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Iron panel now in
Hi all I wonder if you could give me some advice on my iron panel from medichecks. All are within range but the ferritin is low and the transferrin saturation is very low
Iron Status
Iron 13.7 umol/L (Range: 5.8 - 34.5) TIBC 66.3 umol/L (Range: 45 - 81) UIBC 52.6 umol/L (Range: 24.2 - 70.1
Hi all I wonder if you could give me some advice on my iron panel from medichecks. All are within range but the ferritin is low and the transferrin saturation is very low
Iron Status
Iron 13.7 umol/L (Range: 5.8 - 34.5) TIBC 66.3 umol/L (Range: 45 - 81) UIBC 52.6 umol/L (Range: 24.2 - 70.1
Souzy
in
Thyroid UK
2 years ago
My Story for private endocrinologist - what Qs to ask? 🤔
Treatments -Iron deficiency
anaemia
is now well treated, under nhs haemotology since February 2022 (letter) long term for regular iron infusions when ferritin gets low (last one Sept 2022), I can only tolerate 10mg iron with vitC daily due to gastro issues.
Treatments -Iron deficiency
anaemia
is now well treated, under nhs haemotology since February 2022 (letter) long term for regular iron infusions when ferritin gets low (last one Sept 2022), I can only tolerate 10mg iron with vitC daily due to gastro issues.
Insomania
in
Thyroid UK
1 year ago
I'M AT STAGE 4
I'm at stage 4 of kidney disease Three months ago my kidneys functioned at 20 per cent. Now at this appointment they are at 24 per cent . The lab work showed that my hemoglobin was at only 6.0 .They put me in the hospital for two days and gave me 2 units of blood.Got it up to 7.4 They also
I'm at stage 4 of kidney disease Three months ago my kidneys functioned at 20 per cent. Now at this appointment they are at 24 per cent . The lab work showed that my hemoglobin was at only 6.0 .They put me in the hospital for two days and gave me 2 units of blood.Got it up to 7.4 They also
MSTAUF
in
Early CKD Support
2 years ago
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Nearly there,a little more help please
Hi everyone, I've just had retrospective confirmation that I was B12 deficient. After 6 injections have improved my RBC, MCH, WCC and heamoglobin. My heamotoligist wants to test me for MMA and intrinsic factor. How long do I need to leave the tests after an injection? Will the MMA be skewed from
Hi everyone, I've just had retrospective confirmation that I was B12 deficient. After 6 injections have improved my RBC, MCH, WCC and heamoglobin. My heamotoligist wants to test me for MMA and intrinsic factor. How long do I need to leave the tests after an injection? Will the MMA be skewed from
Rockerfella
in
Pernicious Anaemia Society
2 years ago
When to switch from EOD to weekly or twice weekly?
Hi Family, this site has been more helpful than my GP and anyone else! Thank you all.. I’ve been injecting 1ml methylcobalamin EOD, for 3 months, the days that I inject and the days that I don’t inject my symptoms are about the same, numbness in hands, arm, some in legs, weak muscles. Should I try
Hi Family, this site has been more helpful than my GP and anyone else! Thank you all.. I’ve been injecting 1ml methylcobalamin EOD, for 3 months, the days that I inject and the days that I don’t inject my symptoms are about the same, numbness in hands, arm, some in legs, weak muscles. Should I try
RisingOne
in
Pernicious Anaemia Society
2 years ago
Ovulation Heart Palpitations & Joint Pain - Hashimotos
The doctor ran blood tests including thyroid, Rheumatoid arthritis,
anaemia
, full blood count - 'all normal' - I will get copies of all blood results. I'm at a loss tonight and really struggling. Can anyone advise? Thanks.
The doctor ran blood tests including thyroid, Rheumatoid arthritis,
anaemia
, full blood count - 'all normal' - I will get copies of all blood results. I'm at a loss tonight and really struggling. Can anyone advise? Thanks.
EmmaW94
in
Thyroid UK
2 years ago
Did we ever get an answer to the person who had PV and Anemia?
I have a new Hemoc Doc and my HCT is 45, my old doc wanted me under 45. Since I was HCT 45 this week I called to ask about a TP. He thought now then said go ahead. The issue is, I am on 500 mg Hydreaa 2xs per day.I think I am anemic. I know I need to be low on iron but my scores wereFeritin 3.8Iron
I have a new Hemoc Doc and my HCT is 45, my old doc wanted me under 45. Since I was HCT 45 this week I called to ask about a TP. He thought now then said go ahead. The issue is, I am on 500 mg Hydreaa 2xs per day.I think I am anemic. I know I need to be low on iron but my scores wereFeritin 3.8Iron
Limitpusher
in
MPN Voice
2 years ago
muscle fasciculations from low b12
I had low b12 and received the b12 injections, currently I now have muscle fasciculations. Has anybody else had these as a lasting affect ? have had these constant muscle twitches and spasms for approx 6 weeks. How long before all the neurological issues repair them selves ?
I had low b12 and received the b12 injections, currently I now have muscle fasciculations. Has anybody else had these as a lasting affect ? have had these constant muscle twitches and spasms for approx 6 weeks. How long before all the neurological issues repair them selves ?
