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Just some advice please š
Hi allĀ Hope your all doing well just after a bit of advice really but donāt want to make this long. Ā So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . Ā I have been on waiting list since 2021 and have had 2 pre ops . Ā My last physical examination was done in February
Hi allĀ Hope your all doing well just after a bit of advice really but donāt want to make this long. Ā So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . Ā I have been on waiting list since 2021 and have had 2 pre ops . Ā My last physical examination was done in February
Faithstar
in
Endometriosis UK
2 years ago
Told fibro but wasnt
Ive found out recently for sure that my so called fibromyalgia was a lack of estrogen caused first by the menopause, giving me many debiliating symptoms, and then when I had a hysterectomy it suddenly got far far worse, dangerously so. What worries me is that none of the doctors thought about what was
Ive found out recently for sure that my so called fibromyalgia was a lack of estrogen caused first by the menopause, giving me many debiliating symptoms, and then when I had a hysterectomy it suddenly got far far worse, dangerously so. What worries me is that none of the doctors thought about what was
amberbrown
in
Fibromyalgia Action UK
2 years ago
DBS Surgery #2, a personal essay
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
GaryTorch
in
Cure Parkinson's
2 years ago
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Pain returned after 7 years
I saw numerous doctors and the only diagnosis I ever received was reactive
arthritis
. After approximately 1 and half years the
pain
disappeared over the course of a few weeks. Since 2016 I was taking 100 mg of Tramadol every night which kept me basically pain free.
I saw numerous doctors and the only diagnosis I ever received was reactive
arthritis
. After approximately 1 and half years the
pain
disappeared over the course of a few weeks. Since 2016 I was taking 100 mg of Tramadol every night which kept me basically pain free.
Goose1235
in
Pain Concern
1 year ago
Glove update - GP appointment finally!
He reviewed my MRI scans and confirmed that apart from a bit of
arthritis
in C5 and C6 , which wouldn't account for the
pain
I experienced, there was nothing to see. I think he was about to tell me it was probably PD dystonia, but I beat him to it.
He reviewed my MRI scans and confirmed that apart from a bit of
arthritis
in C5 and C6 , which wouldn't account for the
pain
I experienced, there was nothing to see. I think he was about to tell me it was probably PD dystonia, but I beat him to it.
WinnieThePoo
in
Cure Parkinson's
11 months ago
Bruising on arms and legs
Can anyone give me advice on bruising on my legs and arms for no apparent reason. I have rheumatoid arthritis and currently attending hospital for it. Also Iāve just developed sausage toe in my big toe. Badly swollen and all bruised. Many Thanks.
Can anyone give me advice on bruising on my legs and arms for no apparent reason. I have rheumatoid arthritis and currently attending hospital for it. Also Iāve just developed sausage toe in my big toe. Badly swollen and all bruised. Many Thanks.
Catr12
in
Pain Concern
2 years ago
Rheumatoid Arthritis Mela
Join us on 13 October from 9:30am-4:00pm at Leicester Racecourse for our Rheumatoid Arthritis Mela event.Ā The event is open to anyone who has RA, as well as their family members, friends or carers. Youāll have an opportunity to talk to others with the condition, hear from our guest speakers and Heath
Join us on 13 October from 9:30am-4:00pm at Leicester Racecourse for our Rheumatoid Arthritis Mela event.Ā The event is open to anyone who has RA, as well as their family members, friends or carers. Youāll have an opportunity to talk to others with the condition, hear from our guest speakers and Heath
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Good-bye and thank you all
I have not been on here every week. Sometimes not for several weeks. But then when meds get changed and the cancer changes, I would come back on. Many of the ladies on here were helpful and gracious. They understood things that my friends could not even comprehend bc they were not the ones battling
I have not been on here every week. Sometimes not for several weeks. But then when meds get changed and the cancer changes, I would come back on. Many of the ladies on here were helpful and gracious. They understood things that my friends could not even comprehend bc they were not the ones battling
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
GCA, now PMR & Rheumatoid Arthritis as well
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which Iāve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which Iāve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hidden
in
PMRGCAuk
2 years ago
Carbamazepine and POP pill
I'm not sure what group to write this in but does anyone know about the interactions with carbamazepine and desogestrel. I'm taking the pop pill to stop my periods as they are horrendously heavy and painful. Now I'm about to start Carbamazepine for Trigeminal Neuralgia, I'm wondering if because the efficacy
I'm not sure what group to write this in but does anyone know about the interactions with carbamazepine and desogestrel. I'm taking the pop pill to stop my periods as they are horrendously heavy and painful. Now I'm about to start Carbamazepine for Trigeminal Neuralgia, I'm wondering if because the efficacy
Adora12
in
Pain Concern
2 years ago
ļ»ægot covid bad,do I stop arthritis meds.
