long covid and pernicious anaemia

[Io1000]

please has anyone any useful tips as have just been diagnosed with long covid.

All the PA symptoms plus utter exhaustion I have increased my IM injections but doesn’t help very much.In my late 80s which doesn’t help either.Thank you for reading.

[Nackapan]

Is your vit D okay ?Also check what vitamin abd mineral supplements might help.

Good you've upped your B12.

Tales a while to feel benefits from a higher frequency .

[pitney in reply to Nackapan]

I would make sure you stay on top of a good diet for a while as well, hope you feel better soon👍

[Nackapan in reply to pitney]

For lo1000

[Sleepybunny]

Hi,

I've read articles that suggest that people with long covid can have various vitamin/mineral deficiencies eg Vitamin D, selenium and others.

If you search for "long covid vitamin mineral deficiency" that should show some relevant articles.

PAS (Pernicious Anaemia Society) wrote an article in 2021 about Long Covid and Pernicious Anaemia.

pernicious-anaemia-society....

Many people who post on this forum also report folate, iron and Vitamin D deficiencies as well as B12. Have folate, iron and Vit D been tested recently?

I'm not medically trained.

[BirdlessBox]

If you took the COVID-19 "vaccine(s)", you might have Long Vaccine rather than Long Covid; they both have the same pathogen, but the "vaccine" causes your body to keep making it. The advice about improving your nutritional status is worthwhile; you may also find things that block the spike protein helpful. Off the top of my head, I think nicotine was one type, but I know there are protocols that help.

[Gambit62 Administrator in reply to BirdlessBox]

BirdlessBox This article came up when I tried searching re Long Vaccine. It says that the condition is extremely rare amongst other things

science.org/content/article...

I haven't been able to find anything about the blockers you mention.

[BirdlessBox in reply to Gambit62]

Gosh, I don't know where to start. You will need to look far more broadly if you want to get past the rhetoric. How seriously do you want to know?

[Gambit62 Administrator in reply to BirdlessBox]

To be honest - I'm not really interested just concerned about the suggestion that people take nicotine.

[BirdlessBox in reply to Gambit62]

Here's a case study: pmc.ncbi.nlm.nih.gov/articl...

"Conclusions

Post-COVID-19 syndrome is well explained in its pathogenesis and clinical manifestation, with cholinergic neuromodulation disorder due to partial or complete blockage of nicotinic acetylcholine receptors by the SARS-CoV-2 virus playing a potentially important role. In all four of the cases we studied, transcutaneous use of nicotine led to a near immediate improvement in symptoms and rapid restitutio ad integrum. The course of symptom improvement was as distinct as the clinical presentation of post-COVID-19 syndrome in each patient. The ease of implementation and the good controllability of the minor side effects make randomized, double-blinded studies to investigate this treatment option more closely seem feasible. Based on the results of this case study, this treatment option—using nicotine patches to combat long-haul COVID—seems far superior to the time-consuming, often underwhelming or disappointing, costly and complex rehabilitation measures currently available to these patients."

Do a search and you will find more info.

[Myoldcat]

On a different track, I have recently been reading about LC and came across an interesting observation from a medical practitioner/LC sufferer. While acutely ill with the virus, her breathing had changed to very shallow, top-of-the-lung breathing and even when she 'recovered', her breathing never switched back to normal, fuller lung breathing. So although her blood oxygen didn't show low, she wasn't getting optimal amounts, which of course wouldn't help fatigue. She was advised to use a very simple breath retraining device, which in her case brought great improvement even after several years.

It's called an Incentive Spirometer, here are links to the device and its use:-

medisave.co.uk/products/inc...

uhcw.nhs.uk/download/client...

Wishing you continued recovery x

[JHEW0836 in reply to Myoldcat]

Thanks so much for sharing! This describes exactly what happened to my breathing after having the Delta variant of COVID. I have been struggling for 3 years to breathe normally and get a full breath even though my blood oxygen is good.

[KBird01 in reply to JHEW0836]

I had this after contracting the first strain of covid. In addition to breathing exercises, I also had physio. Basically my intercostal muscles and diaphragm had seized up. This came back again when I contracted covid a second time, albeit less severely and I found massaging my intercostal muscles myself helped to free things up.

[Myoldcat in reply to KBird01]

Yes, definitely worth finding a physical therapist who can work on intercostals, diaphragm, and other respiratory related muscles. And then self treat.

[JHEW0836 in reply to KBird01]

Thank you so much for sharing your experience. It gives me hope that I can possibly recover with the right therapy and treatment. May I ask what kind of physio you had?

[KBird01 in reply to JHEW0836]

I'm always surprised this seems to be an under researched treatment option. I went to a physiotherapist who would do massage and manipulation for sports injuries and such like. He was very experienced though and worked out how to physically manipulate (and massage) my diaphragm and ribs to get them working again. I believe you have different types of physios in the states, but we also have some who specialise in breathing. As I say, mine wasn't one of those though. Right at the beginning of covid, I recall talking to a hospital consultant who said the big mystery was why so many patients were suffering neurologically. And essentially this is what my physio deduced. The signals weren't getting to my muscles and diaphragm so we had to loosen up and retrain them.

I would also get my husband to massage between my ribs on my back where I couldn’t reach.

Good luck with it all. 🤞

[Myoldcat in reply to KBird01]

That's very interesting. I have noticed that here in the UK our regular NHS physios don't seem to actually touch the body these days... we're more likely to get a printed sheet of exercises. But as a (somewhat biased) massage therapist, a hands on intervention can be extremely powerful as it has been in your case. We're more likely to find that holistic approach from a good osteopath, advanced massage therapist or private physio, and you were fortunate to find an experienced and curious, questioning professional who wanted to find a solution. Very glad it worked for you - physical therapy is relatively simple and usually no side effects! (I said I was biased...😁)

[KBird01 in reply to Myoldcat]

Well, biased or not, I completely agree! Although as you guessed, I had to pay for the privilege of finding someone with that level of professional curiosity.

[JHEW0836 in reply to KBird01]

Thank you so much! I honestly don’t even know where to start for this here in the states. The treatment you received sounds exactly like what I need. I completely agree that there seems to be a disconnect somewhere between my respiratory system and my brain. A lot of my other symptoms have resolved or improved, especially with B12 injections, but I am still struggling to breathe correctly. I am hoping that my digestion will improve once I get proper treatment for my breathing issue.

[Myoldcat in reply to JHEW0836]

In the meantime, and if you don't have blood pressure issues, try simple breath retention where you relax; inhale to a comfortable depth a few times and exhale; then gradually increase the length of time you hold your breath before exhaling. It can work surprisingly quickly to remind your diaphragm to release. But if you feel any discomfort, stop. Better to do it slowly over several days.

[Myoldcat in reply to JHEW0836]

Hope that idea might help you - it doesn't seem to be commonly discussed, but it's simple enough to be worth try x