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Hypoxia, transplant dry runs and raising awareness of IPF
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Fibroscan
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
Chrisjohnsy
in
British Liver Trust
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
2 years ago
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jan16
anyone been diagnosed with lung cancer following liver transplant for pbc
anyone been diagnosed with lung cancer following liver transplant for pbc
jackk9
in
PBC Foundation
2 years ago
I am 1/ 2yrs out from liver transplant with recurrent PBC.
Has anyone had problems with taking course of anti biotics?
Has anyone had problems with taking course of anti biotics?
Denvercarol1
in
PBC Foundation
2 years ago
Kidney Donor who now had CKD stage 3a
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
nichama74
in
Kidney Disease
2 years ago
British Transplant Games - King's families (UK)
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
ConsMum
in
Children's Liver Disease Foundation
2 years ago
COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
2 years ago
Queen’s second try
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
HipHopQueen
in
Kidney Dialysis
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
polyomavirus infection treatments
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Pjennifer
in
Kidney Transplant
2 years ago
liver transplant
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Ririza-31
in
Children's Liver Disease Foundation
2 years ago
Hi, this is a post for all.
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
icd22
in
Women's Health
2 years ago
occluded portal vein
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Porcupine_Tree
in
British Liver Trust
2 years ago
Letters of Hope: docuseries on trials and triumphs of transplantation
Hi everyone, I wanted to bring awareness to a wonderful docuseries featuring Valen Keefer, who is thriving after receiving a kidney transplant as a teenager and years later a liver transplant. Maybe someone has already posted but totally worth seeing again. Very inspirational and relatable. I’ve
Hi everyone, I wanted to bring awareness to a wonderful docuseries featuring Valen Keefer, who is thriving after receiving a kidney transplant as a teenager and years later a liver transplant. Maybe someone has already posted but totally worth seeing again. Very inspirational and relatable. I’ve
Kidney2014
in
Kidney Transplant
2 years ago
Post Transplant Issues
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
Mesabi
in
Kidney Transplant
2 years ago
Rapamycin
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
MDI55
in
MPN Voice
2 years ago
pregnancy post transplant
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
Yolie_85
in
Kidney Transplant
2 years ago
Read this before you get your spleen removed
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
SurferDude
in
ITP Support Association
2 years ago
Kidney Transplant
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
Hidden
in
Kidney Dialysis
2 years ago
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