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Dana Farber 2nd opinion?
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
TammyCross
in
SHARE Metastatic Breast Cancer
2 months ago
Results & gut issues
Hey,I'm 45 diagnosed with under active thyroid after birth of my first child age 34. I've taken 50mg of accord Levothyroxine every morning since then. I've had on and off gut issues for years now, bloating, tiredness being the main concerns and have been referred for a colonoscopy and and endoscopy
Hey,I'm 45 diagnosed with under active thyroid after birth of my first child age 34. I've taken 50mg of accord Levothyroxine every morning since then. I've had on and off gut issues for years now, bloating, tiredness being the main concerns and have been referred for a colonoscopy and and endoscopy
Sunnyd00
in
Thyroid UK
4 months ago
ALC doubling time
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
Shangonmom
in
CLL Support
2 months ago
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Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
2 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
2 months ago
vaginal bleeding post bowel motion
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
PopcornPJ
in
Endometriosis UK
2 months ago
immunotherapy for OVCA
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
Leniko
in
My Ovacome
2 months ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
2 months ago
Current Isolation
I was told my next sputum test would be 4 weeks after my first day of medication... seems like a long time?
I was told my next sputum test would be 4 weeks after my first day of medication... seems like a long time?
spicywowbao
in
TB Alert
4 months ago
Curious about PBC symptoms and LFTs at Diagnosis
Hello Everyone, I am new to the group and I was recently diagnosed with PBC and I was wondering if anyone could share what symptoms they might have been experiencing when they first were diagnosed with PBC. I know from doing some research, that "intense" itching is mentioned as well as elevated LFTs
Hello Everyone, I am new to the group and I was recently diagnosed with PBC and I was wondering if anyone could share what symptoms they might have been experiencing when they first were diagnosed with PBC. I know from doing some research, that "intense" itching is mentioned as well as elevated LFTs
Toddyboo
in
PBCers Organization
4 months ago
sct update so far
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
Leighcox85
in
MPN Voice
2 months ago
Does anyone take a diuretic to help with water retention?
I have for many years suffered from painful water retention in my buttocks and legs. I am also unable to pinch the skin on my upper arms. Ive recently been prescribed a diuretic to see if this will help. Do others have a similar issue? Or is it a sign that I’m still under medicated? My legs are painful
I have for many years suffered from painful water retention in my buttocks and legs. I am also unable to pinch the skin on my upper arms. Ive recently been prescribed a diuretic to see if this will help. Do others have a similar issue? Or is it a sign that I’m still under medicated? My legs are painful
Joesmum
in
Thyroid UK
4 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
BluHydrangea
in
SHARE Metastatic Breast Cancer
2 months ago
Early Results from Transdermal Estrogen PATCH trial
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
janebob99
in
Advanced Prostate Cancer
4 months ago
Early Results of Estrogen PATCH trial - 1
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
janebob99
in
Prostate Cancer Network
4 months ago
T4 high range advice please
Hi I’m just looking for some advice please these are my latest results. As you will see T4 always seems to be in the higher range whilst T3 the lower end of the range. Just wondering if a small amount of Liothyronine were to be added how does it actually work? For example would it raise T3 whilst lowering
Hi I’m just looking for some advice please these are my latest results. As you will see T4 always seems to be in the higher range whilst T3 the lower end of the range. Just wondering if a small amount of Liothyronine were to be added how does it actually work? For example would it raise T3 whilst lowering
Pebbles33
in
Thyroid UK
4 months ago
Completely lost
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
BoojaBooja
in
Restless Legs Syndrome
4 months ago
T3 daily timings etc...
Hi, Would people kindly let me know what times of the day they take their T3, what dosage they are on and how they arrived at that dose? I would just like to know out of interest. I appreciate peoples requirements are totally different but I am just interested in what other people do as I'm having
Hi, Would people kindly let me know what times of the day they take their T3, what dosage they are on and how they arrived at that dose? I would just like to know out of interest. I appreciate peoples requirements are totally different but I am just interested in what other people do as I'm having
joey82
in
Thyroid UK
4 months ago
Small thyroid gland question......
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
Jillymo
in
Thyroid UK
1 month ago
Could anyone please help in what to test/offer advice please? loading b12 6 wks ago, tsh 1.53. Freet4 12.2 & feeling ill & exhausted still?
HiTo try to cut long story short:) after shopping to subs instead of inj b12 during covid, neuro symptoms & very poor health returned finished loading dose of 6, 6 wks ago. Pins/needles etc worsened during jabs. My tsh levels been up/down over years,highest 7.Not had thyroid medication. Dr's recent
HiTo try to cut long story short:) after shopping to subs instead of inj b12 during covid, neuro symptoms & very poor health returned finished loading dose of 6, 6 wks ago. Pins/needles etc worsened during jabs. My tsh levels been up/down over years,highest 7.Not had thyroid medication. Dr's recent
Jo5454
in
Thyroid UK
1 month ago
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