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Latest test results
My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27 - 4.2) FT4 17 (12 - 22) 50% through range, increased from 24% in October FT3 4 (3.1 - 6.8) 24.32% through range, no change from October test Previous MMH
anaemia
blood test from
My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27 - 4.2) FT4 17 (12 - 22) 50% through range, increased from 24% in October FT3 4 (3.1 - 6.8) 24.32% through range, no change from October test Previous MMH
anaemia
blood test from
Amtired
in
Thyroid UK
9 months ago
Question about mood
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
Schpsych2414
in
Pernicious Anaemia Society
11 months ago
Methylmalonic Acid Test
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
LynneG
in
Pernicious Anaemia Society
11 months ago
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iron transfusion
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Heather-rose
in
Restless Legs Syndrome
11 months ago
The value of yogurt for pred
I've been away for the last two weekends, so rather than bother with yogurt I had my pred (2.5mg) with a pot of Bircher muesli. The first time, about an hour later I had a nasty taste in my mouth and acid reflux. It was the pred dissolving, but I thought perhaps it was 'one of those things'. Anyway
I've been away for the last two weekends, so rather than bother with yogurt I had my pred (2.5mg) with a pot of Bircher muesli. The first time, about an hour later I had a nasty taste in my mouth and acid reflux. It was the pred dissolving, but I thought perhaps it was 'one of those things'. Anyway
Viveka
in
PMRGCAuk
11 months ago
Vitamin/supplements
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Fee52
in
Thyroid UK
11 months ago
Vitamin B12 deficiency in over 16s: diagnosis and management
[i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread started today on the Pernicious
Anaemia
Society forum:
[i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread started today on the Pernicious
Anaemia
Society forum:
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Oral iron regimen
I had an iron infusion (Newcastle uk) last December which put my serum ferritin up from 37 to 237, and helped considerably. However, it has gradually slipped back to 180, so I am hoping to start the oral gentle iron. Please can someone remind me of the best time to take these, and dosage. The tablets
I had an iron infusion (Newcastle uk) last December which put my serum ferritin up from 37 to 237, and helped considerably. However, it has gradually slipped back to 180, so I am hoping to start the oral gentle iron. Please can someone remind me of the best time to take these, and dosage. The tablets
Edengirl58
in
Restless Legs Syndrome
11 months ago
To Bone marrow biopsy or not to bone marrow biopsy that is the question.
Previously it was thought I had pernicious
anaemia
(I’m in that forum too) but then they weren’t sure. I am on B12 injections (3 monthly but my levels of that are good at moment). I was referred to Haematologist last year due to low white blood cells.
Previously it was thought I had pernicious
anaemia
(I’m in that forum too) but then they weren’t sure. I am on B12 injections (3 monthly but my levels of that are good at moment). I was referred to Haematologist last year due to low white blood cells.
Tellingbones
in
CLL Support
4 months ago
Is my problem poor T4-T3 conversion also Endo recommendation please.
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
nannieJen
in
Thyroid UK
7 months ago
B12 deficiency and Metformin
current clinical guidelines; continue metformin therapy for as long as it is tolerated and not contraindicated Of special interest due to it's nonsensical nature is the following excerpt: * test vitamin B12 serum levels if deficiency is suspected (for example, in patients presenting with megaloblastic
anaemia
current clinical guidelines; continue metformin therapy for as long as it is tolerated and not contraindicated Of special interest due to it's nonsensical nature is the following excerpt: * test vitamin B12 serum levels if deficiency is suspected (for example, in patients presenting with megaloblastic
anaemia
WiscGuy
in
Pernicious Anaemia Society
1 year ago
UK person wanting injectable methylcobalamin
Hello everyone, I'm based in the UK and have Pernicious
Anaemia
. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK.
Hello everyone, I'm based in the UK and have Pernicious
Anaemia
. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK.
Seasidesunshine1979
in
Pernicious Anaemia Society
1 year ago
Clunking, Fading and Sleep
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
7 months ago
PV - Folic Acid and Vit D
Hi Please excuse if this has been asked before, I’m sure it has but can’t find the post 😬 I have PV and had blood done at Dr recently and was told I needed to take folic acid and Vit D. I take HU which has recently been reduced by 1 tablet a week and last bloods were HCT 38, Hb 13.4, WBC 7.6
Hi Please excuse if this has been asked before, I’m sure it has but can’t find the post 😬 I have PV and had blood done at Dr recently and was told I needed to take folic acid and Vit D. I take HU which has recently been reduced by 1 tablet a week and last bloods were HCT 38, Hb 13.4, WBC 7.6
Hocus58
in
MPN Voice
1 year ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
7 months ago
TSAT low, ferretin high
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
sigurdur
in
Restless Legs Syndrome
7 months ago
NAFLD and Fatigue
I was diagnosed with iron deficiency
anaemia
at the beginning of last year, which was treated, and then low vitamin B12 which I’ve had injections for and will be every 3 months, so as you can imagine it’s a bit of a puzzle for me and my GP to work out what is causing what!
I was diagnosed with iron deficiency
anaemia
at the beginning of last year, which was treated, and then low vitamin B12 which I’ve had injections for and will be every 3 months, so as you can imagine it’s a bit of a puzzle for me and my GP to work out what is causing what!
Hidden
in
British Liver Trust
6 months ago
Blood result and raised MCV
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
KBird01
in
Pernicious Anaemia Society
1 year ago
Anyone has this issue
Every bit of research I have read states Pernicious
Anaemia
doesn’t go away and you need B12 injections for the rest of your life. Any advice anyone can give befor I meet with a GP would be much appreciated, thank you in advance.
Every bit of research I have read states Pernicious
Anaemia
doesn’t go away and you need B12 injections for the rest of your life. Any advice anyone can give befor I meet with a GP would be much appreciated, thank you in advance.
1998cd
in
Pernicious Anaemia Society
1 year ago
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