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Orgovyx denied by insurance, husband has heart failure
My husband recently had RALP and unfortunately the PSA didn’t drop and PSMA scan revealed a few lymph nodes in the pelvis. He will be having 39 sessions of radiation and ADT. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has
My husband recently had RALP and unfortunately the PSA didn’t drop and PSMA scan revealed a few lymph nodes in the pelvis. He will be having 39 sessions of radiation and ADT. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has
JLR65
in
Advanced Prostate Cancer
1 year ago
rising psa but scans are clear
I had brachytherapy 6 years ago for prostate cancer, Gleason score 6. PSA went down to under 1. Now it has risen over the years to 10.8 but all scans, PET, CT, and biopsy of prostate are totally clear. My urologist want to put me on Elegard (hormone therapy) that will make my quality of life terrible
I had brachytherapy 6 years ago for prostate cancer, Gleason score 6. PSA went down to under 1. Now it has risen over the years to 10.8 but all scans, PET, CT, and biopsy of prostate are totally clear. My urologist want to put me on Elegard (hormone therapy) that will make my quality of life terrible
planetman
in
Advanced Prostate Cancer
1 year ago
Viagra
Is it worth trying viagra now I had my last ADT injection 3 months ago.
Is it worth trying viagra now I had my last ADT injection 3 months ago.
Coggeshall
in
Prostate Cancer Network
1 year ago
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Pain near groin, but no PSA detected?
MyGuy is having severe pain low, just left of his groin. It’s not always there, but today it was bad for quite a while. He had a bone scan of his pelvis and an mri last June and nothing was noted. His three PSA tests since June (with the last in January) have been undetectable. When pain was mentioned
MyGuy is having severe pain low, just left of his groin. It’s not always there, but today it was bad for quite a while. He had a bone scan of his pelvis and an mri last June and nothing was noted. His three PSA tests since June (with the last in January) have been undetectable. When pain was mentioned
VeeBeez
in
Advanced Prostate Cancer
1 year ago
To treat or not to treat
In 2017 and 2019 I had SBRT to two bone metastases identified using a PSMA scan. No other sites were identified. By March 2020 this had caused my PSA to drop to virtually undetectable and I decided to come off ADT which I had been on (with some breaks) since April 2011 after RRP and RT to the prostate
In 2017 and 2019 I had SBRT to two bone metastases identified using a PSMA scan. No other sites were identified. By March 2020 this had caused my PSA to drop to virtually undetectable and I decided to come off ADT which I had been on (with some breaks) since April 2011 after RRP and RT to the prostate
AgedTenor
in
Advanced Prostate Cancer
1 year ago
Newly diagnosed Prostate Cancer
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
Wicker12
in
Advanced Prostate Cancer
1 year ago
Interesting paper summarising state of art (2022) for ADT
The paper below gives a useful summary of the history and state of the art (2022) for ADT. No mention of BAT though. A few snippets from the paper are given below. Evolution of Androgen Deprivation Therapy (ADT) and Its New Emerging Modalities in Prostate Cancer: An Update for Practicing Urologists
The paper below gives a useful summary of the history and state of the art (2022) for ADT. No mention of BAT though. A few snippets from the paper are given below. Evolution of Androgen Deprivation Therapy (ADT) and Its New Emerging Modalities in Prostate Cancer: An Update for Practicing Urologists
Graham49
in
Advanced Prostate Cancer
1 year ago
Beat Prostate Cancer
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
Todd1963
in
Advanced Prostate Cancer
1 year ago
PSA Rising While on ADT and Abiraterone
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Input Needed.
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Blue6199
in
Advanced Prostate Cancer
1 year ago
ASCO 23 - Transdermal square-wave testosterone therapy
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
pjoshea13
in
Fight Prostate Cancer
1 year ago
useful 'Evidence' that TSH between 0.04 - 0.4 has no increased risk to patients on Levothyroxine (UPDATED~new study does show small risk)
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
tattybogle
in
Thyroid UK
1 year ago
Duration of ADT needed with salvage radiation
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE?
