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Hi. My name is Dena. I have PBC.
I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've mentioned before about having extreme itching and this is what I get when I scratch. I try to keep my fingernails cut short so I don't rip or
I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've mentioned before about having extreme itching and this is what I get when I scratch. I try to keep my fingernails cut short so I don't rip or
denabentley
in
PBC Foundation
6 years ago
12 week update on Ocaliva - plateau’ed.
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Ottley3
in
PBC Foundation
6 years ago
7 Days after circumcision surgery, here's what I've learned. Maybe it will help you.
Hey all, still pretty new here, but wanted to share my experience in case it would help other people. I am one week post op and I have some details to share. Feel free to ask me anything if you are in the same boat. Day 1: I had the surgery in an outpatient hospital. This is recommended because it is
Hey all, still pretty new here, but wanted to share my experience in case it would help other people. I am one week post op and I have some details to share. Feel free to ask me anything if you are in the same boat. Day 1: I had the surgery in an outpatient hospital. This is recommended because it is
TexasGuy127
in
Men's Health Forum
6 years ago
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Thyroid
Thyroid test came back all jacked up. I understand Ocaliva can have abnormal effect on levels, so be it. Do those of you on Urso have the same problem? So sick of it...
Thyroid test came back all jacked up. I understand Ocaliva can have abnormal effect on levels, so be it. Do those of you on Urso have the same problem? So sick of it...
gwillistexas
in
PBC Foundation
6 years ago
Throat Wheeze ongoing
Hi, I have read the many asthma related posts with interest and have certainly found many comments helpful. I have recently been hospitalized for unresponsive asthma. I have done everything to address my situation. Second round of steroids in progress, carbocistine, simbicort, salbutamol nebulising,
Hi, I have read the many asthma related posts with interest and have certainly found many comments helpful. I have recently been hospitalized for unresponsive asthma. I have done everything to address my situation. Second round of steroids in progress, carbocistine, simbicort, salbutamol nebulising,
LuWil
in
Lung Conditions Community Forum
6 years ago
Buying injectable B12 online
Hi, I recently realized that the source of many of my long list of health issues was due to a severe b12 deficiency. I’ve since been getting b12 shots (methylcobalamin) through my local naturopath. I’d like to have the option of injecting myself and was wondering if anyone has a specific site they
Hi, I recently realized that the source of many of my long list of health issues was due to a severe b12 deficiency. I’ve since been getting b12 shots (methylcobalamin) through my local naturopath. I’d like to have the option of injecting myself and was wondering if anyone has a specific site they
ChitN
in
Pernicious Anaemia Society
6 years ago
Halfway through chemotherapy🙌
Hi everyone, my husband Ken completed his 3rd round of Chemotherapy Texotere🙌 Chemo 1 and 2 he did good, just with a little bit of nausea and fatigue but overall good. He was able to work, eat as usual, and even did some exercise. The third Chemotherapy was not as good. He had severe nausea and lost
Hi everyone, my husband Ken completed his 3rd round of Chemotherapy Texotere🙌 Chemo 1 and 2 he did good, just with a little bit of nausea and fatigue but overall good. He was able to work, eat as usual, and even did some exercise. The third Chemotherapy was not as good. He had severe nausea and lost
Chiquis
in
Advanced Prostate Cancer
6 years ago
Travel help (taking meds to US)
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hidden
in
Lung Conditions Community Forum
6 years ago
...PBC plus another autoimmune disease?
so glad i found you. OCALIVA is tremendously expensive, and it might not work for me! many questions, but 1st: how many of you have PBC in addition to an autoimmune disease such as SLE Lupus?
so glad i found you. OCALIVA is tremendously expensive, and it might not work for me! many questions, but 1st: how many of you have PBC in addition to an autoimmune disease such as SLE Lupus?
divinemizm
in
PBC Foundation
6 years ago
First IVF cycle delayed by polyp
Hi everyone, This is my first post although I’ve been a member of this group for about eight months now. I’m 34 and my partner is 36 and we have been trying to conceive our first for just over two years with no success. We have been diagnosed with unexplained infertility. We had our nurse planning appointment
Hi everyone, This is my first post although I’ve been a member of this group for about eight months now. I’m 34 and my partner is 36 and we have been trying to conceive our first for just over two years with no success. We have been diagnosed with unexplained infertility. We had our nurse planning appointment
Tyeuri
in
Fertility Network UK
6 years ago
Bronchiectasis - Feeling of Sticking or trapping of Cough in Lungs & heavy chest , 2 months after Chest Infections
I have been diagnosed with Bilateral Bronchial walls thickening and mild Bronchiectasis in my both lower lobes. Accordingly, I had severe chest infections in January and after taking the antibiotics treatments, serious coughing has gone but still 2 months after chest infections, I had lots of feeling
I have been diagnosed with Bilateral Bronchial walls thickening and mild Bronchiectasis in my both lower lobes. Accordingly, I had severe chest infections in January and after taking the antibiotics treatments, serious coughing has gone but still 2 months after chest infections, I had lots of feeling
enm1sg
in
Lung Conditions Community Forum
6 years ago
Where can I buy 7% hypertonic Saline for Nebulizer?
