Search
Search
About
Log in
Join
Experiences with
Antihemophilic factor
Posts
Communities
1,610 public posts
Filter results
Newbie, am I on the right lines? Looking for insight in to blood results
Hi everyone, great to see such a fantastic community helping each other and I hope you can help me too ;) At times I have struggled with anxiety, low mood and low energy for years and have always been given anti depressants whenever I have felt like I was struggling to cope or concentrate. I struggle
Hi everyone, great to see such a fantastic community helping each other and I hope you can help me too ;) At times I have struggled with anxiety, low mood and low energy for years and have always been given anti depressants whenever I have felt like I was struggling to cope or concentrate. I struggle
Rockerfella
in
Pernicious Anaemia Society
2 years ago
Low FT4 - FT3 and TSH in normal range
As I has some hypothyroid symptoms I used a self-test: with following results: TSH 1,74, FT 4 11.6 FT3 4.2. Test centre showed this as abnormal and needing follow up with GP. As a result of this GP took a full blood test across the range (including Vit B, iron, serum C, rheumatoid factor and
As I has some hypothyroid symptoms I used a self-test: with following results: TSH 1,74, FT 4 11.6 FT3 4.2. Test centre showed this as abnormal and needing follow up with GP. As a result of this GP took a full blood test across the range (including Vit B, iron, serum C, rheumatoid factor and
Musikins
in
Thyroid UK
2 years ago
rash on my face and neck
hello.. I was diagnosed with fibromyalgia, rosacea, carpel tunnel, and reactive arthritis in 2019, after months of overall pain, inflammation, exhaustion to the bone, sausage fingers , pins and needles etc etc. Blood tests came back with inflammation markers, Epson Barr antibodies and a high rheumatoid
hello.. I was diagnosed with fibromyalgia, rosacea, carpel tunnel, and reactive arthritis in 2019, after months of overall pain, inflammation, exhaustion to the bone, sausage fingers , pins and needles etc etc. Blood tests came back with inflammation markers, Epson Barr antibodies and a high rheumatoid
Searching4insights
in
Fibromyalgia Action UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
RA and Fibromyalgia
I have been told I have RA maybe 4 years ago now but it has just got gradually worse with some better periods. No meds have worked for me the better periods were when off any drugs but have had worse times when off drugs too. I am wondering if i could have fibromyalgia as well or instead of I don't
I have been told I have RA maybe 4 years ago now but it has just got gradually worse with some better periods. No meds have worked for me the better periods were when off any drugs but have had worse times when off drugs too. I am wondering if i could have fibromyalgia as well or instead of I don't
Alicepirate
in
NRAS
2 years ago
Neurologists & hematologists in London for B12 neurological symptoms - recs pls?
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
PA_newbie
in
Pernicious Anaemia Society
2 years ago
lining is thinner than it was?!?! - edited
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Melody79
in
Fertility Network UK
2 years ago
What tests do I need to ask my GP for to rule out/diagnose PA?
Hello everyone, I apologise in advance as this post will be quite long but I want to give as much info as possible about my situation. I have an autoimmune disease and take immune suppressing medication for it. Consequently I have regular blood tests, looking at, among other things, my WCC. Over the
Hello everyone, I apologise in advance as this post will be quite long but I want to give as much info as possible about my situation. I have an autoimmune disease and take immune suppressing medication for it. Consequently I have regular blood tests, looking at, among other things, my WCC. Over the
Hidden
in
Pernicious Anaemia Society
2 years ago
Positive IFAB results just in.
Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and that I have a definitive answer for what has plagued me most of my life. I actually feel relieved that I have pernicious anemia. How crazy is that
Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and that I have a definitive answer for what has plagued me most of my life. I actually feel relieved that I have pernicious anemia. How crazy is that
EllaNore
in
Pernicious Anaemia Society
2 years ago
INTRINSIC FACTOR ANTIBODY TEST . Has any member with P.A. had to have more than one IFAB test to get a positive reading ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
wedgewood
in
Pernicious Anaemia Society
2 years ago
Thybon Henning doesn’t contain acacia?!
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
hjh88
in
Thyroid UK
2 years ago
letter just recieved
we are looking at all our patients on B12 Injections; hence it is necessary that we check your current B12 levels and check for for Pernicious Aneamia which (is inability to absorb from your stomach)and So that we can continue to adminoster injections to those that have positive antibodies and advised
we are looking at all our patients on B12 Injections; hence it is necessary that we check your current B12 levels and check for for Pernicious Aneamia which (is inability to absorb from your stomach)and So that we can continue to adminoster injections to those that have positive antibodies and advised
Nackapan
in
Pernicious Anaemia Society
2 years ago
Vitamin B12 deficiency update
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
jules1955
in
PMRGCAuk
2 years ago
confused re blood results
please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc joint pain, skin rashes esp after being in sun, tingling in fingers, fatigue and headaches. ANA was negative but following a further set of bloods done by a private rheumatologist, he confirmed that they were all normal.
please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc joint pain, skin rashes esp after being in sun, tingling in fingers, fatigue and headaches. ANA was negative but following a further set of bloods done by a private rheumatologist, he confirmed that they were all normal.
JFN1
in
LUPUS UK
2 years ago
diagnosed
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Moon1309
in
Pernicious Anaemia Society
2 years ago
feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
should I be concerned
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
Peppermints
in
Thyroid UK
2 years ago
intrinsic factor antibody test results
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Tinglypalps
in
Pernicious Anaemia Society
2 years ago
thyroid test results after a 25mg increase, could someone have a look for me ..
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
Spoticus
in
Thyroid UK
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
1
...
11
12
13
...
81
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
860 results
Thyroid UK
255 results
NRAS
153 results
View top 10 communities
Sort by
Most Relevant
Newest