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
Johnnyred
in
Advanced Prostate Cancer
1 year ago
Choose Capivasertib or 177Lu-PSMA-617 clinical trial or stick with ADT + radiation?
Hi Folks, My PSA is up to 49 from 24 last summer. After bone scan, CT scan indicated 3 sites of mets (2 on pelvis, 1 on L5, overall “low volume”). Otherwise feeling great, working out most days. 58. I was finally able to get in this month to see a Medical Oncologist. Starting on ADT next week. Meeting
Hi Folks, My PSA is up to 49 from 24 last summer. After bone scan, CT scan indicated 3 sites of mets (2 on pelvis, 1 on L5, overall “low volume”). Otherwise feeling great, working out most days. 58. I was finally able to get in this month to see a Medical Oncologist. Starting on ADT next week. Meeting
LongTimeRunning
in
Advanced Prostate Cancer
1 year ago
what is the role of a MO?
When does a MO get added to the team and who adds them (self refer, RO, other?)? Generally speaking I mean. I’ve had RP, recurrence, ADT, salvage radiation. No one has ever referenced involvement by MO at any stage and RO seems to suggest he’ll handle it all if PSA rises. Is MO a “last ditch” team
When does a MO get added to the team and who adds them (self refer, RO, other?)? Generally speaking I mean. I’ve had RP, recurrence, ADT, salvage radiation. No one has ever referenced involvement by MO at any stage and RO seems to suggest he’ll handle it all if PSA rises. Is MO a “last ditch” team
MSPCF2021
in
Fight Prostate Cancer
1 year ago
adding Alendronic acid side effects ?
I am wondering what others have experience when on Zoladex ADT (4.5 months of 24 + RT) of adding Alendronic acid (for osteoporosis) Had first one 5 days ago and am having muscle pain - seems rather quick and wondering if it’s the Zoladex accumulation and is the muscle and fatigue just getting worse
I am wondering what others have experience when on Zoladex ADT (4.5 months of 24 + RT) of adding Alendronic acid (for osteoporosis) Had first one 5 days ago and am having muscle pain - seems rather quick and wondering if it’s the Zoladex accumulation and is the muscle and fatigue just getting worse
SimMartin
in
Advanced Prostate Cancer
1 year ago
looking for 1st hand experiences of ViewRay SBRT treatments.intermediate risk, no hormone therapy
I’m scheduled for treatment by Dr. Nagar (Weill-Cornell/NYCPresby), and so far I’ve gotten little info from them (but have requested the info ) I’ll have my family in NY for the week, and my wife is very unsure what to expect. Does anyone have a day to day account of how things went? And post treatment
I’m scheduled for treatment by Dr. Nagar (Weill-Cornell/NYCPresby), and so far I’ve gotten little info from them (but have requested the info ) I’ll have my family in NY for the week, and my wife is very unsure what to expect. Does anyone have a day to day account of how things went? And post treatment
backbonz
in
Prostate Cancer Under 60
2 years ago
Is it normal after receiving two firmagon shots in the abdomen for the injection areas to be hard?
Well good news bad news. I qualified for a cutting edge trial at Yale, unfortunately they won’t let me do it until I’m back on a SOC ADT drug for two months. I bit the bullet because I’m allowed to stay on the estrogen gel to control the hot flashes. I had my first firmagon shots Tuesday. Two needles
Well good news bad news. I qualified for a cutting edge trial at Yale, unfortunately they won’t let me do it until I’m back on a SOC ADT drug for two months. I bit the bullet because I’m allowed to stay on the estrogen gel to control the hot flashes. I had my first firmagon shots Tuesday. Two needles
No_stone_unturned
in
Advanced Prostate Cancer
2 years ago
PET/CT Scan Results
DX 8/21 Started ADT Lupron, Abiraterone, Prednisone. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere. Skeletal: 1.Numerous stable non tracer avid sclerotic osseous
DX 8/21 Started ADT Lupron, Abiraterone, Prednisone. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere. Skeletal: 1.Numerous stable non tracer avid sclerotic osseous
alperk
in
Advanced Prostate Cancer
2 years ago
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