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Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
METAVIVE experience and why I stopped. (a long post sorry!!) Please read and tell me what you think...
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
Starsw
in
Thyroid UK
3 years ago
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Kidney failure stage 4 and am worried?
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
MAK88
in
Kidney Disease
3 years ago
COVID vaccines and the immune system
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
Richard-Allen
in
British Liver Trust
3 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
3 years ago
Peripheral Neuropathy in feet
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Weimarador
in
Kidney Transplant Patient Support
3 years ago
Hospital Service Experience for Bilirary Atresia, Leed, Uk
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Dominic1975
in
Children's Liver Disease Foundation
4 years ago
VO2max vs cardio fitness
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
Andyv1
in
Bridge to 10K
4 years ago
Transurethral Urinary Bladder Resection #2...coming up!
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Sharp5Flat13
in
Lung Conditions Community Forum
4 years ago
Help , feeling really anxious and worried
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hidden
in
ICUsteps
4 years ago
Valentine's Day!
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Spinal Fusion identified while on Lung Transplant List
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Joseph260268
in
Lung Conditions Community Forum
4 years ago
Kidney Transplant process
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
brynat2
in
Kidney Disease
4 years ago
Study indicates COVID-19 vaccines are safe for organ transplant patients.
In what may be the first study of its kind, Johns Hopkins Medicine researchers have documented the reaction of nearly 200 solid organ transplant recipients to their first vaccine inoculation against SARS-CoV-2, the virus that causes COVID-19. The findings, they say, provide evidence that both the Moderna
In what may be the first study of its kind, Johns Hopkins Medicine researchers have documented the reaction of nearly 200 solid organ transplant recipients to their first vaccine inoculation against SARS-CoV-2, the virus that causes COVID-19. The findings, they say, provide evidence that both the Moderna
2greys
in
Lung Conditions Community Forum
4 years ago
COVID Stats...
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Vaccine, kidney transplant receiver and immunosuppresants
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
magSLE
in
Kidney Transplant
4 years ago
Only water fasting after renal transplantation. How long is safe?
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
SLP2005
in
Kidney Transplant Patient Support
4 years ago
Denied for being underweight ?
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Megan024
in
Kidney Transplant
4 years ago
Liver transplant ambivalence
I took my brother to his hepatology appt this morning (he has hepatopulmonary syndrome as a result of his liver disease). The registrar was great and gave us an overview of all the LT considerations and my brother stared at the floor quite disinterested-he won’t read up on it and would rather not know
I took my brother to his hepatology appt this morning (he has hepatopulmonary syndrome as a result of his liver disease). The registrar was great and gave us an overview of all the LT considerations and my brother stared at the floor quite disinterested-he won’t read up on it and would rather not know
Hidden
in
British Liver Trust
4 years ago
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