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Any advice welcome
My husband was diagnosed with liver disease approx 4 years ago and was placed on the liver transplant waiting list. He had since been very stable and continued to work if somewhat more tired than he used to be. Over Christmas this year he caught a virus / infection which has resulted in him now being
My husband was diagnosed with liver disease approx 4 years ago and was placed on the liver transplant waiting list. He had since been very stable and continued to work if somewhat more tired than he used to be. Over Christmas this year he caught a virus / infection which has resulted in him now being
Hidden
in
British Liver Trust
2 years ago
4 months post transplant
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Kamx
in
British Liver Trust
2 years ago
Anti Covid treatments for the Immuno-compromised
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
RogerPinner
in
CLL Support
2 years ago
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Relief for swollen feet ....
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Charlieathome
in
British Liver Trust
2 years ago
Transplant list waiting. Mgus57
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
Fsgs57
in
Kidney Disease
2 years ago
Ureteral stricture surgery/Ureteral retransplantation, replacement of ureter w small intestines etc and specialists who do this
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
Calebzztop
in
Kidney Transplant
2 years ago
Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
1 year ago
What is yin yoga...and why it matters
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
2 years ago
Media Request: West Devon
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
BritishLiverTrust1
Partner
in
British Liver Trust
2 years ago
Pregnancy
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hidden
in
Lung Conditions Community Forum
2 years ago
Holiday insurance
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Morkmindy
in
British Liver Trust
2 years ago
Exhausted but happy.
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
Karenanne61
in
Lung Conditions Community Forum
2 years ago
COVID VACCINE MANDATE
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
green1981
in
Kidney Donation
2 years ago
Does Tacrolimus cause forgetfulness for anyone?
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
Kbristow
in
Kidney Transplant
2 years ago
NHS Blood and Transplant are seeking the views of patients on living donor liver transplantation
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
BritishLiverTrust1
Partner
in
British Liver Trust
2 years ago
Interesting transplant discussion tomorrow night
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
2 years ago
Hand Sanitizer gel
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Bantam2
in
British Liver Trust
2 years ago
Tapering with new issues ongoing
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
GFR levels post transplant
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
Braveheart65
in
British Liver Trust
2 years ago
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