Search
Search
About
Log in
Join
Experiences with
Antihemophilic factor
Posts
Communities
1,603 public posts
Filter results
No one will believe this
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
spencoid2
in
Advanced Prostate Cancer
3 years ago
Hampshire (UK) neurologist anyone?
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
KrissieJ
in
Pernicious Anaemia Society
3 years ago
B12 levels and symptoms
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
Mrss25
in
Pernicious Anaemia Society
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cause of b12 deficiency? Should I get private bloods?
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Gemgem123
in
Pernicious Anaemia Society
3 years ago
B12 results help please
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
Triciatextiles
in
Pernicious Anaemia Society
3 years ago
Lower Right Quadrant Pain
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
elmer69
in
IBS Network
3 years ago
Antibody negative PA
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Roses46
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor and GPC antibodies
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
x101210
in
Pernicious Anaemia Society
3 years ago
Can anyone explain?
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Jaiday
in
Pernicious Anaemia Society
3 years ago
vaccination hesitancy
I live in Perth western Australia, and although we had an initial co vid outbreak like most countries our state got on top of it very quickly and we have no cases of covid. Apart from a couple of scares when we went into lockdown for a week when a case escaped quarantine we live life like before this
I live in Perth western Australia, and although we had an initial co vid outbreak like most countries our state got on top of it very quickly and we have no cases of covid. Apart from a couple of scares when we went into lockdown for a week when a case escaped quarantine we live life like before this
paulgf54
in
CLL Support
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
Giving up hope
Morning everyone. This site is like a breath of fresh air. I had a big stomach operation when I was 28. I was told I would have pernicious anaemia because of my intrinsic factor. I had B12 every month and felt fine. About 4 years ago a young doctor told me after my routine annual blood test I didn’t
Morning everyone. This site is like a breath of fresh air. I had a big stomach operation when I was 28. I was told I would have pernicious anaemia because of my intrinsic factor. I had B12 every month and felt fine. About 4 years ago a young doctor told me after my routine annual blood test I didn’t
Hedgehogs15
in
Pernicious Anaemia Society
3 years ago
Is it normal to feel super tired after injection?
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
JSD100
in
Pernicious Anaemia Society
3 years ago
Would appreciate any insight on this please. Am a newbie!
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing for years with b12 spray, for years, on advice of functional medicine Dr. Many thanks in advance for your replies.
R0llrolls10
in
Pernicious Anaemia Society
3 years ago
Cost of Tests
Can someone please tell me what it would cost to have Pernicious Anemia tests done privately? I had NHS bloods sent off a while ago and my GP told me they were all negative. When I asked to see the results she was reluctant to show me. I got to see them eventually and most of them were listed as '
Can someone please tell me what it would cost to have Pernicious Anemia tests done privately? I had NHS bloods sent off a while ago and my GP told me they were all negative. When I asked to see the results she was reluctant to show me. I got to see them eventually and most of them were listed as '
pigletcat
in
Pernicious Anaemia Society
3 years ago
Declining b12
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
CanIHaveYourJuiceBox
in
Pernicious Anaemia Society
3 years ago
Has anyone tried castor oil to shrink nodules?
I have subclinical hyperthyroidism and a goitre with nodules ,I have been using castor oil topically to shrink my thyroid/nodules and haven't noticed any changes yet,though I have only been using it for a few months a few times a week. Has anyone tried this home remedy to shrink nodules/goitre with success
I have subclinical hyperthyroidism and a goitre with nodules ,I have been using castor oil topically to shrink my thyroid/nodules and haven't noticed any changes yet,though I have only been using it for a few months a few times a week. Has anyone tried this home remedy to shrink nodules/goitre with success
Lorlei
in
Thyroid UK
3 years ago
Advice for when GP won't act?
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
JSD100
in
Pernicious Anaemia Society
3 years ago
Help please - confused
My fibroscan scan was 15,5 (f4) and biopsy showed moderate to severe as well as early cirrhosis. This was in January. I am 55/female and was 162 pounds. I have limited sugar snd carbs, drank 2-3 cups of coffee, and walk 2-3 miles at least 4 days a week, sometimes 7. I am down to 136 pounds and
My fibroscan scan was 15,5 (f4) and biopsy showed moderate to severe as well as early cirrhosis. This was in January. I am 55/female and was 162 pounds. I have limited sugar snd carbs, drank 2-3 cups of coffee, and walk 2-3 miles at least 4 days a week, sometimes 7. I am down to 136 pounds and
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
Test Results
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
DJEligio
in
LUPUS UK
3 years ago
1
...
17
18
19
...
81
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
855 results
Thyroid UK
255 results
NRAS
153 results
View top 10 communities
Sort by
Most Relevant
Newest