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Experiences with
Arrhythmogenic right ventricular cardiomyopathy (ARVC)
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Raised heart rate and regular ectopics
I was diagnosed with RVOT in 2013 and have had PVCs for years. Over the past few weeks I’vd had regular bouts of increased heart rate - between 80s and mid 90s - for up to 2 hours at a time, (that’s high for me) with thumping ectopics. This is scary. I take Flecainide and Verapamil and can’t help thinking
I was diagnosed with RVOT in 2013 and have had PVCs for years. Over the past few weeks I’vd had regular bouts of increased heart rate - between 80s and mid 90s - for up to 2 hours at a time, (that’s high for me) with thumping ectopics. This is scary. I take Flecainide and Verapamil and can’t help thinking
Bedlington14
in
Arrhythmia Alliance
4 years ago
T3 still below mid range - advice on dosage please
Hi, Here are my recent results, please can you advise on dosage or any other tweaks you'd make. I have Hashi's and have been on 75mcg Levo and 2x10mcg lio for over 3 months. I have mostly been feeling ok, definitely no hyper symptoms but some lingering hypo symptoms e.g. brain fog, feeling cold and
Hi, Here are my recent results, please can you advise on dosage or any other tweaks you'd make. I have Hashi's and have been on 75mcg Levo and 2x10mcg lio for over 3 months. I have mostly been feeling ok, definitely no hyper symptoms but some lingering hypo symptoms e.g. brain fog, feeling cold and
Hashi-hacker
in
Thyroid UK
4 years ago
Heart problems, stomach problems...normal tests.
So, about 3 months ago I was hospitalized with sepsis. I was hooked to an IV for 3 weeks with constant daily antibiotics. Ever since I've been out of the hospital, I've had a lot of strange issues with my heart...and now my stomach. As far as my heart goes, it started with bouts of rapid heartbeat or
So, about 3 months ago I was hospitalized with sepsis. I was hooked to an IV for 3 weeks with constant daily antibiotics. Ever since I've been out of the hospital, I've had a lot of strange issues with my heart...and now my stomach. As far as my heart goes, it started with bouts of rapid heartbeat or
Notorious_Nick
in
Arrhythmia Alliance
4 years ago
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Blood test shows high potassium
Hi everyone, I posted recently about concerns about endocarditis. I had a blood test for that on Tuesday and the surgery rang a few minutes ago to say it showed my potassium levels were high at 5.5 and could I repeat the blood test in a month’s time. The surgery’s now closed so of course no Doctors are
Hi everyone, I posted recently about concerns about endocarditis. I had a blood test for that on Tuesday and the surgery rang a few minutes ago to say it showed my potassium levels were high at 5.5 and could I repeat the blood test in a month’s time. The surgery’s now closed so of course no Doctors are
Bedlington14
in
British Heart Foundation
4 years ago
A light-sensitive protein can restore mitochondria function...
https://finance.yahoo.com/news/juntendo-university-research-light-activated-070200216.html Trying to understand if this is relevant to existing light therapies.
https://finance.yahoo.com/news/juntendo-university-research-light-activated-070200216.html Trying to understand if this is relevant to existing light therapies.
pvw2
in
Cure Parkinson's
4 years ago
Endocarditis concerns
I have leaky heart valves (Mitral and Tricuspid) and am very worried at the moment about Endocarditis. I haven’t got a temperature, but have had mild, cold-like symptoms on and off for a few weeks, with the occasional night sweat and occasional shivering. None of these are permanent, and I’ve been getting
I have leaky heart valves (Mitral and Tricuspid) and am very worried at the moment about Endocarditis. I haven’t got a temperature, but have had mild, cold-like symptoms on and off for a few weeks, with the occasional night sweat and occasional shivering. None of these are permanent, and I’ve been getting
Bedlington14
in
British Heart Foundation
4 years ago
Makes me feel off
Hi Has anyone heard of this I get PVA PVCs but what really worries me is a very quick like missed beat only lasts a split second.I always burp not long after and I feel weak and disorientated after it and takes quite a while for me to start to feel normal again.Makes me want to lie down to recover.But
Hi Has anyone heard of this I get PVA PVCs but what really worries me is a very quick like missed beat only lasts a split second.I always burp not long after and I feel weak and disorientated after it and takes quite a while for me to start to feel normal again.Makes me want to lie down to recover.But
Marty0001
in
Arrhythmia Alliance
4 years ago
Heart beat irregularity, mostly extra beats when I get up, turn to the side in the morning or breath in very deeply. Anyone experience this?