I found one on ebay.....why 7% is it so expensive....will 0.9 % solution work compare to 7% to thin sticky mucus? I have Modudose Saline Solution for Inhalation 0.9%....It doesn't say hypertonic.
I found one on ebay.....why 7% is it so expensive....will 0.9 % solution work compare to 7% to thin sticky mucus? I have Modudose Saline Solution for Inhalation 0.9%....It doesn't say hypertonic.
sagittar
in
Asthma Community Forum
6 years ago
Where can I buy 7% Hypertonic Saline for Nebulizer?
I found one on ebay.....why 7% is it so expensive....will 0.9 % solution work compare to 7% to thin sticky mucus? I have Modudose Saline Solution for Inhalation 0.9%....It doesn't say hypertonic.
I found one on ebay.....why 7% is it so expensive....will 0.9 % solution work compare to 7% to thin sticky mucus? I have Modudose Saline Solution for Inhalation 0.9%....It doesn't say hypertonic.
sagittar
in
Lung Conditions Community Forum
6 years ago
Pain after egg collection
Hi ladies, I’d love some advice and feel so emotional today. I have no idea if what’s in experiencing is normal. I had my egg collection on Monday. As I came around from the sedation I was shaking with pain and pleading for pain relief. I also was so nauseous and vomited a few times. After several scans
Hi ladies, I’d love some advice and feel so emotional today. I have no idea if what’s in experiencing is normal. I had my egg collection on Monday. As I came around from the sedation I was shaking with pain and pleading for pain relief. I also was so nauseous and vomited a few times. After several scans
Alicefff
in
Fertility Network UK
6 years ago
Stage 3c ovarian cancer Nov 2016
Hey everyone. Good to get on this forum & hear of other people going through the same experiences. I had debulking surgery Dec 2016. The cancer had spread further than the CT scan showed so they had to remove my sigmoid colon, consequently I ended up with a colostomy bag. Started chemo in Jan 2017 &
Hey everyone. Good to get on this forum & hear of other people going through the same experiences. I had debulking surgery Dec 2016. The cancer had spread further than the CT scan showed so they had to remove my sigmoid colon, consequently I ended up with a colostomy bag. Started chemo in Jan 2017 &
Kayto77
in
My Ovacome
6 years ago
Long term side effects of Nebuliser daily with 7% Hypertonic Saline
I am new to this forum and recently diagnosed with Bronchiectasis with associated Lung Scarring.So trying to educate myself in order to deal with this killing disease Soi I do apologise, for writing so many new threads in short time I have lots of coughing including secretion in my lungs white to
I am new to this forum and recently diagnosed with Bronchiectasis with associated Lung Scarring.So trying to educate myself in order to deal with this killing disease Soi I do apologise, for writing so many new threads in short time I have lots of coughing including secretion in my lungs white to
enm1sg
in
Lung Conditions Community Forum
6 years ago
Nano-targeting treatment for prostate cancer
https://www.eurekalert.org/pub_releases/2017-11/aaop-ntf111017.php Public Release: 13-Nov-2017 Nano-targeting treatment for prostate cancer Novel delivery system targets cancerous bone lesions American Association of Pharmaceutical Scientists Metastatic or castrate-resistant prostate cancer can spread
https://www.eurekalert.org/pub_releases/2017-11/aaop-ntf111017.php Public Release: 13-Nov-2017 Nano-targeting treatment for prostate cancer Novel delivery system targets cancerous bone lesions American Association of Pharmaceutical Scientists Metastatic or castrate-resistant prostate cancer can spread
JLS1
in
Advanced Prostate Cancer
6 years ago
Peeling palm
Hey Ladies & Gents Writing or typing has been kinda out of bounds for me, so I’m sorry I haven’t been able to reply to my previous post replies, this large dry patch of peeling skin on my right hand (writing hand) started to bleed yesterday with movement so typing has been rather painful. I couldn
Hey Ladies & Gents Writing or typing has been kinda out of bounds for me, so I’m sorry I haven’t been able to reply to my previous post replies, this large dry patch of peeling skin on my right hand (writing hand) started to bleed yesterday with movement so typing has been rather painful. I couldn
LauraMk30
in
LUPUS UK
6 years ago
Can I take Milk thistle while on ocaliva
I have just recently been started on ocaliva due to poor response from URSO. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
I have just recently been started on ocaliva due to poor response from URSO. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
Gilz1702
in
PBC Foundation
6 years ago
A a a aaaachooo!!! 🤧
I'm sorry I've not been around for a few days, sincerely sorry. I have a cold. Poor lulu has developed the nasty flu virus that is doing the rounds right now and mine is trivial in comparison. If any of you are suffering I know it's a worrying time as often chesty coughs can make your chest tight and
I'm sorry I've not been around for a few days, sincerely sorry. I have a cold. Poor lulu has developed the nasty flu virus that is doing the rounds right now and mine is trivial in comparison. If any of you are suffering I know it's a worrying time as often chesty coughs can make your chest tight and
Janieliza
in
Anxiety and Depression Support
6 years ago
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