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Questions about genetic testing
I’ve got mixed ductal PC. I’m post RALP, post-rad, 6 months into ADT. Setting research about the increased likelihood of metastasis with ductal, and the unreliability of PSA in indicating ductal, I’m anxious to touch all bases before it goes to lungs bones brain or liver. I’m already scheduled for
I’ve got mixed ductal PC. I’m post RALP, post-rad, 6 months into ADT. Setting research about the increased likelihood of metastasis with ductal, and the unreliability of PSA in indicating ductal, I’m anxious to touch all bases before it goes to lungs bones brain or liver. I’m already scheduled for
Caldonia
in
Advanced Prostate Cancer
1 year ago
Neuroendocrine and PSA
Hoping to get some clarity. My husband's pathology says: "Paneth cell-like neuroendocrine change in the adenocarcinoma" Had RP in Dec 2021. G7 3+4(25%) Stage T3b. EPE, SVI, PSM <3mm. Lymph node Neg. No other treatment yet. Debating on whether to start SRT + ADT. PSA Dec 2022 0.03, Mar 2023 0.02
Hoping to get some clarity. My husband's pathology says: "Paneth cell-like neuroendocrine change in the adenocarcinoma" Had RP in Dec 2021. G7 3+4(25%) Stage T3b. EPE, SVI, PSM <3mm. Lymph node Neg. No other treatment yet. Debating on whether to start SRT + ADT. PSA Dec 2022 0.03, Mar 2023 0.02
tn12
in
Advanced Prostate Cancer
1 year ago
New Study Result Being Dangerously Oversimplified
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
jazj
in
Prostate Cancer Network
1 year ago
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New Study Results Dangerously Being Oversimplified
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
jazj
in
Advanced Prostate Cancer
1 year ago
Update on "Zytiga failed, Xtandi next" from 8 days ago
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
alperk
in
Advanced Prostate Cancer
1 year ago
biochemical re-occurrence
For those who had biochemical re-occurrence and were treated with ADT and radiation what has been your outcome over the years? basically, what I am asking were you cured and had a favorable outcome? How many years have you been with a low PSA, no further issues or, for that matter cured?
For those who had biochemical re-occurrence and were treated with ADT and radiation what has been your outcome over the years? basically, what I am asking were you cured and had a favorable outcome? How many years have you been with a low PSA, no further issues or, for that matter cured?
plato123
in
Advanced Prostate Cancer
1 year ago
Gynecologist appointment outcome-advice please?
Hi all, So I had my first gynecologist appointment last week, and it wasn't what I was expecting. I've read so many accounts of people appointments, where they had plenty of time to discuss history, the horrendous pain, as well as a detailed treatment plan. However, my visit consisted of walking into
Hi all, So I had my first gynecologist appointment last week, and it wasn't what I was expecting. I've read so many accounts of people appointments, where they had plenty of time to discuss history, the horrendous pain, as well as a detailed treatment plan. However, my visit consisted of walking into
burke123
in
Endometriosis UK
1 year ago
New treatement plan
So after my MO visit I have a new game plan. Restart ADT, Lupron and Daralutamide or Zytiga but prefer the Daralutamide so hoping that gets approved. Then radiation to the 4 spots that showed up on my PMSA PET Scan. So MO Appt Thursday, RO appt today, 1st Lupron jab on Wed the 15th. My MO said to check
So after my MO visit I have a new game plan. Restart ADT, Lupron and Daralutamide or Zytiga but prefer the Daralutamide so hoping that gets approved. Then radiation to the 4 spots that showed up on my PMSA PET Scan. So MO Appt Thursday, RO appt today, 1st Lupron jab on Wed the 15th. My MO said to check
treedown
in
Advanced Prostate Cancer
1 year ago
Cause of steady increase in Alt (liver) score
Hello, looking for advice regarding cause of steady increase in Alt (liver) score please. My husband is on ADT 3 monthly (10.8mg) Zoladex and due to have 6th and final Doxetaxal infusion next Thursday but his Alt score is now 114. He also takes Prednisolone and Omeprazole and he’s on a clinical trial
Hello, looking for advice regarding cause of steady increase in Alt (liver) score please. My husband is on ADT 3 monthly (10.8mg) Zoladex and due to have 6th and final Doxetaxal infusion next Thursday but his Alt score is now 114. He also takes Prednisolone and Omeprazole and he’s on a clinical trial
RunningViv
in
Advanced Prostate Cancer
1 year ago
New to the forum and doing Intermittent ADT
Hi, I've been reading this forum for quite a while now and finally joined. I've had Prostate Cancer for around 2 years now. Things looked great after my prostatectomy, but then my PSA started rising a year later. Got a PSMA scan and no mets were detectable. Decided against radiation and went with
Hi, I've been reading this forum for quite a while now and finally joined. I've had Prostate Cancer for around 2 years now. Things looked great after my prostatectomy, but then my PSA started rising a year later. Got a PSMA scan and no mets were detectable. Decided against radiation and went with
Cancerfighter57
in
Advanced Prostate Cancer
1 year ago
Any suggestions for headache?