PaulWalker12
in
Pernicious Anaemia Society
2 years ago
Iron Readings
The figures that are given for sufficient iron amounts never seem to tie up with the sorts of figures that I get from my blood tests. Can anyone tell me if I have sufficient iron for my RLS (currently taking 300mg of Pregabalin). Thank you so very very much. Sally 07-Oct-2022 TOT. IRON BIND CAPACITY
The figures that are given for sufficient iron amounts never seem to tie up with the sorts of figures that I get from my blood tests. Can anyone tell me if I have sufficient iron for my RLS (currently taking 300mg of Pregabalin). Thank you so very very much. Sally 07-Oct-2022 TOT. IRON BIND CAPACITY
67Waterman
in
Restless Legs Syndrome
2 years ago
Holistic first consultation of RLS sufferers with their doctor and use of intravenous iron therapy
Check this out….. Hot off the press… ..After the recent survey by European Federation of Neurology Associations (EFNA) October 3rd 2022* (see below) highlighting the more-than-disappointing results on skills of medical personnel….. This is the 1-10 points (or very similar) required in the urgently
Check this out….. Hot off the press… ..After the recent survey by European Federation of Neurology Associations (EFNA) October 3rd 2022* (see below) highlighting the more-than-disappointing results on skills of medical personnel….. This is the 1-10 points (or very similar) required in the urgently
Kakally
in
Restless Legs Syndrome
2 years ago
Vitamin D, Folate, TSH, FT4 Levels
Good afternoon, I wonder if anyone is able to advise me please? My Vit D was 57 (50-200) and Folate was 4.38 (>3.89) April 22, so on very kind advice here, I have been taking the recommended supplements. I had a blood test at the doctors 2 weeks ago, these are the results:- Vit D is now high at
Good afternoon, I wonder if anyone is able to advise me please? My Vit D was 57 (50-200) and Folate was 4.38 (>3.89) April 22, so on very kind advice here, I have been taking the recommended supplements. I had a blood test at the doctors 2 weeks ago, these are the results:- Vit D is now high at
sadiethedog1
in
Thyroid UK
2 years ago
IF BUYING FROM AMAZON , USE www.smile.amazon.co.uk. “ AND CHOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY.
You can then contribute to the PAS , at no cost to yourself. “ Every little helps” . Thank you .
You can then contribute to the PAS , at no cost to yourself. “ Every little helps” . Thank you .
wedgewood
in
Pernicious Anaemia Society
2 years ago
Low B12 and headaches
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
Beee2
in
Pernicious Anaemia Society
2 years ago
Introducing Better Together for Healthy Bone Marrow
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The Aplastic
Anaemia
Trust, Congenital
Anaemia
Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The Aplastic
Anaemia
Trust, Congenital
Anaemia
Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
JayKayPee
Administrator
in
DC Action
2 years ago
how much gentle iron?
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
Jukebox55
in
Restless Legs Syndrome
2 years ago
General Advise please
She has recently been following B12 protocol as she had low folate & possible Pernicious
Anaemia
. We have been concerned that her thyroid levels are quite low & would appreciate thoughts on whether this may be an issue ?
She has recently been following B12 protocol as she had low folate & possible Pernicious
Anaemia
. We have been concerned that her thyroid levels are quite low & would appreciate thoughts on whether this may be an issue ?
col2022
in
Thyroid UK
2 years ago
RA and bruising.
I'm wondering if it's the
anaemia
causing the easy bruising. Anyone have any similar experiences/tips? Thanks.
I'm wondering if it's the
anaemia
causing the easy bruising. Anyone have any similar experiences/tips? Thanks.
mjrminor
in
NRAS
2 years ago
anxiety
hi guys, i was diagnosed with pernicious
anaemia
last may- prior to that i had some anxiety issues and also went through separation from my wife during lockdown before pernicious diagnosis- feel im more anxious now- wandering if condition has made me more anxious?
hi guys, i was diagnosed with pernicious
anaemia
last may- prior to that i had some anxiety issues and also went through separation from my wife during lockdown before pernicious diagnosis- feel im more anxious now- wandering if condition has made me more anxious?
dolphin66stag
in
Pernicious Anaemia Society
2 years ago
Am I in the wrong
Yesterday I had a weekly dose of chemo. but unfortunately the 2nd dose was cancelled due to blood count the 1st dose I asked about my cfcs injection s to bulid my immune system up any way I had discuss this yesterday. if I had injection to come away with as last time I had to go back and get them they
Yesterday I had a weekly dose of chemo. but unfortunately the 2nd dose was cancelled due to blood count the 1st dose I asked about my cfcs injection s to bulid my immune system up any way I had discuss this yesterday. if I had injection to come away with as last time I had to go back and get them they
Bobbyo1
in
My Ovacome
2 years ago
Iron Infusion coming up
I have an iron infusion coming up next week, but I'm getting a bit nervous about it. This is because my RLS symptoms seem to be getting better in the last few weeks. maybe due to the iron supplements. As of the last blood test, maybe a month ago, my Ferritin level was at 26, which is within the
I have an iron infusion coming up next week, but I'm getting a bit nervous about it. This is because my RLS symptoms seem to be getting better in the last few weeks. maybe due to the iron supplements. As of the last blood test, maybe a month ago, my Ferritin level was at 26, which is within the
Laura9594
in
Restless Legs Syndrome
2 years ago
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