Search
Search
About
Log in
Join
Experiences with
Artificial saliva
Posts
Communities
835 public posts
Filter results
Hypersensitive veins
Hi, This is a bit of a weird question and most likely isn’t Lupus related but who knows. My whole life I’ve found blood tests extremely painful. I don’t mind injections and don’t have a needle phobia. I also find cannulas excruciating and find being put to sleep the most pain I’ve ever experienced
Hi, This is a bit of a weird question and most likely isn’t Lupus related but who knows. My whole life I’ve found blood tests extremely painful. I don’t mind injections and don’t have a needle phobia. I also find cannulas excruciating and find being put to sleep the most pain I’ve ever experienced
Jacbar
in
LUPUS UK
6 years ago
Ocaliva is working for me 🙌🏻🙌🏻
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO. I’m very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO. I’m very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Alison2306
in
PBC Foundation
6 years ago
Graves Disease - RAI 2005 - long term consequences.
Hi there, thank you in advance for reading the following :- Why would I experience symptoms of RAI some eight years post treatment ? For the last 4 years I became very unwell with no saliva and a dry and burning mouth. My dentist suggested Sjogrens and I was referred in 2015. This came back negative
Hi there, thank you in advance for reading the following :- Why would I experience symptoms of RAI some eight years post treatment ? For the last 4 years I became very unwell with no saliva and a dry and burning mouth. My dentist suggested Sjogrens and I was referred in 2015. This came back negative
pennyannie
in
Thyroid UK
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mucus clearance and breathe easy tips
Hi guys, I thought this would be a lovley topic for a Monday morning 😁. I am after advice please I have bronchiectasis and use a saline nebuliser and accapella to clear mucus, usually once a day each. For me it’s the key to how easy I can breathe and therefore really impacts my wellbeing (mental and
Hi guys, I thought this would be a lovley topic for a Monday morning 😁. I am after advice please I have bronchiectasis and use a saline nebuliser and accapella to clear mucus, usually once a day each. For me it’s the key to how easy I can breathe and therefore really impacts my wellbeing (mental and
NickD211
in
Bronchiectasis Support
6 years ago
Flonase
Ever have nasal pain I sure do cut dosage down to a few days a week tried saline little better!
Ever have nasal pain I sure do cut dosage down to a few days a week tried saline little better!
Peterkarljohnson
Asthma Captain
in
Living with Asthma
6 years ago
Dry mouth
Hi all Just looking for some advice. I have Sjögrens Syndrome and have suffered with dry mouth for quite a while but I feel it’s got much worse the past few weeks which is uncomfortable as I work in a call centre so constantly talking. I love water so I always drink plenty anyway, I have been chewing
Hi all Just looking for some advice. I have Sjögrens Syndrome and have suffered with dry mouth for quite a while but I feel it’s got much worse the past few weeks which is uncomfortable as I work in a call centre so constantly talking. I love water so I always drink plenty anyway, I have been chewing
Dani_7
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
PBC and newly started Ocaliva
PBC diagnosed aug 2013. At age 30 Started Ocaliva 9/4/18 Hoping this new medication along with the urso helps slow things down for me. My family....other half and out 2 girls age 6 and 8 mean the world to me and just for a little while would like to feel like me Anyone on ocaliva please feel free to
PBC diagnosed aug 2013. At age 30 Started Ocaliva 9/4/18 Hoping this new medication along with the urso helps slow things down for me. My family....other half and out 2 girls age 6 and 8 mean the world to me and just for a little while would like to feel like me Anyone on ocaliva please feel free to
Alison2306
in
PBC Foundation
6 years ago
New Omron U100 portable nebuliser?
Has anyone tried the new Omron portable nebuliser? The U100 ? I have been using the Omron u22, and tbo i have never been very happy with this nebuliser. I have gone through 3 units in less than 3 years (to be fair, the company have been very good replacing it when it has packed up) and it has always
Has anyone tried the new Omron portable nebuliser? The U100 ? I have been using the Omron u22, and tbo i have never been very happy with this nebuliser. I have gone through 3 units in less than 3 years (to be fair, the company have been very good replacing it when it has packed up) and it has always
Joan_Public
in
Asthma Community Forum
6 years ago
Micus
Hi hope you’re all trying to enjoy the sunshine, I was diagnosed 10 years ago with Copd and managed it quiet we’ll until developing liver problems which resulted in a successful liver transplant However, I am be devilled with a very productive cough which produces large quantities of phlegm which
Hi hope you’re all trying to enjoy the sunshine, I was diagnosed 10 years ago with Copd and managed it quiet we’ll until developing liver problems which resulted in a successful liver transplant However, I am be devilled with a very productive cough which produces large quantities of phlegm which
Dencos102
in
COPD Friends
6 years ago
Recent diagnosis of Bronchiectasis
Hi all, new person here! Looking for some advice/reassurance form those of you who’ve had Bronchiectasis for some time... I’m 27 years old and was diagnosed last April after being misdiagnosed with Asthma for 5 years previously. A bit unknown at the moment as to why I have Bronchiectasis as I’ve never
Hi all, new person here! Looking for some advice/reassurance form those of you who’ve had Bronchiectasis for some time... I’m 27 years old and was diagnosed last April after being misdiagnosed with Asthma for 5 years previously. A bit unknown at the moment as to why I have Bronchiectasis as I’ve never