ļ»æhi, been 3 days since tested positive on lateral flow. I'm currently on benepali and strong pain killers though the illness is bizarrely making it less painful to move. This version is supposed to be just a cold but I feel alot worse. Does anyone know about biologics. Should I stop?
ļ»æhi, been 3 days since tested positive on lateral flow. I'm currently on benepali and strong pain killers though the illness is bizarrely making it less painful to move. This version is supposed to be just a cold but I feel alot worse. Does anyone know about biologics. Should I stop?
RootsToots
in
NRAS
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but canāt tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but canāt tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
Amazon smile....
When i buy from Amazon I use amazon smile. I can't do a lot for charites, but i can do this. xxxx Dear Mrs sylvia Reynolds, This is your quarterly AmazonSmile donation notification. Your chosen charity, The National Rheumatoid Arthritis Society, recently received a quarterly donation of Ā£562.56
When i buy from Amazon I use amazon smile. I can't do a lot for charites, but i can do this. xxxx Dear Mrs sylvia Reynolds, This is your quarterly AmazonSmile donation notification. Your chosen charity, The National Rheumatoid Arthritis Society, recently received a quarterly donation of Ā£562.56
sylvi
in
NRAS
2 years ago
TENS Machines and AF
Hi, I recently posted about painkillers (for Femoral Nerve pain in my case) and the myriad potential side effects including heart rhythm problems, which put me off taking any painkillers at all. At an appointment with a physiotherapist today I asked if a home TENS Machine could be used to alleviate
Hi, I recently posted about painkillers (for Femoral Nerve pain in my case) and the myriad potential side effects including heart rhythm problems, which put me off taking any painkillers at all. At an appointment with a physiotherapist today I asked if a home TENS Machine could be used to alleviate
BuckleyBoy
in
AF Association
2 years ago
Magnetic resonance therapy (MBST) for Osteoporosis
This was developed in Germany for treatment of musculoskeletal problems such as
arthritis
, tendinitis, spine
pain
, and there are a few studies on osteoporosis.
This was developed in Germany for treatment of musculoskeletal problems such as
arthritis
, tendinitis, spine
pain
, and there are a few studies on osteoporosis.
MAosteo
in
Bone Health and Osteoporosis UK
1 year ago
Low ESR and CRP levems
Hi all, I'm wondering if anyone can explain to me why some people get high ESR and CRP readings and some don't?! I'm one of the don'ts! I have been in such awful amount of pain and had my bloods done in advance of my rheumatologist appt next week. My ESR came in at 41 and CRP at 33, both essentially
Hi all, I'm wondering if anyone can explain to me why some people get high ESR and CRP readings and some don't?! I'm one of the don'ts! I have been in such awful amount of pain and had my bloods done in advance of my rheumatologist appt next week. My ESR came in at 41 and CRP at 33, both essentially
watercolours
in
PMRGCAuk
2 years ago
please help. Desperate.
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ šĀ Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ šĀ Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
AshB66
in
LUPUS UK
2 years ago
please - can somebody help?
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ š Ā Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ š Ā Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
AshB66
in
Cloudy with a Chance of Pain
2 years ago
please somebody help me - Iām at a loss.
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ š Ā Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
Before I start, this is definitely going to be a long winded one but stay with me here if you canĀ š Ā Iām absolutely desperate for some kind of answers, advice, similar experiences - literally anything to make me feel like Iām not going completely insane.Ā Iāve just turned 27 last month, I have 4 children
AshB66
in
Foggy's "Invisible Illness" Support
2 years ago
ļ»æWhich Artritis
šļ»æone of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
šļ»æone of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
SunnyWorld
in
Arthritis Action
2 years ago
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