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SOS for advice please
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
Lisannn
in
Osteoporosis Support
3 months ago
Muscle or arthritis pain right leg?
I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred from 6mg to 5mg reducing by 1mg per month. All been fine but am now getting pain in my calf and right side of knee and middle/upper thigh. Sometimes get severe piercing pain (usually middle of night). No other symptoms
I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred from 6mg to 5mg reducing by 1mg per month. All been fine but am now getting pain in my calf and right side of knee and middle/upper thigh. Sometimes get severe piercing pain (usually middle of night). No other symptoms
Galore
in
PMRGCAuk
1 year ago
How to cope
I need to know why doctors are so afraid to prescribe effective pain medication to patients with no history of drug abuse when the patients pain is interfering with daily living needs such as bathing.
I need to know why doctors are so afraid to prescribe effective pain medication to patients with no history of drug abuse when the patients pain is interfering with daily living needs such as bathing.
Downinil
in
Pain Concern
4 months ago
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Feeling low
I gave bipolar 2 so feel low a lot of the time anyway. Developed Arthritis of knees this year and depression is a lot worse because of the pain.
I gave bipolar 2 so feel low a lot of the time anyway. Developed Arthritis of knees this year and depression is a lot worse because of the pain.
Hatearthritis
in
Arthritis Action
10 months ago
Nasal flu vaccine transmission
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
Grizzly-bear
in
Vasculitis UK
10 months ago
Psoriatic arthritis
Hi everyone. So, after a year and a half of worsening joint pain and numerous tests, a rheumatologist has diagnosed me with early psoriatic arthritis and prescribed methotrexate. My concern is that nothing whatsoever has ever shown up on any tests. ESR and CRP are low (lower than normal actually).
Hi everyone. So, after a year and a half of worsening joint pain and numerous tests, a rheumatologist has diagnosed me with early psoriatic arthritis and prescribed methotrexate. My concern is that nothing whatsoever has ever shown up on any tests. ESR and CRP are low (lower than normal actually).
Snowy86
in
Beyond Psoriasis
10 months ago
Am I right to suspect endometriosis and ask to see a private specialist?
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
pinkie25
in
Endometriosis UK
4 months ago
Why don’t my Family understand what Fibro does to me?
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Tisme72
in
Fibromyalgia Action UK
4 months ago
Pain Relief that isn’t opiate based. Help!
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
Littlefluffycloud
in
My Ovacome
4 months ago
possibly arthritis
hi, I’ve not been diagnosed with anything yet. For a while I’ve noticed my fingers a little uncomfortable on a morning when making a fist. For the past maybe 2/3 months I’ve now noticed more uncomfortableness in my left hand , the knuckle at base of little finger and wedding finger hurt to bend after
hi, I’ve not been diagnosed with anything yet. For a while I’ve noticed my fingers a little uncomfortable on a morning when making a fist. For the past maybe 2/3 months I’ve now noticed more uncomfortableness in my left hand , the knuckle at base of little finger and wedding finger hurt to bend after
Starry1977
in
Arthritis Action
10 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
3 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
4 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
4 months ago
A reply to Wasabigirl’s post about PID (?) which has since been deleted
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
Standup808
in
Pelvic Pain Support Network
4 months ago
Fibromyalgia similar symptoms.
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
mag123ben
in
MPN Voice
4 months ago
rheumatoid arthritis
Hi I’m Lynne. I’ve had Rheumatoid Arthritis for around 5 years. I’m on (tocilizumab) and Methotrexate injections once a week plus 10 mg steroids . I’ve had lots of falls because of my knee giving way. I’m trying to build up my muscles but finding this difficult because I’ve got a tear in shoulder from
Hi I’m Lynne. I’ve had Rheumatoid Arthritis for around 5 years. I’m on (tocilizumab) and Methotrexate injections once a week plus 10 mg steroids . I’ve had lots of falls because of my knee giving way. I’m trying to build up my muscles but finding this difficult because I’ve got a tear in shoulder from
linnypin1
in
NRAS
7 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Is it PMR?
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Everett19
in
PMRGCAuk
4 months ago
Statin and very bad calf pain in right leg
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
Catloveruk
in
Fibromyalgia Action UK
4 months ago
adalimumab/amgevita
been taking this now for almost a year and in fairness it’s dampened down my RA apart from my knee with its OA What I have noticed over time is a now very prone to “hives” and a raised light pink rash has settled on my left forearm… pics below. Has anyone else noticed anything similar effects on their
been taking this now for almost a year and in fairness it’s dampened down my RA apart from my knee with its OA What I have noticed over time is a now very prone to “hives” and a raised light pink rash has settled on my left forearm… pics below. Has anyone else noticed anything similar effects on their
TheBoys
in
NRAS
7 months ago
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