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Experiences with
Arrhythmogenic right ventricular cardiomyopathy (ARVC)
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Looking for other young people with ARVC
Hello, I'm 31 years old and currently trying to come to terms with a probably diagnosis of
Arrhythmogenic
right
ventricular
cardiomyopathy
. I'd like to connect with any other young people with this condition, for advice and moral support. Is there anyone here with the same condition? Thanks
Hello, I'm 31 years old and currently trying to come to terms with a probably diagnosis of
Arrhythmogenic
right
ventricular
cardiomyopathy
. I'd like to connect with any other young people with this condition, for advice and moral support. Is there anyone here with the same condition? Thanks
LoveRunning22
in
British Heart Foundation
10 months ago
Planet Fitness Whole Body Enhancement machine
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
wasenior
in
Osteoporosis Support
27 days ago
Inflammatory Arthritis
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
rms3377
in
NRAS
1 month ago
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Hi there, I'm Weng , 57, from Singapore. Last year, I was told by my neurologist that I have PD. The news came when I was about to retire. My goal is stay off medication and continue living a normal life. I have made a lot of lifestyle change since that fateful day. Things I do to help myself: brisk
Hi there, I'm Weng , 57, from Singapore. Last year, I was told by my neurologist that I have PD. The news came when I was about to retire. My goal is stay off medication and continue living a normal life. I have made a lot of lifestyle change since that fateful day. Things I do to help myself: brisk
Weng888
in
Cure Parkinson's
1 month ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
2 months ago
My DIY red light therapy / photobiomodulation helmet build. If you have built one and would like to share pictures please do.
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
Glenfarclas
in
Cure Parkinson's
2 months ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
3 months ago
Supporting evidence for PIP
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
Gulfstream_Maggie
in
Fibromyalgia Action UK
3 months ago
Holistic POSITIVE results
Hello, I was dx with PD in 2019. I’ve progressed to stage 3 and have tried a lot of synthetic meds. I wont take tgem if the side effects worsen my current symptoms. That excludes most. I have read a million articles on new and upcoming tests and trials. I’m tired of chasing the rabbit. Although I cant
Hello, I was dx with PD in 2019. I’ve progressed to stage 3 and have tried a lot of synthetic meds. I wont take tgem if the side effects worsen my current symptoms. That excludes most. I have read a million articles on new and upcoming tests and trials. I’m tired of chasing the rabbit. Although I cant
GigiOf8
in
Cure Parkinson's
3 months ago
Webinar: Exploring Valeda light therapy for AMD
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
red light therapy
Hi I have been looking into the benefits of red light therapy for muscle issues and wondered if anyone had tried this - I can’t see any contradictions with hydroxi and will be mainly using this on my neck , upper back and thyroid areas - I know this won’t help ET as such but using for other issues.
Hi I have been looking into the benefits of red light therapy for muscle issues and wondered if anyone had tried this - I can’t see any contradictions with hydroxi and will be mainly using this on my neck , upper back and thyroid areas - I know this won’t help ET as such but using for other issues.
BeckyDing
in
MPN Voice
3 months ago
Photopharmics kickstarts phototherapy trial for Parkinson’s disease
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
Farooqji
in
Cure Parkinson's
5 months ago
Any successful treatment with red light therapy for peripheral neuropathy?
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
1jay
in
Neuropathy Support
5 months ago
Incontinence - A major problem
I have had Parkinson's since the spring of 2014. I had my first major fall (any fall that requires a trip to the ER) in Oct. of 2018, and I have gone downhill since that night. The Parkinson's symptom that's keeping me from leading a normal life is a freezing gait, although I do have overall tightness
I have had Parkinson's since the spring of 2014. I had my first major fall (any fall that requires a trip to the ER) in Oct. of 2018, and I have gone downhill since that night. The Parkinson's symptom that's keeping me from leading a normal life is a freezing gait, although I do have overall tightness
ZOOM4522
in
Cure Parkinson's
5 months ago
A question for anyone who built a red light therapy helmet/hat.
Hello. I’m interested in building a red light therapy hat. But I’m having trouble finding a source for 670nm and 810nm led strips. I was wondering if anyone who has built a hat using these specific wavelengths could share a link to where they purchased them. Thank you.
Hello. I’m interested in building a red light therapy hat. But I’m having trouble finding a source for 670nm and 810nm led strips. I was wondering if anyone who has built a hat using these specific wavelengths could share a link to where they purchased them. Thank you.
Glenfarclas
in
Cure Parkinson's
5 months ago
Light Therapy Trial: Update starting to recruit in March 2024
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Canddy
in
Cure Parkinson's
5 months ago
A Miracle
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Popsca
in
PMRGCAuk
6 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
6 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
6 months ago
update Vanderbilt
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
6236
in
Restless Legs Syndrome
7 months ago
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