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Autologous stem cell transplant
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Liver transplant aborted
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
Shep666
in
British Liver Trust
2 years ago
worry over echo results
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
Jeanm-c
in
British Heart Foundation
2 years ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
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Tinnitus and the impacts on the anatomical nervous system
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
DR650SE
in
British Tinnitus Association
2 years ago
CKD on PD DIALYSIS
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
RHOC
in
Kidney Disease
2 years ago
Liver cirrhosis & liver transplant
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
JLhervey
in
Liver4Life
2 years ago
Liver cirrhosis & liver transplant
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
JLhervey
in
Liver4Life
2 years ago
Preparation for my husband Liver transplant
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
JLhervey
in
Liver4Life
2 years ago
10 years!
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
nutrimar
in
British Liver Trust
2 years ago
Prolia
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hidden
in
Kidney Transplant
2 years ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
Back Pain - 6 weeks in.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Shoker
in
British Liver Trust
2 years ago
Gall bladder surgery
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
neet24
in
Kidney Transplant
2 years ago
PIP assessment
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
GEMMA1991
in
British Liver Trust
2 years ago
Hello gang. HNY. I received my donor liver transplant!!!!!!!!
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
Charlie-legs
in
British Liver Trust
2 years ago
44 yrs old diabetic lab results showing protein in urine very scared
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
herc1979
in
Kidney Disease
2 years ago
Has anyone had Covid post-transplant?
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
Djangosmom
in
Kidney Transplant
2 years ago
Long story but about to have transplant assessment but really suffering with ascities, odeama and looking for advice re drains
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Elvishaslefttheroom
in
British Liver Trust
2 years ago
Anyone with gastroparesis?
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hidden
in
Kidney Transplant
2 years ago
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