came off Alendronic Acid because I didn’t think it was agreeable with me, it was a couple of months ago and I can’t remember the exact reason but it was on the suggestion of a consultant I was seeing for another reason and I have been fine. I started to take it again 3 weeks ago because I knew I
Diver6
in
Bone Health and Osteoporosis UK
1 year ago
When does supplementation become toxic or counter-productive?
My Dear Fellow Adventurers, Firstly, thank you for the wealth of information and inspiration - having this commuity makes so much difference! I have a question today, that I have already asked both my doctor and pharmacist (neither were able to help): as I add a new supplement every few months
My Dear Fellow Adventurers, Firstly, thank you for the wealth of information and inspiration - having this commuity makes so much difference! I have a question today, that I have already asked both my doctor and pharmacist (neither were able to help): as I add a new supplement every few months
Jdig
in
Cure Parkinson's
1 year ago
teeth whitening
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
Doraflora
in
PMRGCAuk
1 year ago
alendronic problems
just trying to check my stomach ache, dizziness at times, reflux and chest pain are all from alendronic acid, as I take statins as well. Feel bloated and lack of appetite. What alternatives are there to increase bone strength? Anyone have these symptoms ?
just trying to check my stomach ache, dizziness at times, reflux and chest pain are all from alendronic acid, as I take statins as well. Feel bloated and lack of appetite. What alternatives are there to increase bone strength? Anyone have these symptoms ?
Doggiegirl
in
PMRGCAuk
1 year ago
Taking Alendronic Acid & Dentists won't touch me!
Wanted to have some dental work done & on speaking to a specialist dental surgery, when they heard I was taking Alendronic Acid & Prednisolone they just didn't want to touch me. Have been to visit my regular dentist today who said anything like an extraction or implant he wouldn't do & I would have
Wanted to have some dental work done & on speaking to a specialist dental surgery, when they heard I was taking Alendronic Acid & Prednisolone they just didn't want to touch me. Have been to visit my regular dentist today who said anything like an extraction or implant he wouldn't do & I would have
Purpleprimate
in
PMRGCAuk
1 year ago
9 years and counting with PMR!
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
MC60
in
PMRGCAuk
1 year ago
Will Alendronic Acid affect my RLS?
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
Brenda48
in
Restless Legs Syndrome
1 year ago
ursodeoxycholic acid
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
Sunliver
in
PBC Foundation
1 year ago
Closer to checkmate to Parkinson's (1): what Dr. Phillipson says.
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
parkinsonshereandnow
in
Cure Parkinson's
1 year ago
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