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
fmh1
in
Advanced Prostate Cancer
1 year ago
No Benefit With Longer Course of ADT in Localized, High-RiskProstate Cancer
https://www.renalandurologynews.com/home/conference-highlights/genitourinary-cancers-symposium/no-benefit-longer-course-adt-localized-high-risk-prostate-cancer/
https://www.renalandurologynews.com/home/conference-highlights/genitourinary-cancers-symposium/no-benefit-longer-course-adt-localized-high-risk-prostate-cancer/
ADTMan
in
Advanced Prostate Cancer
1 year ago
NUBEQA (darolutimide) as MONOTHERAPY (no lupron or similar)?
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
Gl448
in
Advanced Prostate Cancer
1 year ago
Treatment Options Analysis Paralysis
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
BMT07
in
Prostate Cancer Network
1 year ago
Triplet Therapy Failed. Now what?
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
Worriedson9
in
Advanced Prostate Cancer
1 year ago
<0.03 for the 9th month
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Brysonal
in
Fight Prostate Cancer
1 year ago
Does this say abi and Lupron is as good as it gets.
I can’t get the full text, but the abstract seems to contradict the idea of triplet as better than abi and adt. What did I miss? https://jamanetwork.com/journals/jamaoncology/fullarticle/2802132
I can’t get the full text, but the abstract seems to contradict the idea of triplet as better than abi and adt. What did I miss? https://jamanetwork.com/journals/jamaoncology/fullarticle/2802132
Papa1
in
Advanced Prostate Cancer
1 year ago
Low blood pressure and pulse -Orgovyx and flomax -AND CIALIS?
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
JWS13
in
Prostate Cancer Network
1 year ago
Zytiga failed, Xtandi next
2/21/23 blood test shows PSA went up from 0.253 to 0.309 Testosterone unchanged at 45 since 1/23/23 test. B12 260. MO ordered 2500mcg B12 which I read helps bone health, energy and red blood cells. Pylarify PET scan shows numerous stable non tracer avid sclerotic osseous lesions on the CT portion of
2/21/23 blood test shows PSA went up from 0.253 to 0.309 Testosterone unchanged at 45 since 1/23/23 test. B12 260. MO ordered 2500mcg B12 which I read helps bone health, energy and red blood cells. Pylarify PET scan shows numerous stable non tracer avid sclerotic osseous lesions on the CT portion of
alperk
in
Advanced Prostate Cancer
1 year ago
Testosterone level while on ADT plus Xtandi
I've been on ADT (Prostap) since last July and Xtandi since October and my T has remained hovering around 30 ng/dL. Although this is technically castrate level (<50), I've seen several other posts of guys on various hormone therapies with much lower T. Is it normal/typical for T to stay at 30 when on
I've been on ADT (Prostap) since last July and Xtandi since October and my T has remained hovering around 30 ng/dL. Although this is technically castrate level (<50), I've seen several other posts of guys on various hormone therapies with much lower T. Is it normal/typical for T to stay at 30 when on
Benkaymel
in
Advanced Prostate Cancer
1 year ago
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