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Dull headaches
I'm on Roactemra injections now bi weekly due to low neutrophils. Question anyone else on Roactemra wake in mornings with a dull headache. I've noticed it's usually worse in the days after the injection.
I'm on Roactemra injections now bi weekly due to low neutrophils. Question anyone else on Roactemra wake in mornings with a dull headache. I've noticed it's usually worse in the days after the injection.
Headpain24
in
PMRGCAuk
1 month ago
Anemia
Hi I am very concerned about my 18 year old grand daughter, last May she had an implant put in her arm to prevent her getting pregnant, however since this was at the insistance of her mother who is very self absorbed and lacks in emotional skills ( has never told any of the grandchildren they are loved
Hi I am very concerned about my 18 year old grand daughter, last May she had an implant put in her arm to prevent her getting pregnant, however since this was at the insistance of her mother who is very self absorbed and lacks in emotional skills ( has never told any of the grandchildren they are loved
Hidden
in
Thyroid UK
1 month ago
Looking for PA Consultant
Hi, I was diagnosed about thee months ago and I'm on B12 injections and feeling much better. However, diagnosis remains very uncleal. Very low B12, below limits of the test, but no antigens to intrinsic factor and negative on caeleac disease. Cant fault the GP but feels very limited what they will
Hi, I was diagnosed about thee months ago and I'm on B12 injections and feeling much better. However, diagnosis remains very uncleal. Very low B12, below limits of the test, but no antigens to intrinsic factor and negative on caeleac disease. Cant fault the GP but feels very limited what they will
oilbeetle
in
Pernicious Anaemia Society
1 month ago
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Buprenorphine side effects- sertraline
I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was very reluctant and suggested sertraline. Has anyone used this and does it cause RLS symptoms? Thanks for any help on this Davchar23
I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was very reluctant and suggested sertraline. Has anyone used this and does it cause RLS symptoms? Thanks for any help on this Davchar23
davchar23
in
Restless Legs Syndrome
1 month ago
Thanks for yr thghts on sudden ferritin rise...wonder if anyone can advise on iron panel results please...
Thank you for your help with thoughts as to rise in ferritin recently. My iron panel has worked, it was a fingerprick test so unsure as to accuracy? But results as followsIRON 17.5(10-30) TIBC 51.7(45-81) UIBC 34.2(14-56) TRANSF SAT 33.8 (25-45) FERRITIN 59.9 (23-) Just to recap ferritin was End March
Thank you for your help with thoughts as to rise in ferritin recently. My iron panel has worked, it was a fingerprick test so unsure as to accuracy? But results as followsIRON 17.5(10-30) TIBC 51.7(45-81) UIBC 34.2(14-56) TRANSF SAT 33.8 (25-45) FERRITIN 59.9 (23-) Just to recap ferritin was End March
Jo5454
in
Pernicious Anaemia Society
1 month ago
Blood results
Had my blood test results and all within range but I guess not optimal: Ferritin 34 (been at this level for few years) Range (13-150) B12 - 592 (range 197-771) Serum folate 10.2 (range 3.89 / 9999 Vitamin D 81 (range 50 to 374) FBC all I. Range too. Any advice ?
Had my blood test results and all within range but I guess not optimal: Ferritin 34 (been at this level for few years) Range (13-150) B12 - 592 (range 197-771) Serum folate 10.2 (range 3.89 / 9999 Vitamin D 81 (range 50 to 374) FBC all I. Range too. Any advice ?
Ellen70
in
Thyroid UK
1 month ago
Purchasing Hydroxocobalamin Ampoules UK
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
New144
in
Pernicious Anaemia Society
1 month ago
Active B12 better, do I reduce injections?
