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looking for advice.
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
Believeit
in
Advanced Prostate Cancer
1 year ago
ADT "vacation" terminology questions
I see a lot of posters here who say they do ADT "vacations." Are there any circumstances when NCCN SoC indicate cessation or interruption of ADT and abi? The term "vacation" implies an inevitable return to ADT. Do you wait for rising PSA or a fixed time to go by? What about when one has oligometastatic
I see a lot of posters here who say they do ADT "vacations." Are there any circumstances when NCCN SoC indicate cessation or interruption of ADT and abi? The term "vacation" implies an inevitable return to ADT. Do you wait for rising PSA or a fixed time to go by? What about when one has oligometastatic
Derf4223
in
Advanced Prostate Cancer
1 year ago
Need More Energy
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
epfj3333
in
Advanced Prostate Cancer
1 year ago
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Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
ART The Role of Genetic Testing in Prostate Cancer
Summary; a short, clear explanation of genetic testing with clarifications for what is Genomic/ Somatic versus Germline testing. Of interest to me was the need to conduct testing of PCa patients to determine who to aggressively manage/ treat. Germline testing with high penetrance marker identification
Summary; a short, clear explanation of genetic testing with clarifications for what is Genomic/ Somatic versus Germline testing. Of interest to me was the need to conduct testing of PCa patients to determine who to aggressively manage/ treat. Germline testing with high penetrance marker identification
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Repeat tp biopsy
Decided on AS last October, psa hasn't changed in 2 tests since then at 4.2 .At appt today urologist told me there'll be repeat mri scan followed by a repeat tp biopsy at 12 months this is routine AS protocol in UK I believe. Have increased my exercise regime and lost some weight a no brainer for me
Decided on AS last October, psa hasn't changed in 2 tests since then at 4.2 .At appt today urologist told me there'll be repeat mri scan followed by a repeat tp biopsy at 12 months this is routine AS protocol in UK I believe. Have increased my exercise regime and lost some weight a no brainer for me
pd63
in
Prostate Cancer Network
1 year ago
11 Year Anniversary
11 Years Ago, On My 54th Birthday, Following a Digital Exam That Detected an Enlarged Prostate, I received My PSA Results Whichh Measured in the Mid-30s. Follow Up Scans Confirmed Suspicions That I Indeed Had metPC. On June 22nd (my wedding anniversary) I received my first hormone deprivation injection
11 Years Ago, On My 54th Birthday, Following a Digital Exam That Detected an Enlarged Prostate, I received My PSA Results Whichh Measured in the Mid-30s. Follow Up Scans Confirmed Suspicions That I Indeed Had metPC. On June 22nd (my wedding anniversary) I received my first hormone deprivation injection
jfoesq
in
Advanced Prostate Cancer
1 year ago
Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
Switching from prednisone to dexamethasone with abiraterone
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
Gearhead
in
Advanced Prostate Cancer
1 year ago
Kidney failure and future treatments
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Yabaa
in
Advanced Prostate Cancer
1 year ago
Chemo may be helping
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
MJCA
in
Advanced Prostate Cancer
1 year ago
What should PSA be in a 35 year old
My son is 35 years old, he will be 36 in August. I want him to have is PSA checked, my daughter-in-law also wants him too have it checked. My brother died in 2012 from PC and I’m stage 4, 2 LN’s in chest cavity. He doesn’t seem to be concerned. What should I tell him?
My son is 35 years old, he will be 36 in August. I want him to have is PSA checked, my daughter-in-law also wants him too have it checked. My brother died in 2012 from PC and I’m stage 4, 2 LN’s in chest cavity. He doesn’t seem to be concerned. What should I tell him?
Echotango51
in
Advanced Prostate Cancer
1 year ago
SBRT without ADT
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
ArmyCW5Retired
in
Advanced Prostate Cancer
1 year ago
Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
ctflatlander
in
Advanced Prostate Cancer
1 year ago
Recurrence?
My husband was diagnosed in 2017, with PSA 48.74 Gleason 8 (3+5), I think Stage T2a. We were told it was not operable, so he completed 42 rounds of direct radiation and then started Lupron shots every three months, the last dose was in September 2021 I think. All this brought PSA down to <0.06 but yesterday
My husband was diagnosed in 2017, with PSA 48.74 Gleason 8 (3+5), I think Stage T2a. We were told it was not operable, so he completed 42 rounds of direct radiation and then started Lupron shots every three months, the last dose was in September 2021 I think. All this brought PSA down to <0.06 but yesterday
LavenderBlue3
in
Prostate Cancer Network
1 year ago
Cured after LU177
My brother-in-law had prostate cancer in his bones with a PSA in the hundreds. He went to Germany and had two treatments of LU177. He came back to the US, had a scan, and says he is now cured. Is that possible?
My brother-in-law had prostate cancer in his bones with a PSA in the hundreds. He went to Germany and had two treatments of LU177. He came back to the US, had a scan, and says he is now cured. Is that possible?
epfj3333
in
Advanced Prostate Cancer
1 year ago
Declining psa #4
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Nfler
in
Advanced Prostate Cancer
1 year ago
PSA Question
I updated my husbands profile to show his PSA went from -- 2.08 in January to... 1.73 in February 1.77 in March 1.78 in April His next test is 6/6. It has never gotten lower than 1.24 back in December of 2022. Is it normal for some people to not have an extremely low PSA? He
I updated my husbands profile to show his PSA went from -- 2.08 in January to... 1.73 in February 1.77 in March 1.78 in April His next test is 6/6. It has never gotten lower than 1.24 back in December of 2022. Is it normal for some people to not have an extremely low PSA? He
Izzygirl1
in
Advanced Prostate Cancer
1 year ago
Good news
Hi folks - just thought I would inform of some good news here. Just got the latest blood results - Psa is down to 0.09 from the previous two readings which were static at 0.1. I dont read anything into that since I consider such small changes are not significant. But for the second time a 3 month period
Hi folks - just thought I would inform of some good news here. Just got the latest blood results - Psa is down to 0.09 from the previous two readings which were static at 0.1. I dont read anything into that since I consider such small changes are not significant. But for the second time a 3 month period
Stoneartist
in
Advanced Prostate Cancer
1 year ago
orchidectomy/orchiectomy
Has anyone had a bi-lateral orchidectomy with no prescribed medications? If so, what happened to your PSA? Thanks
Has anyone had a bi-lateral orchidectomy with no prescribed medications? If so, what happened to your PSA? Thanks
Bridgefeast
in
Advanced Prostate Cancer
1 year ago
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