HI so the last week I've been sleeping so so and getting up in the night. I've since then lowered my stress and get to bed earlier and found a way to sleep more soundly to completely decompress my body. However I noticed that on those days where I slept like crap thenight before, a few things happen
HI so the last week I've been sleeping so so and getting up in the night. I've since then lowered my stress and get to bed earlier and found a way to sleep more soundly to completely decompress my body. However I noticed that on those days where I slept like crap thenight before, a few things happen
braziljjay
in
Arrhythmia Alliance
4 years ago
pvc after stopping meds
Hi guys It’s me again sorry to bother you but I would appreciate if any one could tell me their experience after stopping bisoprolol as my ventricular ectopics become so frequent since i stopped them I’m having 4 to 6 / min or more sometimes ! Thank you very much in advance
Hi guys It’s me again sorry to bother you but I would appreciate if any one could tell me their experience after stopping bisoprolol as my ventricular ectopics become so frequent since i stopped them I’m having 4 to 6 / min or more sometimes ! Thank you very much in advance
falah12345
in
AF Association
4 years ago
Hyper Aware of Heart now w/ PVC's
So i have had PVC's for going on 14 years, 37 Y/O Male, Normal weight I had a holter monitor done in 08' and it showed 6600 PVC's in 24h after starting 240mg verapamil, later that year they just vanished. I maybe had a handful or two in 24h, a drastic change. in 2018 i wanted to get off verapamil because
So i have had PVC's for going on 14 years, 37 Y/O Male, Normal weight I had a holter monitor done in 08' and it showed 6600 PVC's in 24h after starting 240mg verapamil, later that year they just vanished. I maybe had a handful or two in 24h, a drastic change. in 2018 i wanted to get off verapamil because
Kyomag
in
British Heart Foundation
4 years ago
Back in A&E last night!
Hey guys, Well since May 2018 I have been doing reasonably well in that I’ve not had to attend a hospital Emergency room for any cardiac related matters. But that changed yesterday. For the last couple of weeks I’ve been experiencing changes in my heart behaviour. From PVC’s to SVT and extended bouts
Hey guys, Well since May 2018 I have been doing reasonably well in that I’ve not had to attend a hospital Emergency room for any cardiac related matters. But that changed yesterday. For the last couple of weeks I’ve been experiencing changes in my heart behaviour. From PVC’s to SVT and extended bouts
Dangerousdriver
in
Atrial Fibrillation Support
4 years ago
27 years old, starting sotalol. Any experience?
Hey guys, so I'm 27 years old and 4 years post op for bicuspid aortic valve disease. A year ago I was running 6 miles a day healthy as can be, when suddenly I started to get PVCs. They would quickly progress so fast that I get them constantly, almost every beat when I'm mobile. They're symptomatic and
Hey guys, so I'm 27 years old and 4 years post op for bicuspid aortic valve disease. A year ago I was running 6 miles a day healthy as can be, when suddenly I started to get PVCs. They would quickly progress so fast that I get them constantly, almost every beat when I'm mobile. They're symptomatic and
zimbogon
in
British Heart Foundation
4 years ago
Low Laser Light Therapy
Has anyone tried Low Laser Light Therapy for PHN pain? Someone has suggested it to me. I am in the UK and can't find any practitioners listed on Google. Advice please.
Has anyone tried Low Laser Light Therapy for PHN pain? Someone has suggested it to me. I am in the UK and can't find any practitioners listed on Google. Advice please.