redonyou
in
Bronchiectasis Support
6 years ago
Recent diagnosis of Bronchiectasis
Hi all, new person here! Looking for some advice/reassurance form those of you who’ve had Bronchiectasis for some time... I’m 27 years old and was diagnosed last April after being misdiagnosed with Asthma for 5 years previously. A bit unknown at the moment as to why I have Bronchiectasis as I’ve never
Hi all, new person here! Looking for some advice/reassurance form those of you who’ve had Bronchiectasis for some time... I’m 27 years old and was diagnosed last April after being misdiagnosed with Asthma for 5 years previously. A bit unknown at the moment as to why I have Bronchiectasis as I’ve never
redonyou
in
Lung Conditions Community Forum
6 years ago
I'm back ;) Advice re mother & functional B12 deficiency
Hiya! So it's been a while since I've visited these forums! I was diagnosed B12 deficient last July then when had SACD symptoms & NHS wouldn't treat me according to guidelines I started self-injecting in September. I also discovered Vit D deficiency, and in Jan I discovered I was taking too much B6 so
Hiya! So it's been a while since I've visited these forums! I was diagnosed B12 deficient last July then when had SACD symptoms & NHS wouldn't treat me according to guidelines I started self-injecting in September. I also discovered Vit D deficiency, and in Jan I discovered I was taking too much B6 so
Hidden
in
Pernicious Anaemia Society
6 years ago
Doctors Responses and Fear
Today I found out that they called my Fiances father to basically force him to decide to pull Tonys feeding tube out. Unfortunately for them he goes by whatever I say and he also wants the best for his son, a fighting chance. Ever since this has happened I have been more and more shocked at how the health
Today I found out that they called my Fiances father to basically force him to decide to pull Tonys feeding tube out. Unfortunately for them he goes by whatever I say and he also wants the best for his son, a fighting chance. Ever since this has happened I have been more and more shocked at how the health
HopeforTony
in
Headway
6 years ago
Reporting in.
Hello. I thought I’d post results of my appointment with specialist. Blood tests. ALP- 245, bilirubin - 16. AST & ALt both marginally elevated. Fibroscan is 9.5 so no change there. I continue to have substantial pain in my right upper abdomen which comes and goes. My specialist is ordering a colonoscopy
Hello. I thought I’d post results of my appointment with specialist. Blood tests. ALP- 245, bilirubin - 16. AST & ALt both marginally elevated. Fibroscan is 9.5 so no change there. I continue to have substantial pain in my right upper abdomen which comes and goes. My specialist is ordering a colonoscopy
Jeanb47
in
PBC Foundation
6 years ago
one old Emphysema sufferer
Im 84 live alone have so I'M told have C O P D had it for years i JUST BROUGHT A NEBULISER with out my Dr consent i need to know what and where i can get a saline solution the in hailers im using dont seem to work because i have bad catarrh that needs clearing i have been prescribed many pills and
Im 84 live alone have so I'M told have C O P D had it for years i JUST BROUGHT A NEBULISER with out my Dr consent i need to know what and where i can get a saline solution the in hailers im using dont seem to work because i have bad catarrh that needs clearing i have been prescribed many pills and
kensully
in
Lung Conditions Community Forum
6 years ago
Worried For Nothing
Today 3/30 I received my first infusion of ocrevus.....I could kick myself in the b--- for worrying like a fool the past few months while waiting for approval....If I didn't read the infusion bag myself I would think that I received saline solution... it was a walk in the park...absolutely no reaction
Today 3/30 I received my first infusion of ocrevus.....I could kick myself in the b--- for worrying like a fool the past few months while waiting for approval....If I didn't read the infusion bag myself I would think that I received saline solution... it was a walk in the park...absolutely no reaction
geoghegan
in
My MSAA Community
6 years ago
For people who did not respond to Urso, has Ocaliva had a more positive effect?
My partner has been taking Urso for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and urso has not been working. Anyway, the consultant has prescribed my partner with Ocaliva
My partner has been taking Urso for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and urso has not been working. Anyway, the consultant has prescribed my partner with Ocaliva
djws
in
PBC Foundation
6 years ago
Ready made B12 injections
Hi, Where can I buy ready made injections? Ines I don't have to mix with saline. Thank you in advance Victoria
Hi, Where can I buy ready made injections? Ines I don't have to mix with saline. Thank you in advance Victoria
Twilighthours72
in
Pernicious Anaemia Society
6 years ago
Hi. My name is Dena. I have PBC.
I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've mentioned before about having extreme itching and this is what I get when I scratch. I try to keep my fingernails cut short so I don't rip or
I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've mentioned before about having extreme itching and this is what I get when I scratch. I try to keep my fingernails cut short so I don't rip or
denabentley
in
PBC Foundation
6 years ago
12 week update on Ocaliva - plateau’ed.
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Ottley3
in
PBC Foundation
6 years ago
1
...
22
23
24
...
42
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
207 results
PBC Foundation
121 results
Asthma Community Forum
88 results
View top 10 communities
Sort by
Most Relevant
Newest