Search
Search
About
Log in
Join
Experiences with
Autologous stem cell transplant
Posts
Communities
3,342 public posts
Filter results
Transplant preparation
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
Mdbish
in
British Liver Trust
4 years ago
Always Have Faith!!!
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
tegegne12
in
ICUsteps
4 years ago
MDS
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anemia related to bone marrow
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Kidney transplants and meloxicam
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
CSCleary
in
Kidney Transplant
4 years ago
Sharing my kidney story and much more! Tedx talk! Enjoy.
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
Just when it's now safe to go out, a note of caution.
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
Richard-Allen
in
Liver4Life
4 years ago
Liver News - University of Birmingham
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
Richard-Allen
in
Liver4Life
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Transplant. Illness. Feeling Ok.
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
cammeag
in
British Liver Trust
4 years ago
Living with PKD
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
Pkd_2020
in
Kidney Transplant
4 years ago
Updates Covid After Effect
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
tegegne12
in
ICUsteps
4 years ago
Covid ICU coming off sedation
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
Terrilynn76
in
ICUsteps
4 years ago
Covid19 now the after effect
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
tegegne12
in
ICUsteps
4 years ago
Shingles
Does anyone know if can be around someone with shingles I have had kidney transplant 17 years ago my husband had got the shingles I know your not supposed to be around live vaccinations for ten days but what do you do in someone get shingles
Does anyone know if can be around someone with shingles I have had kidney transplant 17 years ago my husband had got the shingles I know your not supposed to be around live vaccinations for ten days but what do you do in someone get shingles
Sally03
in
Kidney Transplant
4 years ago
Looking forward for a kidney transplant
Hi My Name is Tariq aljamal 47 years old , am married and have 2 daughters 15 and 10. I live in DeKalb , Illinois 60115 Recently on May 2020 I had akidney failure as well as doing Hemo Dialysis 3 times weekly looking forward for a chance for kidney transplant to gain my normal health and continue my
Hi My Name is Tariq aljamal 47 years old , am married and have 2 daughters 15 and 10. I live in DeKalb , Illinois 60115 Recently on May 2020 I had akidney failure as well as doing Hemo Dialysis 3 times weekly looking forward for a chance for kidney transplant to gain my normal health and continue my
tariq_72
in
Kidney Transplant
4 years ago
Loungingsofa : Pins and needles, light handedness and breathlessness
With reference to the pins and needles post transplant, I have had it in both hands especially in the thumbs and forefingers . It is most irritating and like others who have commented upon.it, I have great difficulty in opening jars and taking the tops off tins. At the moment I'm also suffering from
With reference to the pins and needles post transplant, I have had it in both hands especially in the thumbs and forefingers . It is most irritating and like others who have commented upon.it, I have great difficulty in opening jars and taking the tops off tins. At the moment I'm also suffering from
Loungingsofa
in
Positive Wellbeing During Self-Isolation
4 years ago
Update on 1st post, scared but glad to be alive!
Sorry it has taken a while to get back, So the phone call with the consultant was frustrating and disappointing to be honest. He started by mentioning the "very serious infection" I got the feeling that he thought I didn't know what it was, I said "yes, the Spontaneous Bacterial Peritonitis" I asked
Sorry it has taken a while to get back, So the phone call with the consultant was frustrating and disappointing to be honest. He started by mentioning the "very serious infection" I got the feeling that he thought I didn't know what it was, I said "yes, the Spontaneous Bacterial Peritonitis" I asked
In-Shock
in
British Liver Trust
4 years ago
A newly discovered disease may lead to better treatment of cystic fibrosis.
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
2greys
in
Lung Conditions Community Forum
4 years ago
Taking suppliment in post transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
3idoits
in
Kidney Transplant
4 years ago
1
...
56
57
58
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
701 results
Lung Conditions Community Forum
458 results
Kidney Transplant
432 results
View top 10 communities
Sort by
Most Relevant
Newest