biochemical re-occurrence: For those... - Advanced Prostate...

Advanced Prostate Cancer

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biochemical re-occurrence

plato123 profile image
24 Replies

For those who had biochemical re-occurrence and were treated with ADT and radiation what has been your outcome over the years?

basically, what I am asking were you cured and had a favorable outcome?

How many years have you been with a low PSA, no further issues or, for that matter cured?

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plato123 profile image
plato123
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24 Replies
tango65 profile image
tango65

I had the treatments in 2005 and in one year the PSA starting to go up. I had a vaccine when the PSA was 0.4 and for 9 years the PSA remained stable. I was not on ADT at that time.

Later on, this vaccine was shown not to work in metastatic PC in a phase III trial.

I am not sure what caused the stabilization of the PSA for so many years but here I am with mCRPC, 18 years after the salvage radiotherapy to the prostatic fossa and whole pelvis radiation.

I did not have any other treatment after the PSA got to be 2, 11 years after the radiation of the pelvis in 2005.

plato123 profile image
plato123 in reply to tango65

thank you for the feedback.

tango65 profile image
tango65 in reply to plato123

You are welcome.

Consider getting a PSMA PET/CT and then discuss radiation and ADT with the RO,.

The only way to know if it is going to work is to have the treatment of prostate fossa, whole pelvis radiation and if there are pelvic lymph nodes involved, SBRT boost to those plus 2 years of ADT and abiraterone.

Murph256 profile image
Murph256

My PSA was undetectable for 12 months post radiation and ADT.

bitittle profile image
bitittle

I am G9 see my bio for more info. 2013 had RP. PSA rose to 0.183 in 2016. Had 38 radiation treatments to prostate bed only no ADT. Today PSA up to 0.364. April PET scan scheduled. Irrespective of results of PET scan I will be doing 4 months of ADT and pelvic radiation following the PET scan.

No I am not cured. Just trying to buy some more time. Good luck!

epfj3333 profile image
epfj3333

In 2015, I had surgery and 40 rounds of radiation. PSA was undectectable and all scans clear until 2022. Scans were still all undectectable (including GA68 scan at U of Mich) but PSA began creeping. When it got to seven, I went on Firmagon. PSA quickly went to undetectable and has been ever since. I've been on Firmagon now for 18 months. Dr. said we can stop after six more months and check PSA every three months. I'm not sure if I should stop or not because it's working.

keepinon profile image
keepinon

Surgery in 2/19. GL 9 with everything bad. 6 week psa at .9. Started Lupron and added Zytiga a month later. Had SRT at the 9 month mark waiting for my incontinence to get better. It did.After 2 years of Lupron and Zytiga, took a holiday. That was over 2 years ago. Still undectable. Am I cured??? PSA test tomorrow.🤞

Cactus297 profile image
Cactus297 in reply to keepinon

Wishing you great results.

plato123 profile image
plato123

well said

caysary profile image
caysary

You talk a good talk but without citing references you are expressing your opinion. For example there is difference between BCR for low, intermediate and high risk patients for those who underwent RP and RT. Estimates for the risk of developing BCR range from 20% to 40%. Here's just one citing. ascopubs.org/doi/full/10.12...

Cancerfighter57 profile image
Cancerfighter57 in reply to caysary

What I got out of this is that you can't just let your guard down, especially when doing IADT. There are things you have to do to stay ahead of the cancer.

caysary profile image
caysary in reply to Cancerfighter57

Yeah whatever. She's not even the patient

Cancerfighter57 profile image
Cancerfighter57

Thank you for the excellent explanation. I'm just starting with IADT and hoping to get the benefits.

EdBacon profile image
EdBacon

Looks like the account has been removed.

EdBacon profile image
EdBacon

I'll private message you about what I learned.

Scout4answers profile image
Scout4answers in reply to EdBacon

He was attacking me over on the other site this morning as Head_Scout yet last week he was instrumental in helping me figure out a PSA problem as LittlePeeps.

He has used at least 8 aliases that I can identify.

Brilliant but troubled is how I think about him.

EdBacon profile image
EdBacon in reply to Scout4answers

I don't like the people just here to promote "alternatives" and solicting through private messaging. Many don't even have cancer. I think it's an abuse of the forum.

Gl448 profile image
Gl448

Yingsang? I noticed “he” was talking about “his” personal PSA test scores and PCa treatment with a Vantis device despite “her” profile claiming “she” was a 57 year old Asian woman with a PA in naturopathic medicine.

Jpl506 profile image
Jpl506

I think he’s back as Gracie9 over there.

CAMPSOUPS profile image
CAMPSOUPS in reply to Jpl506

I surmised the same.

Gl448 profile image
Gl448 in reply to CAMPSOUPS

He's losing his touch at making convincing fake profiles?

Gl448 profile image
Gl448 in reply to Jpl506

I came to the same conclusion this morning.

Scout4answers profile image
Scout4answers

He was attacking me over on the other site this morning as Head_Scout yet last week he was instrumental in helping me figure out a PSA problem as LittlePeeps.

He has used at least 8 aliases that I can identify.

Brilliant but troubled is how I think about him.

plato123 profile image
plato123

this shit has to stop I have no idea what you guys are talking about.

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