Experiences with

Anaemia

Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year

I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been at around this mark since 2021 at least.

It’s a bit basic but it takes me back to the 1970’s and shows I was first diagnosed with pernicious anaemia. I hope this is of some use. Best wishes x

Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ‘could’ maybe be the reason I’m still feeling exhausted/heavy tired legs?? Thank you in advance

Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this

Our daughter, who is 40, has had gut issues since 14 yrs old as NHS didn’t detect helicabactor pylori for more than 2 years (thought she was too young to have it) and eventually gave her huge doses of antibiotics and other junk which affected her gut big time. Eventually got an appt with Dr Sarah Myhill

I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.

Previously it was thought I had pernicious anaemia (I’m in that forum too) but then they weren’t sure. I am on B12 injections (3 monthly but my levels of that are good at moment). I was referred to Haematologist last year due to low white blood cells.

POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have an endocrinologist, i assume I need one to get both T4 and T3.

I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb

Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different

I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your

Today was "just" half a pint, to get him started as some people can end up with a form of anaemia if the blood is removed too fast. The treatment was over in 5 minutes, the waiting around afterwards for 2 lots of observations took far longer!So this is my gentle nudge to you all.

Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain, and similar involvements with leg nerves. In searching around for related B12 information in Google Scholar I came across this article: https:

My mun was diagnosed with thrombocytosis around 3 yrs ago. She has been on Hydresan for these years but during the past two blood tests she had to take her platelets went up to 600 in the first one and the second one was 700..We will contact her doctor but is this something to worry about? Ever since

Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself

No evidence of anaemia on blood results. No IF antibody but positive for Gastric Parietal Cell antibodies. All of the symptoms improved by a month or so post loading doses. In November Dr re tested B12 level. It was 720ng/L Dr was reluctant to prescribe the 3 monthly maintenance injections.

I was finding magnesium helped my migraines, but now the doctors put me on ferrous sulphate for anaemia and I've been told, you can't take both, as they stop each others affectiveness. I'm very worried, as my migraines seem worse since I've stopped the magnesium thankyou

I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks

I’m thinking it’s down to my anaemia as well but not sure. I am already taking indigestion tablets everyday but seems to not work. I always feel lightheaded, tired all the time, gets incontinent with urine. When I was younger I tend to get red spots on my skin.