aches and pains

[She773]

for the last few weeks I’ve been having aches and pains progressively getting worse and today I’m in ‘painkiller required’ pain.

i was diagnosed with low vit D on Fri (level was 26) but couldn’t speak with Dr as it was late in the day (can’t complain bloods were done Friday morning and back PM same day) is it likely to ge the cause of pain?

mum also losing ridiculous amount of hair the last two weeks.

I’m on block and replace , nurse said I’m subclinical - levels going in the right direction

anyone else had this deficiency? How did it manifest?

Oh sorry I have Graves and TED

thanks

[NewbieHyper]

Hello, I was diagnosed with Graves in October2023. My major symptom was muscle pain in my feet which then progressed to chest pain. Now I notice that my ankle joint pain and swelling gets worse when I'm not getting enough rest and/or stressed. I think fatigue and stress affects my thyroid hormone levels.

My levels are now in normal range, I'm on 5mg carbimazole daily.

I think a retest of your levels might be needed.

[SlowDragon Administrator]

welcome to the forum

How long have you been on Block and replace

How much levothyroxine are you taking, and is it always same brand

What were last thyroid and vitamin test results

How long ago was last test

Get thyroid levels retested, plus B12, folate and ferritin

Vitamin D is very low at 26nmol

GP should prescribe loading dose vitamin D

[pennyannie]

Hello She773 and welcome to the forum :

Graves is an chronic auto immune disease and generally only gets diagnosed when your immune decides to attack your thyroid and/ or eyes as we can't live well without either of these major organs.

There is no cure for this AI disease and since Graves is considered life threatening if not treated an Anti thyroid drug is prescribed so to semi block your own new, daily production of the T3 and T4 thyroid hormones.

In this way we stop the T3 and T4 rising higher and higher, causing additional unnecessary pressure on your heart - while we wait for the immune system to calm down and hopefully your thyroid return to normal function without the need for any medication.

So a bit like a plane put into a holding position in the air, while waiting for a landing slot.

Once on the AT drug, you should be regularly monitored and your AT drug adjusted - probably down, as your T3 and T4 levels fall back down into range.

On Block and Replace - your dose of the AT drug is increased to fully block your own new daily thyroid hormone production BUT a dose of T4 thyroid hormone is prescribed so your your T3 and T4 do not fall too far through the ranges causing the equally, if not worse symptoms of hypothyroidism.

Hyperthyroidism and hypothyroidism are the extreme opposite ends of the T3 range -

too high a T3 for you - and your have hyper type symptoms just as too low a level of T3 for you and you will experience symptoms of hypothyroid -

and aches and pains sit very well with too low a T3 for you to function, along with a multitude of other disabling symptoms - which you can find listed within Thyroid UK - thyroiduk.org - the charity which supports this forum.

When metabolism is running too fast when hyper - or too slow when hypo - the body struggles to extract key nutrients through food and if ones core strength of ferritin, folate, B12 and vitamin D are not maintained at optimal levels these can impact and compound your health further than necessary.

Can you please share your results/readings at diagnosis - the TSH - T3 and T4 along with the antibody found in your blood which is the proof of diagnosis and on which your treatment is based.

Can we have a bit more information please :

All things Graves Disease - Elaine Moore's books and website - elaine-moore.com

Most recent research :-

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

[She773]

thanks for your replies

My bloods have ‘normalised’ the nurse said

My TSH is now 0.3

My t4 is 21

Not sure of ranges it was a phone call so waiting for results to come in

she said she thinks here is something else going on and to consult GP so

I have spoken to him

And getting more Bloods done for additional autoimmune and deficiencies

[pennyannie in reply to She773]

Any new information deserves a new post/question - as we answer as fully as possible when a question is first posted and then have to move on as the volume of questions dictate and do not look back at what we consider ' an old post ' from 8 months ago :

Please get copies of all your blood tests so we can track your progress on the AT drug and better understand - what the nurse meant - and what the what blood tests the doctor has now decided to run.

Hopefully these blood tests will include TSH, Free T3 and Free T4 readings / ranges -

and we are still waiting on the results and ranges of your core strength vitamins and minerals of ferritin, folate, B12 and vitamin D as I'm afraid ' normal '' mean in the range - and very little when ranges are too wide to even be sensible.