I have leaky heart valves (Mitral and Tricuspid) and am very worried at the moment about Endocarditis. I haven’t got a temperature, but have had mild, cold-like symptoms on and off for a few weeks, with the occasional night sweat and occasional shivering. None of these are permanent, and I’ve been getting bouts of hot-then-cold for years, so I haven’t taken much notice, but the shivering is new. I’ve been sneezing, too, which might suggest it’s a cold. My question is, how bad do symptoms have to be before you should see your doctor? As for a heart murmur, I’ve had PVCs for years so irregular heart beats happen all the time (I take Flecainide and Verapamil for that) and I wouldn’t know how to distinguish them from a murmur. Any thoughts would be very welcome. Thanks.
Endocarditis concerns: I have leaky... - British Heart Fou...
You write the shivering is a new symptom so it needs to be checked out by your GP as soon as possible - you could just have a cold or mild flu but the new symptom could be an indicator of something more and only your doctor can decide if it's serious or not. At the least you'll hear it's nothing to worry about but either way just talking to your doctor will ease the concern.
Update when you know something, please. Hopefully it's nothing
Thank you. It worries me a bit that the symptoms of the subacute form are often vague and easily mistaken for something else. Does that make it harder to treat, do you know? I’ve spoken to my Doctor. He doesn’t think it’s anything to worry about but has organised a blood test. I’m relieved something’s happening.
I have had endocarditis so have some idea what I am talking about, I had 10 days of flu l symptoms which I treated at myself at home until my family set me to the GP. My symptoms included night sweats and shivers. The shivering is usually a sign that your body is trying to fight infection and your temperature going up called rigors. The night sweats are most unpleasant and a sign you are not well. Please make an appointment to see your doctor urgently, tell the receptionist you have heart valve disease and your symptoms and you need to be seen. Hopefully you just flu but don't take the risk. Good health to you and hope all goes well.
Glad that you have seen the doctor and that they took things seriously.
I had an acute endocarditis , unknown to me I had a bicuspid valve which was severely tarnished so I was a sitting target. The perfect storm was that I lost a filling and the bug entered my system that way. A long hospital stay which included valve replacement. A long recovery but all well and recovered eventually. Hope you are ok and have a good weekend.
Thank you. As you’ve had endocarditis (acute), I was wondering if you know how long the subacute type can go on before it becomes too late to treat? My symptoms started about 3 weeks ago, by the time the blood test results come back, it will be more like 5 weeks. I can’t find the answer to this anywhere. Your thoughts would be appreciated.
I don't think you should get caught up with the labels of acute or sub acute endocarditis. If your tests show that you have endocarditis I think you will be sent to a cardiologist or physician straight way and treatment will be dependent on what the actual bug is causing the infection and what is treatment you specifically require. No doubt you would require other tests such as an ecg, more blood tests and an echocardiogram.
Hope that helps.
Best wishes. Mary.
I have had two lots of endocarditis.....my cardiologist said he found seriously raised "CRP" in the bloods, and immediately conducted the TOE ( "down the throat") exam which showed the endocarditis bugs clearly. first bout was 6 weeks of round the clock antibiotics which worked, went home, but then a year later it was back, a big enough colony to require a valve replacement, plus the 6 weeks antibiotics via intravenous drip. If your CRP is high, you would, I imagine, need to see a cardiologist. Ask the doc about this.
A c-reactive protein test measures the level of c-reactive protein (CRP) in your blood. CRP is a protein made by your liver. It's sent into your bloodstream in response to inflammation. ... Normally, you have low levels of c-reactive protein in your blood. High levels may be sign of a serious infection or other disorder. Most full blood tests done will show a reading. If you have endocarditis the reading can be quite high - mine was about 80 - but low levels are good. After the antibiotics, I got down to about 8 and was then allowed home.