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Weakness and fatigue after nearly 3 years of injections
Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the first year or so, but since then it seems to have tapered off. Some symptoms that have improved include dark vision, depression, balance issues,
Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the first year or so, but since then it seems to have tapered off. Some symptoms that have improved include dark vision, depression, balance issues,
KittyKitten
in
Pernicious Anaemia Society
1 year ago
🫀rate & thyroid
Keith Littlewood - Phd researcher in environmental pollutants and thyroid dysfunction posted: [i]“Understanding how the heart is affected by low thyroid hormone can help to avoid unnecessary single action heart medications. Like the general function of the body that relies on a voltage, decreased
Keith Littlewood - Phd researcher in environmental pollutants and thyroid dysfunction posted: [i]“Understanding how the heart is affected by low thyroid hormone can help to avoid unnecessary single action heart medications. Like the general function of the body that relies on a voltage, decreased
Hidden
in
Thyroid UK
1 year ago
Where do I go from here?
I’ve now had a stool test and a blood test to check for
anaemia
but nothing has come back. Where do I go from here? The GP doesn’t seem interested. I’m so worried. I’m convinced it’s something bad.
I’ve now had a stool test and a blood test to check for
anaemia
but nothing has come back. Where do I go from here? The GP doesn’t seem interested. I’m so worried. I’m convinced it’s something bad.
YellowDancing
in
IBS Network
1 year ago
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just had my results in can someone help with them please
hi I posted my thyroid results last night and I’ve just had my other blood results back. Can anyone help me with this please? Thanks in advance x
Blood haematinic levels Serum vitamin B12 level 508 ng/L [197.0 - 771.0]
Serum folate level > 20.0 ug/L [3.0 - 20.0]
Above Recommended
hi I posted my thyroid results last night and I’ve just had my other blood results back. Can anyone help me with this please? Thanks in advance x
Blood haematinic levels Serum vitamin B12 level 508 ng/L [197.0 - 771.0]
Serum folate level > 20.0 ug/L [3.0 - 20.0]
Above Recommended
HappyBadger
in
Thyroid UK
1 year ago
Not so good news - after 11 months of Besremi, WBC, RBC, Hemoglobin, and HCT were all below normal
For the last 11 months, WBC, RBC, Hemoglobin, and HCT were all trending lower; and in general CBC and CMP numbers have been normal for the last 9 months until last week (the 11th month). I hope this is just due to a higher dose than necessary. I just had 100 mcg of Besremi, and it was 150 mcg for around
For the last 11 months, WBC, RBC, Hemoglobin, and HCT were all trending lower; and in general CBC and CMP numbers have been normal for the last 9 months until last week (the 11th month). I hope this is just due to a higher dose than necessary. I just had 100 mcg of Besremi, and it was 150 mcg for around
Pat032018
in
MPN Voice
1 year ago
Tips to tackle GP!
I have been prone to
anaemia
for a while and take Floradix daily. I’m not sure if GP is planning to ring me about the low iron, but I know she will say TSH is fine. Any links to support my conversation with GP or helpful tips on how to proceed would be much appreciated.
I have been prone to
anaemia
for a while and take Floradix daily. I’m not sure if GP is planning to ring me about the low iron, but I know she will say TSH is fine. Any links to support my conversation with GP or helpful tips on how to proceed would be much appreciated.
DaisyTed
in
Thyroid UK
1 year ago
Help to understand blood test results and the impact of anaemia on hypothyroidism
blood test results are as follows serum TSH 0.32 mlu/L Free T4 16.7 pmol/L Free T3 4.1 pmol/L Serum ferritin 23 ug/L last blood test I was
anaemia
so I was perscribed a course of ferrous fumerate (iron) I felt so much better 😊 my iron tablets ran out about 2.5 weeks ago and gp wouldn’t prescribe
blood test results are as follows serum TSH 0.32 mlu/L Free T4 16.7 pmol/L Free T3 4.1 pmol/L Serum ferritin 23 ug/L last blood test I was
anaemia
so I was perscribed a course of ferrous fumerate (iron) I felt so much better 😊 my iron tablets ran out about 2.5 weeks ago and gp wouldn’t prescribe
Kittylacey
in
Thyroid UK
1 year ago
Folate Level 30
Hi everyone, I wondered if someone could give me some advice on my folate levels. I am self injecting every day. The doctor initially prescribed daily injections for 3 weeks and after those 3 weeks we had another appointment and my neuro symptoms had not subsided - so he recommended for me to continue
Hi everyone, I wondered if someone could give me some advice on my folate levels. I am self injecting every day. The doctor initially prescribed daily injections for 3 weeks and after those 3 weeks we had another appointment and my neuro symptoms had not subsided - so he recommended for me to continue
DiNL
in
Pernicious Anaemia Society
1 year ago
Boost Hemoglobin and Venetoclax coverage in Ontario
Hi all, Hope you’re well Had a follow up with my Oncologist last week, He suggested starting treatment in 3 months as Hemoglobin is 104, palettes count 150 WBC 137 lymphocytes 134, increased from 124 back in October. My questions are: 1- how to boost my hemoglobin? If I reach 110 there will be no
Hi all, Hope you’re well Had a follow up with my Oncologist last week, He suggested starting treatment in 3 months as Hemoglobin is 104, palettes count 150 WBC 137 lymphocytes 134, increased from 124 back in October. My questions are: 1- how to boost my hemoglobin? If I reach 110 there will be no
Sunny-planet
in
CLL Support
1 year ago
HELP desperately needed….. 🤒
I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who might be new to all of this, the PA veterans Are a mine of information) Serum b12 -279 These tests were way back in 2013. 😱 I battled with
I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who might be new to all of this, the PA veterans Are a mine of information) Serum b12 -279 These tests were way back in 2013. 😱 I battled with
Joanne1971
in
Pernicious Anaemia Society
1 year ago
Never ending problems
I have Hashimotos Thyroiditis, Arthritis, Pernicious
Anaemia
, Hypertension, Coeliac disease and now some unexplained kidney problem.