Crystalbowl
in
Pain Concern
4 years ago
Continuous PVCS
Ahhhh! These pvcs are driving me insane. I've had them very frequently now for 3 years. The last year has been hell. Went to the doctor many times, had a few EKGS, echocardiogram, and many bloodwork orders. I have high bp, and on 1 med for that. I'm sure its anxiety related as well as I'm about 30lbs
Ahhhh! These pvcs are driving me insane. I've had them very frequently now for 3 years. The last year has been hell. Went to the doctor many times, had a few EKGS, echocardiogram, and many bloodwork orders. I have high bp, and on 1 med for that. I'm sure its anxiety related as well as I'm about 30lbs
Hidden
in
Anxiety Support
4 years ago
Blue light therapy
Hi, someone put on about this the other day, and I was wondering if you had done any more about it? I can't find it now! I googled it, but all it seemed to say was that it was for acne and other skin complaints. Also SAD, that people get in the winter. does anyone know if it helps with a brain injury
Hi, someone put on about this the other day, and I was wondering if you had done any more about it? I can't find it now! I googled it, but all it seemed to say was that it was for acne and other skin complaints. Also SAD, that people get in the winter. does anyone know if it helps with a brain injury
FlowerPower62
in
Headway
4 years ago
Light therapy helping Alzheimer's
Initial results from this light therapy study are encouraging with daily treatments seeing Alzheimer patients regaining memory as well as reading and writing skills over a three month period. The light therapy is said to activate immune cells which fight inactivity and plaque build-up, something that
Initial results from this light therapy study are encouraging with daily treatments seeing Alzheimer patients regaining memory as well as reading and writing skills over a three month period. The light therapy is said to activate immune cells which fight inactivity and plaque build-up, something that
HelenPSPA
in
PSP Association
4 years ago
26 Years Old With AF (Very Symptomatic) Can anyone relate or help please. (Im desperate) x
Hi everyone sorry for the long story. I am 26 years old and was diagnosed with Paroxysmal Atrial Fibrillation 3 Years ago. What happened was I woke up from sleeping with what I can only describe as what felt like a heart attack/pressure/unbearable discomfort. ( Not just like an irregular heartbeat that
Hi everyone sorry for the long story. I am 26 years old and was diagnosed with Paroxysmal Atrial Fibrillation 3 Years ago. What happened was I woke up from sleeping with what I can only describe as what felt like a heart attack/pressure/unbearable discomfort. ( Not just like an irregular heartbeat that
Danlovell
in
AF Association
4 years ago
Pvcs
Hi all Does anyone here get pvcs also known as heart palpitations. I’ve dealt with them on and off for over 10 years. This time around they’ve seem to want to stay. They started back up around late March and have gotten worse over the year. Since March I’ve had multiple ekgs, blood tests, chest X-rays
Hi all Does anyone here get pvcs also known as heart palpitations. I’ve dealt with them on and off for over 10 years. This time around they’ve seem to want to stay. They started back up around late March and have gotten worse over the year. Since March I’ve had multiple ekgs, blood tests, chest X-rays
Ceelos81
in
Anxiety and Depression Support
4 years ago
PVCs worse with IBS
Hi guys Just wondering if anyone has experienced an increase in their PVCs when having IBS or general stomach upsets. Mine are definitely much worse when I am bloated or have a flare up of Irritable Bowel Syndrome. Thank you
Hi guys Just wondering if anyone has experienced an increase in their PVCs when having IBS or general stomach upsets. Mine are definitely much worse when I am bloated or have a flare up of Irritable Bowel Syndrome. Thank you
blue2900
in
Arrhythmia Alliance
4 years ago
Hashimotos and Ectopic heartbeats
Hi everyone. I'm a 39 Yr old male. I have been diagnosed with Hashimotos Hypothyroidism for the past 10yrs. I take 100mcg levothyroxine daily and my thyroid profiles are stable. For the past 2-3 yrs I have been experiencing some ectopic heartbeats throughout the day. Some days I may have a few and others
Hi everyone. I'm a 39 Yr old male. I have been diagnosed with Hashimotos Hypothyroidism for the past 10yrs. I take 100mcg levothyroxine daily and my thyroid profiles are stable. For the past 2-3 yrs I have been experiencing some ectopic heartbeats throughout the day. Some days I may have a few and others
HypoM
in
Thyroid UK
4 years ago
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