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Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
3 hours ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
4 days ago
Want to tell Rheumy to Jog on Or not
waiting on phone appointment like 5 mins ago. just get letter says as loads of bollocks, basically as CCP and RF neg it's osteo with a bit of inflammation, letter says wants to try cortisone injections and if it helps she'll consider hydroxychloroquine, not what I remembered but I was quite angry.
waiting on phone appointment like 5 mins ago. just get letter says as loads of bollocks, basically as CCP and RF neg it's osteo with a bit of inflammation, letter says wants to try cortisone injections and if it helps she'll consider hydroxychloroquine, not what I remembered but I was quite angry.
Polo22
in
Thyroid UK
2 months ago
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So fed up
Hi, I've got osteoarthritis and it's getting to the point where the can't enjoy everyday things. I can't walk far without both hips burning. My ankles aching. Can't pick things up without dropping them. Back aches, neck aches, knee pain and now I can't use my right arm as my shoulder joint is extremely
Hi, I've got osteoarthritis and it's getting to the point where the can't enjoy everyday things. I can't walk far without both hips burning. My ankles aching. Can't pick things up without dropping them. Back aches, neck aches, knee pain and now I can't use my right arm as my shoulder joint is extremely
AngelicUpstart
in
Osteoarthritis Action
2 months ago
rheumatoid arthritis
Hi I’m Lynne. I’ve had Rheumatoid Arthritis for around 5 years. I’m on (tocilizumab) and Methotrexate injections once a week plus 10 mg steroids . I’ve had lots of falls because of my knee giving way. I’m trying to build up my muscles but finding this difficult because I’ve got a tear in shoulder from
Hi I’m Lynne. I’ve had Rheumatoid Arthritis for around 5 years. I’m on (tocilizumab) and Methotrexate injections once a week plus 10 mg steroids . I’ve had lots of falls because of my knee giving way. I’m trying to build up my muscles but finding this difficult because I’ve got a tear in shoulder from
linnypin1
in
NRAS
6 months ago
Consultant won’t operate for pain.
Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I daren’t leave the house, I was finally deemed ‘old enough’ for a referral to the gynaecologist (I’m 31 and have been told my entire life by medical
Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I daren’t leave the house, I was finally deemed ‘old enough’ for a referral to the gynaecologist (I’m 31 and have been told my entire life by medical
Pecanpie11
in
Endometriosis UK
2 months ago
Disappointed and worried
Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year by G.P who started me on 15mg Prednisolone, and a miracle happened. I also explained that unfortunately, I have been unable to successfully reduce
Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year by G.P who started me on 15mg Prednisolone, and a miracle happened. I also explained that unfortunately, I have been unable to successfully reduce
Cooper02
in
PMRGCAuk
2 months ago
Broken right clavicle, 2011, even now shoulder blade pops out, and...
In 2011 I had a seizure, and 'hurt' my shoulder, went down to A&E and had it X-rayed, gave me a couple of pain killers, 'pushed' me off home,🙄 and went back to watching a certain royal wedding, 6 days later, they rang me back telling me to come back, showed me the x-ray and indeed had broken clavicle
In 2011 I had a seizure, and 'hurt' my shoulder, went down to A&E and had it X-rayed, gave me a couple of pain killers, 'pushed' me off home,🙄 and went back to watching a certain royal wedding, 6 days later, they rang me back telling me to come back, showed me the x-ray and indeed had broken clavicle
Adlon57
in
Bone Health and Osteoporosis UK
2 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
19 days ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
21 days ago
My father died after spending 2 weeks in a coma due severe sepsis and multi organ failure. I love him so much.
He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU
He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU
Pluto8
in
ICUsteps
2 months ago
Could pain under my ribs be endometriosis?
Hi, firstly thank you for your help I feel like reading some of these threads I finally feel like I may have an answer and feel slightly less like I am going mad! I have been experiencing pain under my ribs, my arms and right shoulder/ back for around 8 months now. This is worse when I eat cheese or
Hi, firstly thank you for your help I feel like reading some of these threads I finally feel like I may have an answer and feel slightly less like I am going mad! I have been experiencing pain under my ribs, my arms and right shoulder/ back for around 8 months now. This is worse when I eat cheese or
Pastamiss
in
Endometriosis UK
2 months ago
adalimumab/amgevita
been taking this now for almost a year and in fairness it’s dampened down my RA apart from my knee with its OA What I have noticed over time is a now very prone to “hives” and a raised light pink rash has settled on my left forearm… pics below. Has anyone else noticed anything similar effects on their
been taking this now for almost a year and in fairness it’s dampened down my RA apart from my knee with its OA What I have noticed over time is a now very prone to “hives” and a raised light pink rash has settled on my left forearm… pics below. Has anyone else noticed anything similar effects on their
TheBoys
in
NRAS
6 months ago
Need Relief
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
TVspike
in
Chronic Pancreatitis Support
2 months ago
Effective pain relief
Hi all,I was diagnosed with endometriosis back in December 2023 they ablated it during the laproscopy I recovered well but now I am back in a lot of pain :( I get the pain mostly in my pelvic area and right flank. I started to think the right flank pain was maybe coming from my kidney as I've had issues
Hi all,I was diagnosed with endometriosis back in December 2023 they ablated it during the laproscopy I recovered well but now I am back in a lot of pain :( I get the pain mostly in my pelvic area and right flank. I started to think the right flank pain was maybe coming from my kidney as I've had issues
Dellz1996
in
Endometriosis UK
2 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
1 month ago
Don't know what to do?
Hi all, I'm 41 and never had painful periods up until 2 periods ago. The awful pain is everyday not just on my period so I feel like I've got period cramps all day every day. Some day I'm ok and pain free maybe 2 a week. I had a vaginal ultrasound and only showed a small fibroid it had reduced from
Hi all, I'm 41 and never had painful periods up until 2 periods ago. The awful pain is everyday not just on my period so I feel like I've got period cramps all day every day. Some day I'm ok and pain free maybe 2 a week. I had a vaginal ultrasound and only showed a small fibroid it had reduced from
Contra21
in
Endometriosis UK
2 months ago
introduction
Good afternoon, my name is Dori1 and I’ve just joined the forum to learn a little bit more. I don’t live in the UK, I live in Spain. Iv’e been reading your experiences and I’d like to share my journey so far. I went to my GP in the middle of February with a pain under my right arm moving to my rib
Good afternoon, my name is Dori1 and I’ve just joined the forum to learn a little bit more. I don’t live in the UK, I live in Spain. Iv’e been reading your experiences and I’d like to share my journey so far. I went to my GP in the middle of February with a pain under my right arm moving to my rib
Dori1
in
British Heart Foundation
2 months ago
Work and Endo/Adeno
A little advice needed: I left my job back in January due to symptoms being at a point hat I wasn't fit to go to work, and being a high-stress job I wonder if that exacerbated my symptoms....? On the road most of the day, sales environment, 50hrs a week, pressure to hit targets, male dominated (so a
A little advice needed: I left my job back in January due to symptoms being at a point hat I wasn't fit to go to work, and being a high-stress job I wonder if that exacerbated my symptoms....? On the road most of the day, sales environment, 50hrs a week, pressure to hit targets, male dominated (so a
fed_up_of_endo
in
Endometriosis UK
2 months ago
pain killers
I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising pain. I am aware of the non compatibility of some pain killers but I can't sleep or walk with this pain. What is the strongest one advisable? Yes
I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising pain. I am aware of the non compatibility of some pain killers but I can't sleep or walk with this pain. What is the strongest one advisable? Yes
Trovatello
in
PMRGCAuk
2 months ago
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