I have Hashimotos Thyroiditis, Arthritis, Pernicious
Anaemia
, Hypertension, Coeliac disease and now some unexplained kidney problem.
Loobs39
in
Kidney Disease
1 year ago
CALR+ eosinophilia
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
yung_kokonut
in
MPN Voice
1 year ago
Gut /thyroid next steps
Querying
anaemia
/pa but wondering if addressing stomach / FUT2 will resolve issues have pins needles, periodic burning foot pain enlarged tongue Taking Vit D with K2 at the moment Stopped taking B12 for now as got jittery and wanted to know if it was due to Levo increase Thank you all, this
Querying
anaemia
/pa but wondering if addressing stomach / FUT2 will resolve issues have pins needles, periodic burning foot pain enlarged tongue Taking Vit D with K2 at the moment Stopped taking B12 for now as got jittery and wanted to know if it was due to Levo increase Thank you all, this
Bacca
in
Thyroid UK
1 year ago
Weird blood results Part 4
I explained my vit b12 deficiency and he said to test for pernicious
anaemia
, caeliac and put me on a course of vit injections.
I explained my vit b12 deficiency and he said to test for pernicious
anaemia
, caeliac and put me on a course of vit injections.
Stefcon1
in
Thyroid UK
1 year ago
myelofibrosis
Does anyone on here know if mf should always be treated,main symptom is fatigue, slightly enlarged spleen and slight
anaemia
( for 3 years)not sure about the watch and wait approach.
Does anyone on here know if mf should always be treated,main symptom is fatigue, slightly enlarged spleen and slight
anaemia
( for 3 years)not sure about the watch and wait approach.
glyndale
in
MPN Voice
1 year ago
HNY!... and a warning for those who lead busy lives (aka all of us)
This is more of a warning to those of you who lead busy lives and live with pernicious
anaemia
/ B12 deficiency. I was diagnosed in November 2020 after a desperate 9 month journey in the Australian health system left me bedridden.
This is more of a warning to those of you who lead busy lives and live with pernicious
anaemia
/ B12 deficiency. I was diagnosed in November 2020 after a desperate 9 month journey in the Australian health system left me bedridden.
ottiliefloyd
in
Pernicious Anaemia Society
4 months ago
Vitamin B12
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Whymelord
in
Restless Legs Syndrome
1 year ago
High Platelet Diagnosis Update….
She said that iron deficiency without
anaemia
could still cause an elevated platelet count. As such I was to take iron tablets for 6 months, I am currently at the 3 month mark and my iron has improved and platelets have come down from 565 to 513.
She said that iron deficiency without
anaemia
could still cause an elevated platelet count. As such I was to take iron tablets for 6 months, I am currently at the 3 month mark and my iron has improved and platelets have come down from 565 to 513.
Purdy13
in
MPN Voice
10 months ago
Iron tests included in bloodwork?
Hello! Have been on hydroxy a year now and platelets are just beneath 400. I also have begun experiencing really nasty fatigue and wonder why ferritin the a not included in bloodwork? I have seen pretty low iron levels and will begin supplementing with follow-up test I had to request. Anyone else questioned
Hello! Have been on hydroxy a year now and platelets are just beneath 400. I also have begun experiencing really nasty fatigue and wonder why ferritin the a not included in bloodwork? I have seen pretty low iron levels and will begin supplementing with follow-up test I had to request. Anyone else questioned
livwellnuff
in
MPN Voice
1 year ago
Pernicious anemia advice/ reassurance
Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been self injecting for 2.5 years. I have found injections every 3 weeks and 3 days keeps me healthy for 99% of the time. Occasionally though I have major drops where I am -unable to go to work - I can’t get my head around
Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been self injecting for 2.5 years. I have found injections every 3 weeks and 3 days keeps me healthy for 99% of the time. Occasionally though I have major drops where I am -unable to go to work - I can’t get my head around
ChloeW92
in
Pernicious Anaemia Society
1 year ago
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