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Would appreciate any insight on this please. Am a newbie!
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
R0llrolls10
in
Pernicious Anaemia Society
3 years ago
Cost of Tests
Can someone please tell me what it would cost to have Pernicious Anemia tests done privately? I had NHS bloods sent off a while ago and my GP told me they were all negative. When I asked to see the results she was reluctant to show me. I got to see them eventually and most of them were listed as '
Can someone please tell me what it would cost to have Pernicious Anemia tests done privately? I had NHS bloods sent off a while ago and my GP told me they were all negative. When I asked to see the results she was reluctant to show me. I got to see them eventually and most of them were listed as '
pigletcat
in
Pernicious Anaemia Society
3 years ago
Declining b12
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
CanIHaveYourJuiceBox
in
Pernicious Anaemia Society
3 years ago
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Has anyone tried castor oil to shrink nodules?
I have subclinical hyperthyroidism and a goitre with nodules ,I have been using castor oil topically to shrink my thyroid/nodules and haven't noticed any changes yet,though I have only been using it for a few months a few times a week. Has anyone tried this home remedy to shrink nodules/goitre with success
I have subclinical hyperthyroidism and a goitre with nodules ,I have been using castor oil topically to shrink my thyroid/nodules and haven't noticed any changes yet,though I have only been using it for a few months a few times a week. Has anyone tried this home remedy to shrink nodules/goitre with success
Lorlei
in
Thyroid UK
3 years ago
Advice for when GP won't act?
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
JSD100
in
Pernicious Anaemia Society
3 years ago
Help please - confused
My fibroscan scan was 15,5 (f4) and biopsy showed moderate to severe as well as early cirrhosis. This was in January. I am 55/female and was 162 pounds. I have limited sugar snd carbs, drank 2-3 cups of coffee, and walk 2-3 miles at least 4 days a week, sometimes 7. I am down to 136 pounds and
My fibroscan scan was 15,5 (f4) and biopsy showed moderate to severe as well as early cirrhosis. This was in January. I am 55/female and was 162 pounds. I have limited sugar snd carbs, drank 2-3 cups of coffee, and walk 2-3 miles at least 4 days a week, sometimes 7. I am down to 136 pounds and
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
Test Results
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
DJEligio
in
LUPUS UK
3 years ago
Intrinsic factor test and diagnosis
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
JSD100
in
Pernicious Anaemia Society
3 years ago
Undiagnosed chronic pain
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
CaSRobbins
in
Pain Concern
3 years ago
INTRINSIC FACTOR ANTIBODIES
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Gillybean1
in
Pernicious Anaemia Society
3 years ago
Very high anti-CCP results
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
temirzhan
in
NRAS
3 years ago
Negative ANA
Hi! I was recently diagnosed with PA because I have an antibody to parietal cell but I don’t have an antibody to intrinsic factor. I was just tested for a full ANA and it was negative, does this mean I don’t have pernicious anemia? I have so many of the pernicious anemia symptoms.
Hi! I was recently diagnosed with PA because I have an antibody to parietal cell but I don’t have an antibody to intrinsic factor. I was just tested for a full ANA and it was negative, does this mean I don’t have pernicious anemia? I have so many of the pernicious anemia symptoms.
Spidey313
in
Pernicious Anaemia Society
3 years ago
Odd results after supplements?
Would anyone be able to comment on why despite supplementing for two month my B12 Active result has gone down? Feb results 91.7 (37.5-187.5) March result 51.5 (37.5-187.5) Daily tablet of methylcobalamin 1000mcg My latest vitamin d has also gone down despite having a spray daily 3000 + k2. Sept 2020
Would anyone be able to comment on why despite supplementing for two month my B12 Active result has gone down? Feb results 91.7 (37.5-187.5) March result 51.5 (37.5-187.5) Daily tablet of methylcobalamin 1000mcg My latest vitamin d has also gone down despite having a spray daily 3000 + k2. Sept 2020
Pinky3
in
Pernicious Anaemia Society
3 years ago
Intrinsic Factor Test
If a person is on daily or EOD B12 injections, could that affect an intrinsic factor test? Meaning, could that result in a false positive?
If a person is on daily or EOD B12 injections, could that affect an intrinsic factor test? Meaning, could that result in a false positive?
NJPoet
in
Pernicious Anaemia Society
3 years ago
Not getting very far with Doc intrinsic factor
Spoke to doc this morning about all the symptoms I have been having over past 8 months Won’t check my intrinsic factor Cos he says it’s only done when the b12 comes back low .Ha. He says that 2 monthly jabs are only for those with pernicious anaemia .But I read out all the symptoms and when I had them
Spoke to doc this morning about all the symptoms I have been having over past 8 months Won’t check my intrinsic factor Cos he says it’s only done when the b12 comes back low .Ha. He says that 2 monthly jabs are only for those with pernicious anaemia .But I read out all the symptoms and when I had them
may61
in
Pernicious Anaemia Society
3 years ago
FET...it begins all over again!
Hi girls! Wow it’s been ages since I’ve put anything on here or since I’ve even last felt comfortable discussing my IVF/ICSE journey. So in the last 3 years, I’ve gone through a fresh cycle and a frozen cycle, both of which were unsuccessful. Then last year we went through a new fresh cycle but I had
Hi girls! Wow it’s been ages since I’ve put anything on here or since I’ve even last felt comfortable discussing my IVF/ICSE journey. So in the last 3 years, I’ve gone through a fresh cycle and a frozen cycle, both of which were unsuccessful. Then last year we went through a new fresh cycle but I had
Sophie249
in
Fertility Network UK
3 years ago
B12 is 118, should I be having injections?
Hi, symptoms are: Severe Fatigue Muscle weakness Sleepiness, excessive yawning Memory and cognitive problems, mental slowness Blurred vision Bumping into things/ balance Kyleena coil fit 2 years ago but bleeding daily for past 2 mths I cannot function or do my job I had various bloods tested on Monday
Hi, symptoms are: Severe Fatigue Muscle weakness Sleepiness, excessive yawning Memory and cognitive problems, mental slowness Blurred vision Bumping into things/ balance Kyleena coil fit 2 years ago but bleeding daily for past 2 mths I cannot function or do my job I had various bloods tested on Monday
B12-118
in
Pernicious Anaemia Society
3 years ago
Intrinsic Factor Pills + B12 + Folic acid combination tablets for PA. Does it work?
Hi, I got diagnosed with PA recently. I am in monthly shots for now after the loading doses. While browsing through, I saw the B12 tablets combined with Folic acid and Intrinsic factor. Has anyone tried these combination and effective for PA on absorption? Are there any side effects if it works? Does
Hi, I got diagnosed with PA recently. I am in monthly shots for now after the loading doses. While browsing through, I saw the B12 tablets combined with Folic acid and Intrinsic factor. Has anyone tried these combination and effective for PA on absorption? Are there any side effects if it works? Does
Vinpkd
in
Pernicious Anaemia Society
3 years ago
Free ebook of 300 pages:"Parkinson's here and now. 27 years searching for a cure for Parkinson's disease (1994-2021)."
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Intrinsic factor
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
may61
in
Pernicious Anaemia Society
3 years ago
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