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Aplastic anaemia
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Should I have been tested for PA before starting loading doses?
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose
in
Pernicious Anaemia Society
2 years ago
What is lymphedema?
Author Mary Clare Fischer December 15, 2021 Six important things to know about the bodily fluid that can cause pain, swelling and sometimes more severe issues when it doesn’t move properly. It starts with swelling. Maybe you don’t notice it at first or dismiss it as temporary, a reaction to injury
Author Mary Clare Fischer December 15, 2021 Six important things to know about the bodily fluid that can cause pain, swelling and sometimes more severe issues when it doesn’t move properly. It starts with swelling. Maybe you don’t notice it at first or dismiss it as temporary, a reaction to injury
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Low Folate - Pernicious Anemia?
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Minimanic
in
Pernicious Anaemia Society
2 years ago
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Questions re B12 injections and long term use of prescribed folic acid
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
mill44
in
Pernicious Anaemia Society
2 years ago
Transdermal patch with microneedle technology related article
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Can you help me interpret?
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
ElMaga
in
CLL Support
2 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
2 years ago
Migraine Medication and Blood Pressure Medication
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
MightyMay
in
Thyroid UK
2 years ago
Numbness in hands and in face.
Does anyone know if the numbness,I have in my hands and in my face near my mouth could be a,symptom of folate deficiency or pernicious anaemia. Any advice strongly welcomed as it's really starting to worry me now and my heart rate was at 150bpm last night.
Does anyone know if the numbness,I have in my hands and in my face near my mouth could be a,symptom of folate deficiency or pernicious anaemia. Any advice strongly welcomed as it's really starting to worry me now and my heart rate was at 150bpm last night.
sobs1962
in
Thyroid UK
2 years ago
Hello everyone and thank you for allowing me to join today and help me in my journey being newly diagnosed with pernicious anemia
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Loveslife123
in
Pernicious Anaemia Society
2 years ago
What will 2022 bring?
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
MWxxxx
in
MPN Voice
2 years ago
Iron question
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Dougg
in
Restless Legs Syndrome
2 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
2 years ago
Understanding your blood test
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Quercus53
in
MPN Voice
2 years ago
Gastritis
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
bakingD
in
PMRGCAuk
2 years ago
Vitamins
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
LanaCSR
in
Restless Legs Syndrome
2 years ago
Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
3 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Official: Hydroxocobalamin increases my nervousness/anxiety
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
User2020-1
in
Pernicious Anaemia Society
3 years ago
Buprenorphine annual review
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Shumbah
in
Restless Legs Syndrome
3 years ago
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