I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. I have recently done a Medichecks test which showed my folate and Active B12 are now in good range - will post in comments. I wouldn’t say any of my symptoms are gone, some have improved very slightly. Dr Klein thinks I can
I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. I have recently done a Medichecks test which showed my folate and Active B12 are now in good range - will post in comments. I wouldn’t say any of my symptoms are gone, some have improved very slightly. Dr Klein thinks I can
Chickens44
in
Pernicious Anaemia Society
1 month ago
follow up
I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at my progress on the more regular B12. Interestingly, my most recent blood tests for the neurologist included B12/folate levels (which I wasn’t fussed about as I’m self-managing the B12 at home). I had done an injection the
I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at my progress on the more regular B12. Interestingly, my most recent blood tests for the neurologist included B12/folate levels (which I wasn’t fussed about as I’m self-managing the B12 at home). I had done an injection the
PlatypusProfit8077
in
Pernicious Anaemia Society
1 month ago
Megaloblastic anemia and very low b12
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
Plumpudding
in
Pernicious Anaemia Society
2 months ago
B12 injections
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
130396
in
MPN Voice
2 months ago
does everyone who uses methylB12 also use adenosylcobalamin as well with it
hello All, so I was looking in to cyanocobalamin as I take methyl B12 for now and trying to decide if I want to try cyano, and I came across on healthline.com that if you take methyl B12 you should use adenosylcobalamin with it. I have been wondering if anyone on here uses both. also is taking a small
hello All, so I was looking in to cyanocobalamin as I take methyl B12 for now and trying to decide if I want to try cyano, and I came across on healthline.com that if you take methyl B12 you should use adenosylcobalamin with it. I have been wondering if anyone on here uses both. also is taking a small
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
Dr. Hospital Notes
Just read other MPN patients in the UK can get results on line. I live in Wales... UK but not. If that makes sense. I have tried for over a year to get my notes from the Dr. On line. To see how long my bloods have been anemic. I do know I was put on iron tablets over 10 years ago, taken of and put on
Just read other MPN patients in the UK can get results on line. I live in Wales... UK but not. If that makes sense. I have tried for over a year to get my notes from the Dr. On line. To see how long my bloods have been anemic. I do know I was put on iron tablets over 10 years ago, taken of and put on
mag123ben
in
MPN Voice
2 months ago
IV Iron Infusion for RLS
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
pages2tx
in
Restless Legs Syndrome
2 months ago
abnormal pre and postop blood counts TT
update on pcp visit Thursday august 8, 2024. Labs drawn, calcium now 9.7 range 8.8-10.3. Headaches! BP 150/100, started on HCTZ 25mg, did not effect BP and I broke out in mild hives! I have my appointment with the surgeon this Wednesday the 14th, I sure hope I’m not going to be on a roller coaster! Pathology
update on pcp visit Thursday august 8, 2024. Labs drawn, calcium now 9.7 range 8.8-10.3. Headaches! BP 150/100, started on HCTZ 25mg, did not effect BP and I broke out in mild hives! I have my appointment with the surgeon this Wednesday the 14th, I sure hope I’m not going to be on a roller coaster! Pathology
bo62
in
Thyroid UK
2 months ago
Lercandipine
I've been taking Lercandipine for about 5 months and my ability to walk short distances is torturous and general weakness/shortness of breath. I put it down to a back injury I sustained 6 months ago and thought that this has been causing the walking problem! I'm now thinking that it could well be the
I've been taking Lercandipine for about 5 months and my ability to walk short distances is torturous and general weakness/shortness of breath. I put it down to a back injury I sustained 6 months ago and thought that this has been causing the walking problem! I'm now thinking that it could well be the
Leejones
in
Thyroid UK
2 months ago
Withdrawal of Pramipex ER 0.75
My Mom is 76 years old suffering from RLS since 2013. She is on Pramipex ER 0.75 from last 5 years. Please suggest how should she take withdrawal from this medicine. I feel very scary of her augmentation if at all she encounters. Also I don't know any good Neurologist who is specialized in this management
My Mom is 76 years old suffering from RLS since 2013. She is on Pramipex ER 0.75 from last 5 years. Please suggest how should she take withdrawal from this medicine. I feel very scary of her augmentation if at all she encounters. Also I don't know any good Neurologist who is specialized in this management
rakeshlmotwani
in
Restless Legs Syndrome
2 months ago
Tips for a clean and clear blood test
Dear All, I'm asking you as I know you will have answers. I have a blood test arranged, not for Thyroid, I know those does and don'ts (thanks to HealthUnlocked). This test is to differentiate between Type 1 and Type 2 Diabetes. I can go at a time I want, would it be best first thing, lunchtime
Dear All, I'm asking you as I know you will have answers. I have a blood test arranged, not for Thyroid, I know those does and don'ts (thanks to HealthUnlocked). This test is to differentiate between Type 1 and Type 2 Diabetes. I can go at a time I want, would it be best first thing, lunchtime
rosiebones
in
Thyroid UK
2 months ago
A bit of a meltdown
Hi again, I haven't posted for a while hope your're all coping. I'm having a bit of a meltdown it happens now and again, most of the time I try not to dwell on it and stay positive about the extensive Intestinal Metaplasia, raging Gastrin levels and everything else that is Pernicious anemia and my last
Hi again, I haven't posted for a while hope your're all coping. I'm having a bit of a meltdown it happens now and again, most of the time I try not to dwell on it and stay positive about the extensive Intestinal Metaplasia, raging Gastrin levels and everything else that is Pernicious anemia and my last
Helliborous
in
Pernicious Anaemia Society
2 months ago
ferritin level suddenly jumped.. can this happen??
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
Starseed56
in
Thyroid UK
2 months ago
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