General Advise please

[col2022]

I'm looking for advise for my daughter who is 27years old & been unwell for the last 18months, doctor diagnosed with CFS. She has recently been following B12 protocol as she had low folate & possible Pernicious Anaemia.

We have been concerned that her thyroid levels are quite low & would appreciate thoughts on whether this may be an issue ?

Thank you

Thyroid levels;

23/02/2021

Serum TSH Level 1.22

Serum free T4 Level 14

04/10/2021

Serum TSH Level 0.48

Serum free T4 Level 15.6

05/07/2022

Serum TSH Level 1.64

Serum free T4 Level 11.4

04/10/2022

Serum TSH Level 0.77

Serum free T4 Level 12.3

[Hidden]

hello, sorry to hear about your daughter! that tsh isn’t concerning but we would need ft3 really to see if there is a conversion issue here and ranges are required

[SlowDragon Administrator]

Welcome to the forum

Just testing TSH and Ft4 is completely inadequate

Recommend getting FULL thyroid and vitamin testing done

Is she now on B12 injections or daily supplements?

Has she had vitamin D, folate, full iron panel test for anaemia including ferritin?

What’s her diet like

Is she vegetarian or vegan or any food allergies, eg dairy or gluten

For full Thyroid evaluation she needs TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Please add any other results you might have already

Or come back with new post once she gets new test results