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my biologic drugs stopped due to leg ulcer
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
Flatstanley
in
NRAS
2 years ago
Normal IF test results
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
MyrtleMac
in
Pernicious Anaemia Society
2 years ago
Positive Intrinsic Factor
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
Ecf123
in
Pernicious Anaemia Society
2 years ago
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Did Anyone With Diagnosed Pernicious Anaemia or B12 Deficiency have rapid weight gain before the deficiency was found?
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
Blearyeyed
in
Pernicious Anaemia Society
2 years ago
Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
Advice from the experts please?
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
Emmers5
in
Pernicious Anaemia Society
2 years ago
Low ferritin question
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Lunadoo
in
Pernicious Anaemia Society
2 years ago
B12 injections to buy - UK
Hi there I’m looking to start b12 injections. Does anyone know how frequent you do them? I’ve never been officially diagnosed with PA - I had a negative intrinsic factor twice so the doctors are adamant I don’t have PA. I’ve had tingling and burning in my feet, but my doctor is convinced it’s unrelated
Hi there I’m looking to start b12 injections. Does anyone know how frequent you do them? I’ve never been officially diagnosed with PA - I had a negative intrinsic factor twice so the doctors are adamant I don’t have PA. I’ve had tingling and burning in my feet, but my doctor is convinced it’s unrelated
mistygrey
in
Pernicious Anaemia Society
2 years ago
Need some advice for my mother’s blood test results
Rheumatoid factor level. 37. Range 0-13 Anti-cyclic citrullinated peptide 215. Range 0-6.9 ESR. 50 My mother is seeing a Rheumatologist on the 18th July and has been told yesterday by her Dr that she will need to go on a drug called Methotrexate. I have just started researching this drug and I feel
Rheumatoid factor level. 37. Range 0-13 Anti-cyclic citrullinated peptide 215. Range 0-6.9 ESR. 50 My mother is seeing a Rheumatologist on the 18th July and has been told yesterday by her Dr that she will need to go on a drug called Methotrexate. I have just started researching this drug and I feel
Bean101
in
NRAS
2 years ago
Off pill causing my itchy head scalp
hey guys, i have been off pill since May for TTC. I noticed my heaf scalp is so itchy n drandruffy for like at least ⅔ weeks now. I have been using castor oil in roots every time in night time before going shower. I have used new shampoo since May and was fine until itchy scalp. My mum mentioned it
hey guys, i have been off pill since May for TTC. I noticed my heaf scalp is so itchy n drandruffy for like at least ⅔ weeks now. I have been using castor oil in roots every time in night time before going shower. I have used new shampoo since May and was fine until itchy scalp. My mum mentioned it
EDJ23
in
Women's Health
2 years ago
I know a negative IF test result can be inaccurate but can a positive one be false?
I've not been well since the middle of 2020, nothing to really put your finger on but headaches, tiredness, feeling like you're coming down with something but in December 2020 I started having episodes of palpitations. Was sent to A&E a few times but obviously by the time they got to ECG nothing was
I've not been well since the middle of 2020, nothing to really put your finger on but headaches, tiredness, feeling like you're coming down with something but in December 2020 I started having episodes of palpitations. Was sent to A&E a few times but obviously by the time they got to ECG nothing was
Tinglypalps
in
Pernicious Anaemia Society
2 years ago
B12 level 364pmol/l two months after loading doses - Low or normal level?
My GP has said that my B12 is normal now and no more treatment is needed after loading doses in April. I did have a B12 level of 80pmol/l before loading doses and intrinsic factor was negative. I eat a varied diet with meat and eggs so shouldn't be low. Iron has historically been very low and folate
My GP has said that my B12 is normal now and no more treatment is needed after loading doses in April. I did have a B12 level of 80pmol/l before loading doses and intrinsic factor was negative. I eat a varied diet with meat and eggs so shouldn't be low. Iron has historically been very low and folate
Rippers101
in
Pernicious Anaemia Society
2 years ago
Help with B12 and PA diagnosis? In UK
Hi I am trying to figure out if I have a b12 problem still despite the 12 weekly b12 injections I get at the Gp surgery in the UK. My original intrinsic factor around 4 years ago was negative however does this mean I don’t have PA? My b12 levels before injections were quite low hence why Gp started me
Hi I am trying to figure out if I have a b12 problem still despite the 12 weekly b12 injections I get at the Gp surgery in the UK. My original intrinsic factor around 4 years ago was negative however does this mean I don’t have PA? My b12 levels before injections were quite low hence why Gp started me
mistygrey
in
Pernicious Anaemia Society
2 years ago
You wont believe this....well, you might 🤦♀️
I asked the doctors on monday to add some tests onto my follow up bloods my blood test appointment yesterday. The doctor agreed reluctantly 😞 I just want all the tests done at once to rule everything out. Additional tests asked for. Full thyroid including T3, t4 and antibodies. Rheumatology tests
I asked the doctors on monday to add some tests onto my follow up bloods my blood test appointment yesterday. The doctor agreed reluctantly 😞 I just want all the tests done at once to rule everything out. Additional tests asked for. Full thyroid including T3, t4 and antibodies. Rheumatology tests
Peppermints
in
Pernicious Anaemia Society
2 years ago
myopic CNV update- 4 months on…
Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Deepbluesea2022
in
Macular Society
2 years ago
Please help! At a loss with my dad's symptoms and GP
Hi all, Just joined this as not sure where else to turn! My Dad is 72 and in November 2020 his bloods showed that he was low in b12 (sorry don't have exact result). At the time I was baffled by this as he was eating eggs daily and ate red meat regularly too. After a quick search I read about PA and
Hi all, Just joined this as not sure where else to turn! My Dad is 72 and in November 2020 his bloods showed that he was low in b12 (sorry don't have exact result). At the time I was baffled by this as he was eating eggs daily and ate red meat regularly too. After a quick search I read about PA and
Needleandthread44
in
Pernicious Anaemia Society
2 years ago
Struggling with a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Ryane96
in
Fibromyalgia Action UK
2 years ago
Struggling for a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Ryane96
in
NRAS
2 years ago
Struggling to get a diagnosis.
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Ryane96
in
LUPUS UK
2 years ago
I have my 5th shot today🤞🏻
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....☺️ But the tiredness is endless. I can have so much sleep and night
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....☺️ But the tiredness is endless. I can have so much sleep and night
Peppermints
in
Pernicious Anaemia Society
2 years ago
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