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Is it my thyroid?
I have been having b12 injections as somebody told me it sounded like I was suffering with pernicious
anaemia
but sometimes I still have these symptoms despite the injections Thankyou
I have been having b12 injections as somebody told me it sounded like I was suffering with pernicious
anaemia
but sometimes I still have these symptoms despite the injections Thankyou
Rach77788
in
Thyroid UK
1 year ago
Being gas-lit: NOT Hypothyroidism, it’s Silent Reflux says Consultant Thyroid/ENT – Advice requested.
I asked the GP if I could be tested for pernicious
anaemia
antibodies, and was blocked at every turn with the now mundane “your iron has been stable for years” and “you’ve not got hypothyroidism”.
I asked the GP if I could be tested for pernicious
anaemia
antibodies, and was blocked at every turn with the now mundane “your iron has been stable for years” and “you’ve not got hypothyroidism”.
TorcHouse
in
Thyroid UK
3 months ago
Flare up for weeks
was given iron tablets 6 weeks ago for
anaemia
, dose was 1, 3 times a day. For 2 weeks managed 1 twice a day, then ibs flare up started. Lots of bloating, wind and pain. Dropped down to 1 a day. Then had a week of antibiotics for toothache. Since then everyday is awful. Barely been out the house.
was given iron tablets 6 weeks ago for
anaemia
, dose was 1, 3 times a day. For 2 weeks managed 1 twice a day, then ibs flare up started. Lots of bloating, wind and pain. Dropped down to 1 a day. Then had a week of antibiotics for toothache. Since then everyday is awful. Barely been out the house.
Booth29
in
IBS Network
1 year ago
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thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
1 year ago
B12 problems?
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
trisha7
in
Thyroid UK
1 year ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
1 year ago
Besremi working well- 150 mcg every month instead of bi-weekly
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
Pat032018
in
MPN Voice
1 year ago
Feeling sad and worried
I also have carpal tunnel, severe
anaemia
and other issues, as well as the main symptoms of RA. Two of my GPs both felt it was RA and were very insistent about this late last year.
I also have carpal tunnel, severe
anaemia
and other issues, as well as the main symptoms of RA. Two of my GPs both felt it was RA and were very insistent about this late last year.
Kati66
in
NRAS
1 year ago
New Pernicious Anemia diagnosis
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Oneash
in
Pernicious Anaemia Society
1 year ago
High Eosinophils
I'd be interested to hear if others that have been diagnosed with autoimmune gastritis/PA and/or Hashimoto's Thyroiditis have consistently higher than normal Eosinophils in their blood test results. Just curious. Rexz
I'd be interested to hear if others that have been diagnosed with autoimmune gastritis/PA and/or Hashimoto's Thyroiditis have consistently higher than normal Eosinophils in their blood test results. Just curious. Rexz
Rexz
in
Pernicious Anaemia Society
1 year ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Confusing iron panel results
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Galadriel_BG
in
Thyroid UK
1 year ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Well, all my
anaemia
, iron etc results are now officially significant enough for my GP to alert my gastroenterologist who immediately referred me for IV iron.
Well, all my
anaemia
, iron etc results are now officially significant enough for my GP to alert my gastroenterologist who immediately referred me for IV iron.
Barnclown
in
Restless Legs Syndrome
6 months ago
Folate deficiency
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
LynneG
in
Pernicious Anaemia Society
1 year ago
Iron Deficiency Without Anemia (IDWA)
Nov 2020 = 112 Jan 2021 = 78 Jun 2021 = 64 Mar 2022 = 45 May 2022 = 30 Jan 2023 = 22 Seven Iron IV infusions between February and April May 2023 = 111 Iron deficiency without
anaemia
: a diagnosis that matters This is a great paper.
Nov 2020 = 112 Jan 2021 = 78 Jun 2021 = 64 Mar 2022 = 45 May 2022 = 30 Jan 2023 = 22 Seven Iron IV infusions between February and April May 2023 = 111 Iron deficiency without
anaemia
: a diagnosis that matters This is a great paper.
Rexz
in
Pernicious Anaemia Society
1 year ago
Buprenorphine and stomach pain
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Nanpat
in
Restless Legs Syndrome
1 year ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
how long after beginning injections did you feel better?
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
Merlotponty
in
Pernicious Anaemia Society
1 year ago
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